COMMON MAPS
Map version new-york activity top-down
Main site Contact
Menu
↑ parent activity group ·
research dossier

PARENT TO PARENT OF NEW YORK STATE
SCHENECTADY, NY · EIN 141818588 · Form 990 · FY2024 · NTEE P820 · Human Services · Small ($100K-$1M) · parenttoparentnys.org
revenue
$660K
expenses
$665K
net assets
$113K
employees
21
volunteers
8
program ratio
88%
mission · from form 990

PARENT TO PARENT OF NYS BUILDS A SUPPORTIVE NETWORK OF FAMILIES TO REDUCE ISOLATION AND EMPOWER THOSE WHO CARE FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES OR SPECIAL HEALTHCARE NEEDS TO NAVIGATE AND INFLUENCE SERVICE SYSTEMS AND MAKE INFORMED DECISIONS.

profile · synthesized from sources

Parent to Parent of New York State supports families of individuals with developmental disabilities or special healthcare needs by reducing isolation and empowering caregivers. The organization connects families through one-to-one peer support, provides information and referral services, and offers training to help navigate service systems. It operates statewide with regional offices and serves both families and professionals.

irs program accomplishments · form 990 part iii · fy2024

What they reported doing

  1. #1 primary $54K
    FAMILY TO FAMILY HEALTH INFORMATION CENTER - FUNDING PROVIDED THROUGH THE FEDERAL MATERNAL CHILD HEALTH BUREAU, A DIVISION OF HRSA, TO PROVIDE INFORMATION & REFERRAL, TRAINING AND SUPPORT TO PARENT AND OTHER FAMILY CAREGIVERS OF CHILDREN, BIRTH - 21, WITH SPECIAL HEALTH CARE NEEDS. SPECIAL HEALTH CARE NEEDS, AS DEFINED BY MCHB, INCLUDES CHILDREN WITH DEVELOPMENTAL, PHYSICAL, EMOTIONAL AND BEHAVIORAL HEALTH CARE CONCERNS. WORKING WITH STATE AGENCIES AND PROFESSIONAL PROVIDERS TO IMPROVE SYSTEMS OF CARE FOR CHILDREN WITH SPECIAL HEALTH CARE NEEDS AND TO PROMOTE THE INFORMED PARTICIPATION OF FAMILIES WITHIN SYSTEMS DEVELOPMENT IS ALSO PART OF THIS WORK.
  2. #2 $62K
    SPECIAL EDUCATION CORE COMMUNITY PARTNER - TO PROVIDE INFORMATION, REFERRAL AND TRAINING REGARDING SPECIAL EDUCATION AND TRANSITION PLANNING FOR FAMILIES AND PROFESSIONALS OF STUDENTS BIRTH - 26 YEARS OF AGE. THE PROGRAM SEEKS TO PROMOTE THE MEANINGFUL INVOLVEMENT OF FAMILIES WITHIN THEIR CHILD'S EDUCATIONAL PROGRAM. PARENT TO PARENT OF NYS IS RESPONSIBLE TO PROVIDE THESE SERVICES IN A XX COUNTY REGION SURROUNDING THE CAPITAL DISTRICT.
named programs · 4 · from sources

What they call their work

Family to Family Health Information Center
Provides information and referral, training, and support to families and professionals of children birth to 21 with special healthcare needs, funded by the Maternal Child Health Bureau.
Parent to Parent Matching
Connects parents and caregivers of individuals with developmental disabilities or special healthcare needs one-to-one with trained support parents who have similar lived experiences, providing emotional support and resource guidance.
Special Education Core Community Partner
Offers information, referral, and training on special education and transition planning for families and professionals of students from birth to age 26, serving the Capital District region.
Text4CareGivers Program
Develops a text-based caregiver support service to help family caregivers reduce stress and improve coping, funded by the Developmental Disabilities Planning Council.
activities · 4 groups

What they do

  • Autism and Neurodiversity Family Support Services 2 activities
    • Deliver one-to-one peer support through trained Support Parents
      Matches family caregivers of individuals with developmental disabilities or special healthcare needs to trained volunteer Support Parents who have lived experience with similar conditions. This statewide program includes over 1,200 enrolled parents and serves diverse caregiver roles including parents, grandparents, siblings, and foster/adoptive parents.
    • Host virtual events and community workshops for caregiver support
      Organizes a monthly calendar of virtual events, workshops, and community conversations focused on learning, connection, and mutual support for caregivers of individuals with developmental disabilities or special healthcare needs.
  • Caregiver Support for Dementia and Aging 1 activity
    • Develop and operate a text-based support service for caregivers
      Implements a text-messaging platform to help family caregivers reduce stress and improve coping strategies through accessible, real-time communication.
  • Facility-Based Service Delivery 1 activity
    • Provide regional support services across New York State
      Delivers support services to caregivers in upstate New York (33–34 counties), western New York (22 counties), New York City and surrounding areas (6 counties), Long Island (2 counties), and Staten Island, ensuring broad geographic reach across the state.
  • Uncategorized 1 activity
    • Operate the Family to Family Health Information Center
      Provides information, referral, training, and support to family caregivers of children from birth to age 26 with special healthcare needs, including developmental, physical, emotional, and behavioral concerns. The center serves as a resource hub for families and professionals, particularly in the Capital District and across New York State.
financials · form 990 · fy2024
revenue
Total revenue$660K
Contributions & grants$659K100%
Program service revenue$1080%
Investment income$880%
Other revenue$0
expenses
Total expenses$665K
Program expenses88%
Admin / overhead12%
Fundraising0%
Salaries & benefits$533K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$901K
Cash$768K
Investments$0
Liabilities$788K
Net assets$113K
Liquid reserves13.9 mo
3 years on record · 2020–2024 · YoY revenue +13.9%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 1
NameTitleHours/wkCompensation
MICHELE JUDA EXECUTIVE DIRECTOR 40 $90K
board members · 8
  • ANN SCHERFF — PRESIDENT
  • DAVID MCADAM — SECRETARY
  • DEBORAH NAPOLITANO PHD — SECRETARY
  • ERIN HYNES — TREASURER
  • JOSEPH BALL — DIRECTOR
  • LIZETTE HERNANDEZ — TREASURER
  • SIMCHA WEINSTEIN — DIRECTOR
  • SUSAN PLATKIN — DIRECTOR
relationships · 13

Who they work with

  • Developmental Disabilities Planning Council Funder — Funder of the Text4CareGivers program
  • Easter Seals Network — Parent to Parent of New York State was initially established under Easter Seals.
  • Family Support Council Network — Participated in Family Support Council meetings to advocate for statewide coordination of parent to parent groups.
  • Family to Family Health Information Center Partner — Operated in partnership to provide health information and support to families.
  • Finger Lakes DDSO Partner — Hosts PARENT TO PARENT OF NEW YORK STATE's Upstate West office at its facility in Rochester, NY.
  • Finger Lakes DDSO Partner — Hosts the Upstate West regional office to provide caregiver support services.
  • HRSA Government — Federal agency providing funding through its Maternal Child Health Bureau
  • IBR Partner — Hosts PARENT TO PARENT OF NEW YORK STATE's Staten Island office at its facility.
  • IBR Partner — Hosts the Staten Island regional office to provide caregiver support services.
  • Instagram Partner — Social media platform used for outreach and engagement
  • Maternal Child Health Bureau Government — Federal funder and partner through the Family to Family Health Information Center program
  • OPWDD Government — Primary source of Family Support Services funding and provided a 2.6% Targeted Inflationary Increase in the 2025–2026 State Budget.
  • Rochester, NY Partner — Location for regional coordination and community outreach activities.
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Family-Participatory Systems Change
    methodology: family-participatory systems change
    By involving family caregivers in collaboration with state agencies and service providers, we produce more responsive and effective systems of care, because informed family participation ensures that policies and programs reflect real-world needs and experiences.
  • Lived Experience as Leadership Foundation
    methodology: lived_experience_governance
    By grounding organizational leadership and governance in lived experience and system knowledge, we produce greater alignment with family needs, because leaders who have navigated the system can shape services that are relevant, accessible, and trustworthy.
  • Mobile-Based Low-Barrier Outreach
    methodology: mobile-based caregiver support
    By delivering caregiver support through text-based communication platforms, we produce increased access and reduced stress, because mobile outreach meets families where they are with minimal barriers to engagement.
  • Multilingual Access for Equity
    methodology: multilingual_support
    By offering caregiver support in multiple languages including Spanish, Mandarin, Arabic, Hindi, and Gujarati, we produce more equitable access to services, because language-congruent support enables full understanding, trust, and participation among non-English-speaking families.
  • Peer-to-Peer Parent Support Model
    methodology: peer_support_model
    By matching experienced parent caregivers with newly referred families, we produce improved coping, resource navigation, and empowerment, because shared lived experience builds trust, reduces isolation, and increases engagement with support systems.