What they reported doing
- #1 primary $13.53MSELF DIRECTION SERVICES ALLOW INDIVIDUALS TO PLAN AND ACCESS SUPPORT SERVICES THROUGH AN ANNUAL BUDGET THAT THEY DESIGN TO MEET THEIR INDIVIDUAL NEEDS WHICH IS DETERMINED BY REGION, LIVING SITUATION AND ASSESSMENT. EACH INDIVIDUAL HAS A PERSONAL RESOURCES ALLOCATION (PRA) WHICH DETERMINES THEIR BUDGET. WITH SUPPORT OF A "PLANNING TEAM" MADE UP OF FAMILY, FRIENDS AND ADVOCATES, INDIVIDUALS CAN CHOOSE TO SELF-HIRE THEIR DIRECT CARE STAFF OR ACCESS TRADITIONAL AGENCY SUPPORTED SERVICES FOR RESPITE, COMMUNITY HABILITATION AND/OR SUPPORTED EMPLOYMENT. A VARIETY OF ADDITIONAL SERVICES ARE ALSO AVAILABLE SUCH AS FINANCIAL ASSISTANCE FOR HOUSING, LIVING EXPENSES, AND COMMUNITY CLASSES AND ARE DEPENDENT UPON AGE OF THE INDIVIDUAL. APPROXIMATELY 611 PEOPLE WERE SERVED IN 2024.
- #2 $1.43MWAIVER RESPITE SERVICES PROVIDE SUPPORT TO INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES AND OFFERS THEIR PRIMARY CAREGIVERS A BREAK FROM PROVIDING CARE. SERVICES CAN BE PROVIDED IN THE HOME OR IN THE COMMUNITY. OUR COMMUNITY RESPITE SERVICES PROVIDE PRIMARILY 1:1 OR 1:2 SUPPORTS AND OUR RECREATIONAL RESPITE SERVICES PROVIDE GROUP RESPITE OPPORTUNITIES THROUGHOUT THE YEAR. APPROXIMATELY 125 PEOPLE WERE SERVED IN 2024.
What they call their work
What they do
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Self-Directed Disability Support Services 1 activity
- Providing self-direction services for individuals with developmental disabilitiesEnables individuals with developmental disabilities to design annual budgets and access support services such as self-hired direct care, respite, community habilitation, and supported employment; served approximately 611 people in 2024.
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Respite Care for Developmental Disabilities 1 activity
- Providing waiver-funded respite services for individuals with developmental disabilitiesOffers 1:1, 1:2, or group respite support to individuals with developmental disabilities in home or community settings, providing caregiver relief; served approximately 125 people in 2024.
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Adaptive Equipment Provision 1 activity
- Showcasing low-cost adaptive devices for individuals with disabilitiesParticipates in public events such as the Syracuse Maker’s Faire to demonstrate and promote low-cost adaptive devices that enhance accessibility and independence for individuals with disabilities.
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Who runs it
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| BRUCE DRAKE | CHIEF EXECUTIVE OFFICER | 40 | $231K |
| ROXANNE COTTER | CHIEF FINANCIAL OFFICER | 40 | $163K |
| DANIEL KELLEY | CHIEF OPERATING OFFICER | 40 | $141K |
| LAWTON WILLIAMSON | DIRECTOR OF EMPLOYMENT | 40 | $139K |
- ANDREA WANDERSEE — DIRECTOR
- BENJAMIN TAYLOR — TREASURER
- BETH LYNN HOEY — DIRECTOR
- ERIC STONE — PRESIDENT
- ERICA WYNN KEARSE — VICE PRESIDENT
- JUDITH TARRANTS — DIRECTOR
- KAREN BURNS — DIRECTOR
- LINDA WEBB — DIRECTOR
- PATTI MARVIN — SECRETARY
- PETER KOZIK — DIRECTOR
Who they work with
- ARISE Partner — Merger partner in forming Indera, formerly operating as ARISE-Exceptional Family Resources.
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Adaptive Design with Community Collaborationmethodology: adaptive_designBy using adaptive design and creative problem-solving in collaboration with the community, we turn everyday challenges into opportunities for independence and inclusion, because locally co-created, low-cost solutions are more sustainable and responsive to real-world needs.
- Self-Direction Model for Personalized Supportmethodology: self_direction_modelBy allowing individuals with disabilities to design their own support budgets and choose how to use services—including self-hiring caregivers—we increase autonomy and the relevance of care, because individual-led planning leads to more effective, dignity-affirming outcomes.