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UNITED CEREBRAL PALSY ASSOCIATION OF THE NORTH COUNTRY INC
CANTON, NY · EIN 161568985 · Form 990 · FY2024 · NTEE G200 · Voluntary Health Associations · Large ($10M-$50M) · cpnorthcountry.org
revenue
$22.8M
expenses
$25.5M
net assets
$18.5M
employees
403
volunteers
11
program ratio
84%
mission · from form 990

PROVIDING SERVICES TO DEVELOPMENTALLY DISABLED INDIVIDUALS AND THEIR FAMILIES INCLUDING RESIDENTIAL AND CLINICAL SERVICES.

profile · synthesized from sources

United Cerebral Palsy Association of the North Country Inc provides comprehensive health and human services to adults and children with developmental disabilities across St. Lawrence, Franklin, and Jefferson counties in northern New York. The organization offers residential, clinical, and community-based support services designed to promote independence, safety, and inclusion. It operates under a person-centered care model and is accredited by CQL for quality and leadership in disability services.

irs program accomplishments · form 990 part iii · fy2024

What they reported doing

  1. #1 primary $6.36M
    DEVELOPMENTAL AND FAMILY SUPPORT SERVICES - PROVIDES A COMPREHENSIVE ARRAY OF SERVICES FOR ADULTS WITH DEVELOPMENTAL DISABILITIES WITH THE GOAL BEING TO OFFER LIVING ENVIRONMENTS THAT MEET THE INDIVIDUALS CHOSEN LIFESTYLE. 2,060 INDIVIDUALS SERVED IN 2024.
  2. #2 $2.64M
    WOMEN, INFANTS AND CHILDREN PROGRAM. 2,219 INDIVIDUALS SERVED IN 2024.
named programs · 9 · from sources

What they call their work

Assistive Technology and Environmental Modifications (E-mods)
Provides funding and support for home modifications (e.g., ramps, widened doorways, bathroom adaptations) and assistive devices (e.g., communication tools, motorized wheelchairs) to improve safety, accessibility, and independence.
Community Habilitation
In-home support for individuals with developmental disabilities, including training in personal grooming, cooking, money management, shopping, and household chores. Available in St. Lawrence and Franklin counties.
Day Habilitation
Community-based services tailored to individual needs, interests, and preferences, focusing on social skills, recreation, and volunteer opportunities. Services are "without walls," meaning they occur in diverse community settings.
Developmental Disabilities Awareness Program ("Kids On the Block" and "Making Friends")
Free educational presentations using puppets and adaptive tools to teach elementary school children in six northern NY counties about developmental disabilities and inclusion.
Individualized Residential Alternatives (IRA)
Supervised group homes for adults with developmental disabilities in Canton, Potsdam, Massena, and other communities across northern New York. Homes support 3–5 individuals with person-centered services to promote independence.
Individualized Support Services (ISS)
Offers one-time or ongoing financial assistance for housing setup, rent support, and household items to help individuals with developmental disabilities live independently.
NYS Elks Home Service Program
Case management service funded by the NYS Elks that helps individuals and families connect with local resources and support services.
North Country Recreation
Recreational program offering outdoor and indoor activities such as camping, fishing, crafts, video production, and online chats for individuals with disabilities, including those with significant physical support needs.
Reimbursement Voucher Subsidy
Provides families with a yearly stipend ($300) to spend on goods and services not covered by Medicaid, such as respite care, skill-building tools, or home improvements.
activities · 9 groups

What they do

  • Residential Support for Developmental Disabilities 4 activities
    • Annual voucher program for uncovered goods and services
      Offers annual $300 reimbursement vouchers to families for goods and services not covered by Medicaid, aimed at enhancing skills and improving home environments for individuals with developmental disabilities.
    • Community and Day Habilitation services
      Provides Day Habilitation services tailored to individuals’ needs through social, recreational, and volunteer activities, and delivers Community Habilitation services in homes focusing on daily living skills such as personal grooming, cooking, money management, and shopping, supported by OPWDD federal waiver funding.
    • Financial assistance for housing and household setup
      Provides one-time and ongoing financial aid to help individuals with developmental disabilities afford safe and decent housing, including rental payments and costs for household setup items.
    • Supervised residential homes for individuals with developmental disabilities
      Operates supervised Individualized Residential Alternatives (IRAs) and other living environments in eight communities across the North Country region of New York, including St. Lawrence, Franklin, and Jefferson counties, providing residential support aligned with individuals' chosen lifestyles.
  • Developmental Disability Service Coordination 1 activity
    • Case management and service coordination
      Provides case management and home service coordination, including through the New York State Elks program, to support short-term linkage and referral to community-based services for individuals with developmental disabilities.
  • Consumer-Directed Personal Care Administration 1 activity
    • Consumer-directed personal care services
      Provides consumer-directed personal care services enabling Medicaid-eligible individuals to train, hire, and manage their own personal care attendants.
  • Autism Awareness and Acceptance Initiatives 1 activity
    • Developmental disabilities awareness education
      Provides educational presentations to children in kindergarten and 3rd/4th grades to promote understanding, acceptance, and inclusion of people with developmental disabilities.
  • Home Accessibility Modifications 1 activity
    • Funding for environmental home modifications
      Offers financial support for home adaptations such as ramps, lifts, bathroom and kitchen modifications, safety devices, and widened doorways to enhance independence and address health and safety needs for individuals with disabilities.
  • Respite Care for Developmental Disabilities 1 activity
    • Hourly respite care services
      Delivers hourly respite care for primary caregivers of people with disabilities by employing respite providers through OPWDD-awarded hours, supporting caregiver well-being and continuity of care.
  • Adaptive Equipment Provision 1 activity
    • Provision of adaptive technology and equipment
      Provides adaptive technology and assistive devices including communication and speech tools, motorized wheelchairs, therapy equipment, service animals, adaptive seating, and vehicle modifications to support independence for individuals with developmental disabilities.
  • Day Habilitation Services 1 activity
    • Recreational programs for individuals with disabilities
      Offers group and individual recreational activities including crafts, video production, games, online chats, and other creative pursuits that promote social engagement, learning, and inclusion for people with developmental disabilities, including those requiring physical assistance.
  • WIC Nutrition Support Services 1 activity
    • Women, Infants, and Children (WIC) program
      Operates a WIC program that served 2,219 individuals in 2024, providing nutritional support and services to women, infants, and children.
financials · form 990 · fy2024
revenue
Total revenue$22.84M
Contributions & grants$5.32M23%
Program service revenue$17.00M74%
Investment income$376K2%
Other revenue$141K
expenses
Total expenses$25.53M
Program expenses84%
Admin / overhead16%
Fundraising0%
Salaries & benefits$16.28M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$21.21M
Cash$3.88M
Investments$3.28M
Liabilities$2.74M
Net assets$18.47M
Liquid reserves3.4 mo
3 years on record · 2020–2024 · YoY revenue -6.1%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 11
NameTitleHours/wkCompensation
CRAIG RICHARDS INTERNAL MEDICINE/DO 38 $279K
ANDREW WILLIAMS CHIEF MEDICAL OFFICER 38 $247K
DONALD SCHUESSLER PEDIATRICS/MD 38 $222K
NATASHYA FRASER DENTIST 40 $188K
DAVID BENDER CHIEF EXECUTIVE OFFICER 38 $183K
JACKLINE NGALAME PSYCHIATRIC NURSE PRACTITI 40 $171K
CHRISTINE THRASHER NURSE PRACTITIONER - ADULT HEALTH 38 $152K
ANNE RICHEY CHIEF EXECUTIVE OFFICER 38 $136K
JOSH WHITMARSH CHIEF COMPLIANCE OFFICER 38 $105K
ALEXANDER BRYDEN CHIEF FINANCIAL OFFICER 38 $97K
PAMELA MAHAFFY CHIEF FINANCIAL OFFICER 38 $94K
board members · 14
  • CATHLYN LAMITIE — DIRECTOR
  • CHESTER XIANG — TREASURER
  • DANA OLZENAK MCGUIRE — DIRECTOR
  • DONNA WEBSTER — DIRECTOR
  • EMMA BRACKETT — SECRETARY
  • JEFFREY DOLLINGER — DIRECTOR
  • JONDAVID DELONG ESQ — PRESIDENT
  • JORDAN ESTEY — DIRECTOR
  • KAREN JOHNSON-WEINER — DIRECTOR
  • KAY WALTON — DIRECTOR
  • MICHAEL DIVINCENZO — VICE PRESIDENT
  • REBECCA PREVE — DIRECTOR
  • RICHARD MERCHANT — DIRECTOR
  • SARAH TODD — DIRECTOR
relationships · 13

Who they work with

  • CPA of NYS Partner — Operated as an Extension Clinic under CPA of NYS.
  • CQL | The Council on Quality and Leadership Government — Accredited by CQL, adhering to standards including Basic Assurances, Personal Outcome Measures, and Person-Centered Excellence.
  • Cerebral Palsy Associations of New York State Network — Statewide network affiliate providing coordinated services for individuals with cerebral palsy and developmental disabilities.
  • HCBS Government — Receives funding and operates under Home and Community Based Services (HCBS) framework for assistive technology and environmental modifications.
  • Jim Williams Partner — Contact person for arranging educational presentations in schools
  • Medicaid Government — Assistive technology funding is accessed after denial from Medicaid.
  • NYS Elks Partner — Provides annual contributions and fundraising support for the Home Service Director position, enabling case management and referral services for individuals and families.
  • New York State Department of Health Government — Certified the agency as an Article 28 Diagnostic and Treatment Center.
  • Northern New York Community Foundation Partner — Supports certain activities in the North Country Recreation program.
  • OPWDD Government — Agency provides services under OPWDD’s Home and Community Based Waiver Services authorization.
  • OPWDD Government — Eligibility for services is determined through OPWDD.
  • Office for People With Developmental Disabilities Government — State agency that certifies Individualized Residential Alternatives (IRAs) operated by the organization.
  • Office for People with Developmental Disabilities Government — State agency that awards annual respite hours to individuals, enabling access to the program.
strategies · 3

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Experiential Learning Through Expanded Engagement
    methodology: experiential_learning
    By exposing individuals to new activities, environments, and social settings, the organization fosters personal growth and skill development, because experiential engagement builds confidence and expands comfort zones in meaningful ways.
  • Family and Caregiver-Directed Support Model
    methodology: family_directed_support
    By empowering families and caregivers to direct respite and support services—including selecting providers and using flexible funding—the organization ensures care aligns with personal trust and unmet needs, because autonomy for caregivers increases continuity, safety, and satisfaction in care delivery.
  • Person-Centered Planning and Support Model
    methodology: person-centered_care
    By centering services on individual goals, needs, and choices through personalized planning and flexible supports, the organization promotes autonomy, skill development, and life outcomes for people with developmental disabilities, because self-directed care increases engagement and effectiveness.