irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $383KFAMILY SUPPORT SERVICES - PROVIDE SUPPORT TO FAMILIES WITH CHILDREN WITH DEVELOPMENTAL DISABILITIES THROUGH, RECREATION, TRANSPORTATION, TRAINING, INFORMATION, AND SUPPLIES TO 489 INDIVIDUALS.
- #2 $16KOTHER PROGRAMS - SELF PAY AND LIMITED EXCEPTION RESPITE
named programs · 5 · from sources
What they call their work
Family Education, Support, and Training
Offers free trainings on topics including service navigation, educational advocacy, guardianship, trusts, and transition planning
Family Reimbursement Program
Provides financial relief through respite reimbursement and funding for therapeutic recreation, adaptive equipment, home modifications, and emergency services
Family Support Services
Provides support to families with children with developmental disabilities through recreation, transportation, training, information, and supplies
Self-Advocacy
Supports individuals in advocating for themselves through leadership opportunities and input into agency decisions
Supporting People in the Community: Self Direction
Offers 1:1 mentoring, self-directed community habilitation, and residential supports with backup mentor service
activities · 7 groups
What they do
-
Residential Support for Developmental Disabilities 2 activities
- 1:1 mentoring and community habilitation servicesProvides individualized direct support services including 1:1 mentoring, self-directed community habilitation, and backup mentoring for individuals with intellectual and developmental disabilities. Employs over 1,000 professionals across New York State to serve approximately 1,000 children and adults.
- Family support services with recreation, transportation, and suppliesDelivers integrated family support services including recreational activities, transportation, information access, and provision of supplies to families with children with developmental disabilities.
-
-
Nonprofit-Operated Cafés and Social Enterprises 1 activity
- Companion care and coffee hub operationProvides companion care services and operates a coffee hub as part of its direct support offerings for individuals with developmental disabilities.
-
-
Mentorship and Professional Development Programs 1 activity
- Employee capacity building through training and professional developmentSupports staff development by providing mandatory 8-hour annual online training completed from home and offering paid professional development days for employees to attend advanced training opportunities.
-
-
Respite Care for Developmental Disabilities 1 activity
- Family Reimbursement and respite care programOperates a Family Reimbursement program that funds respite care, therapeutic recreation, adaptive classes, home modifications, specialized equipment, and emergency services for families of children with intellectual and developmental disabilities. Also offers self-pay and limited-exception respite care services.
-
-
Parenting Education and Support Programs 1 activity
- Family training and education programsOffers comprehensive family education and training on service navigation, educational advocacy, communication strategies, benefits access, guardianship, transition planning, behavioral supports, financial planning, and trusts for families of individuals with intellectual and developmental disabilities. Training is delivered in person, online, and through virtual sessions.
-
-
Community Resource Navigation and Support Services 1 activity
- Food Finder resource websiteProvides public access to a Food Finder website that helps individuals locate food assistance resources.
-
-
Disability Rights Advocacy & Self-Advocacy Empowerment 1 activity
- Individual, family, and systems advocacyEngages in advocacy at individual, family, and systemic levels to advance the rights and meet the needs of individuals with developmental disabilities and their families.
-
financials · form 990 · fy2024
revenue
Total revenue$38.97M
Contributions & grants$2.92M8%
Program service revenue$35.57M91%
Investment income$265K1%
Other revenue$217K
expenses
Total expenses$38.79M
Program expenses92%
Admin / overhead7%
Fundraising0%
Salaries & benefits$30.98M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$14.90M
Cash$3.86M
Investments$3.28M
Liabilities$3.33M
Net assets$11.57M
Liquid reserves2.2 mo
4 years on record · 2020–2024 · YoY revenue +7.8%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 5
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| AMY DUGLISS | EXECUTIVE DIRECTOR | 40 | $232K |
| ELIZABETH HENDERSON | ASSOCIATE EXEC. DIRECTOR | 40 | $147K |
| SALLY STANLEY | CFO | 40 | $131K |
| CAROL GENTRY | COMPLIANCE DIRECTOR | 40 | $121K |
| SANDRA FINN | HUMAN RESOURCE DIRECTOR | 40 | $118K |
board members · 11
- ANDRES CANO — DIRECTOR
- ANNE LEE — PRESIDENT
- DAVID CAPRIOTTI — DIRECTOR
- DOM CAMBARERI — VICE PRESIDENT
- ELLEN WEINSTEIN — DIRECTOR
- JAMES MULDOON — SECRETARY
- JED DELMONICO — DIRECTOR
- JOHN MIRANDA — DIRECTOR
- MARK HALL — DIRECTOR
- SCOTT HEYMAN — DIRECTOR
- STEPHEN NEE — TREASURER
relationships · 7
Who they work with
- 211 CNY Partner — Provides referral to 211 CNY for human services information and referrals.
- Contact Community Services Partner — Refers to Contact Community Services for confidential crisis counseling and suicide prevention services.
- Feeding America Network — Member of national food bank network
- National Suicide Prevention Lifeline Government — Provides access to the National Suicide Prevention Lifeline for 24/7 mental health support.
- New York Connects Partner — Provides referral to New York Connects for long-term services and supports.
- OPWDD Government — Assists families in navigating OPWDD eligibility for services and supports.
- expert presenters Partner — Collaborates with expert presenters to deliver free family training through the Family Support Services grant.
strategies · 1
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Person-Centered, Self-Directed Modelmethodology: person_centered_self_directionBy centering individuals with developmental disabilities as decision-makers in their own care and service planning, we produce greater autonomy and life satisfaction because agency and personal choice are foundational to dignity and effective outcomes.