named programs · 3 · from sources
What they call their work
Early Detection Advocacy
Advocates for early and regular mammography screening, especially for women under 40 and those with dense breast tissue, citing long-term life-saving benefits.
Metastatic Breast Cancer Research Support
Supports research at Cold Spring Harbor Laboratory focused on understanding and preventing the recurrence and spread of breast cancer after chemotherapy.
Post-Cancer Health Education
Provides information on long-term health risks after breast cancer treatment, particularly cardiovascular disease linked to chest radiation.
activities · 4 groups
What they do
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Cancer Patient Financial and Practical Support 4 activities
- Family support for advanced breast cancer patientsOffers individualized, sensitive assistance to families of patients with advanced breast cancer during periods of significant emotional and logistical stress.
- Operation of local pilot support program for women undergoing treatmentRuns a pilot outreach program in Oyster Bay, New York that provides practical day-to-day assistance to local women undergoing breast cancer treatment, including help with chores, child care, transportation, and household support.
- Patient empowerment and communication toolsBuilds patient capacity by providing guidance on identifying poor-quality medical care and communicating effectively with healthcare providers during breast cancer treatment.
- Support and education for breast cancer patients and survivorsProvides comprehensive support and educational resources to women diagnosed with breast cancer, including information on types of surgery, treatment options, managing side effects, and becoming informed advocates for their care. Offers emotional and informational support through online forums and guides for navigating diagnosis, treatment, and post-treatment life.
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Cancer Awareness and Education Initiatives 2 activities
- Advocacy for breast cancer patient education and awarenessAdvocates for improved patient education and awareness by presenting testimony on Capitol Hill in support of the Breast Cancer Patient Education Act and conducting a Male Breast Cancer Awareness Campaign to promote early detection in men.
- Early detection initiatives for breast cancerConducts educational outreach programs on early detection of breast cancer through community groups, churches, and college campuses, and launched the Before Forty Initiative to promote early detection in young women.
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Cancer Research Funding 2 activities
- Funding breast cancer researchFunds research at Cold Spring Harbor Laboratory focused on understanding how cancer cells return after chemotherapy.
- Research on breast cancer treatment and outcomesConducts and disseminates research on triple-negative breast cancer, including clinical observations, treatment trends, and analysis of chemotherapy regimens. Publishes reports on pain control in surgery, critiques of FDA decisions, and long-term survival in metastatic disease, including a retrospective study showing reduced recurrence with adjuvant CMF chemotherapy.
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Uncategorized 1 activity
- Development and distribution of non-toxic skincare products for cancer patientsCreated and launched Bétèrre Skin+Care, a non-toxic skincare line specifically formulated to alleviate side effects from chemotherapy and radiation treatments, and provided garden-based natural skin therapies to women undergoing cancer treatment.
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financials · form 990EZ · fy2023
revenue
Total revenue$1K
Contributions & grants$1K100%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$998
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$4K
Cash—
Investments—
Liabilities—
Net assets$-4K
3 years on record · 2020–2023 · YoY revenue -49.1%
relationships · 26
Who they work with
- 501 c 3 Not-For-Profit Organization Government — Identified as a 501(c)(3) nonprofit organization
- American Cancer Society Government — References the American Cancer Society's guideline recommending first mammograms at age forty as a standard used by insurers.
- American Society of Plastic Surgeons Government — Recognized Gina Maisano as a 2012 Patient of Courage and collaborates on breast reconstruction awareness initiatives.
- American Society of Plastic Surgeons Partner — Collaborated with No Surrender Breast Cancer Foundation to present advocacy testimony on Capitol Hill in support of the Breast Cancer Patient Education Act.
- BRAday Partner — Gina Maisano serves as a spokesperson for the Breast Reconstruction Awareness program.
- Cold Spring Harbor Laboratory Partner — Supported by the No Surrender Breast Cancer Foundation for research on metastatic breast cancer.
- Committee for Medicinal Products for Human Use Government — References UK CHMP's confirmation that Avastin combined with paclitaxel remains a valuable treatment option for metastatic breast cancer.
- Constantine Kaniklidis Partner — Resident cancer researcher who provides expert reports on triple negative breast cancer for the foundation.
- European Association for Cancer Research Partner — Referenced in connection with medical researcher Constantine Kaniklidis and his analysis of endocrine therapy side effect management.
- European Medicines Agency Government — Compares regulatory decisions on Avastin, noting EMA's continued approval based on benefit-risk assessment aligning with clinical evidence.
- FDA Government — Engages with FDA regulatory decisions on Avastin, including critique of withdrawal rationale and reference to appeal processes.
- Genentech/Roche Partner — References regulatory and clinical developments related to Avastin (bevacizumab), including appeals of FDA decisions and ongoing applications.
- Indiana University Partner — Cites clinical insights from Kathy Miller on the potential for curing metastatic breast cancer.
- MD Anderson Cancer Center Partner — References long-term survival data and expert opinion from clinicians like Gabriel Hortobagyi, who has documented complete remissions lasting over 20 years.
- McGill University Partner — Reports on long-term survival cases, including a BRCA2 patient with lymph node and bone metastasis achieving complete remission for 11 years.
- Medical University of Gdansk Partner — Reports on a hormone-positive breast cancer patient with liver metastases surviving over 11 years on medroxyprogesterone acetate monotherapy.
- Memorial Sloan-Kettering Cancer Center Partner — Engages with clinical perspectives from experts like Neil Rosen, who supports the possibility of curing metastatic disease.
- National Comprehensive Cancer Network Partner — Cites NCCN's support for continued use of Avastin in metastatic breast cancer despite FDA withdrawal.
- National Shikoku Cancer Center Partner — Shares case reports on long-term remission in metastatic breast cancer, including a patient with pulmonary metastasis maintaining complete remission for ~10 years.
- No Surrender Breast Cancer Support Forum Partner — Hosts an online message board for women at all stages of breast cancer diagnosis and treatment.
- No Surrender Survivor Forum Network — Online support forum operated by or affiliated with the foundation for breast cancer patients and survivors.
- Okayama University Medical School Partner — Reports on a 39-year-old patient with liver metastases surviving 8 years with complete remission using chemoendocrine therapy.
- State Key Laboratory of Oncology in South China Partner — Disseminates findings from a study on adjuvant CMF chemotherapy in triple-negative breast cancer led by Shusen Wang.
- Sylvester Comprehensive Cancer Center Partner — Collaborates through shared case studies, including a long-term metastatic breast cancer survival case from Dr. Stefan Gluck.
- breastreconstruction.org Partner — Partnered to integrate members of their forum into the No Surrender Breast Cancer Foundation's support board.
- nosurrenderbreastcancersupportforum.com Partner — Hosts and operates the foundation's online support forum for breast cancer patients and survivors.
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Early Detection Through Risk-Stratified Screeningmethodology: early_detection_screeningBy promoting baseline screening at age 35 for all women and earlier for high-risk groups using MRI, we enable earlier detection of breast cancer because MRI is more effective than mammography in younger, denser breast tissue, especially for aggressive subtypes like Triple Negative Breast Cancer.
- Holistic Support Modelmethodology: holistic_supportBy combining support, education, and advocacy, we address the full spectrum of needs for women with breast cancer because integrated services produce better engagement, self-advocacy, and health outcomes than siloed interventions.
- Metastatic Cancer Reimagined as Treatablemethodology: curative_intent_redefinitionBy reframing metastatic breast cancer as an "advanced disease" with curative intent and highlighting long-term survivors as models, we shift clinical and patient expectations because language and outcome expectations influence treatment aggressiveness and research investment.
- Patient Empowerment Through Education and Advocacymethodology: patient_educationBy equipping patients with knowledge about breast cancer and treatment options, we improve survival outcomes because informed patients are better able to advocate for themselves, make timely decisions, and challenge systemic barriers like insurance denials.
- Peer-Driven Empowerment and Supportmethodology: peer_supportBy connecting newly diagnosed women with survivors and leveraging shared experience, we improve treatment decision-making and emotional resilience because peer support fosters realistic hope, reduces isolation, and enhances the uptake of medical guidance.