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HOPE FOR HEATHER

LIVERPOOL, NY · EIN 270307900 · Form 990EZ · FY2023 · NTEE G30 · Voluntary Health Associations · Small ($100K-$1M) · hopeforheather.org
revenue
$170K
expenses
$171K
net assets
$246K
employees
profile · synthesized from sources

Hope for Heather is a volunteer-driven nonprofit organization based in Liverpool, NY, focused on raising awareness, supporting patients, and funding research for ovarian cancer. The organization emphasizes early symptom recognition, genetic testing for BRCA mutations, and patient education to improve diagnosis and outcomes. It also provides local support and scholarships in memory of Heather Weeks.

named programs · 3 · from sources

What they call their work

Heather Weeks Memorial Dance Scholarship
Annual scholarship awarded to a graduating senior pursuing a degree in dance at an accredited institution
Heather's Angel Fund
Provides financial and emotional support to ovarian cancer patients undergoing treatment at Upstate Cancer Hospital
Ovarian Cancer Awareness Campaign
Educates women about early symptoms, BRCA gene mutations, and the importance of proactive diagnosis and second opinions
activities · 4 groups

What they do

  • Cancer Awareness and Education Initiatives 2 activities
    • Educating women about ovarian cancer symptoms and risk factors
      Conducts public education initiatives to raise awareness of ovarian cancer symptoms, including distribution of symptom cards and a downloadable symptom diary, and promotes knowledge of the BRCA gene’s association with increased cancer risk.
    • Running the Men of Teal awareness campaign
      Selects and features 30 men annually during September as "Men of Teal," distributing ovarian cancer symptom cards and teal ribbons for participants to share in their communities to promote awareness.
  • Dance Program Access and Scholarship Support 1 activity
    • Awarding the Heather Weeks Memorial Dance Scholarship
      Annually awards a scholarship to a graduating high school senior majoring in dance at an accredited educational institution in honor of Heather Weeks.
  • Cancer Patient Financial and Practical Support 1 activity
    • Providing direct support to ovarian cancer patients and families
      Offers emotional and practical support to women and families affected by ovarian cancer through monthly support groups, guidance for newly diagnosed individuals, curated expert resources, and financial assistance for treatment-related needs at Upstate Cancer Hospital.
  • Cancer Research Funding 1 activity
    • Supporting ovarian cancer research through funding
      Funds ovarian cancer research to improve diagnosis and treatments, with over $1.37 million raised for awareness, local support, and research initiatives.
financials · form 990EZ · fy2023
revenue
Total revenue$170K
Contributions & grants$169K99%
Program service revenue$00%
Investment income$2K1%
Other revenue
expenses
Total expenses$171K
Program expenses
Admin / overhead
Fundraising
Salaries & benefits
Grants paid out$72K
balance sheet
Total assets$246K
Cash
Investments
Liabilities
Net assets$246K
4 years on record · 2020–2023 · YoY revenue +17.0%
leadership · form 990 part vii · fy2023

Who runs it

board members · 1
  • JESSIE W IRWIN — CHAIRMAN OF THE BOARD
relationships · 42

Who they work with

  • 13Thirty Cancer Connect Partner — Collaborates to support adolescents and young adults affected by cancer through peer connections and self-management resources.
  • 13Thirty Cancer Connect Partner — Collaborates with or refers to 13Thirty Cancer Connect for support services for adolescents and young adults affected by cancer.
  • AW Marketing Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • American College of Obstetricians & Gynecologists Partner — Collaborates to provide patient education materials on gynecologic cancer and access to physician directories.
  • Bell Home Team Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • CNY Central Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • CancerCare Partner — Provides free professional support services including counseling, education, and financial assistance for people with cancer.
  • Central New York Cancer Alliance Partner — Collaborates with or refers to the Central New York Cancer Alliance for centralized cancer resources and advocacy.
  • Chuck Hafner Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • Dr Mary-Clair King Partner — Collaborates with or cites the work of Dr. Mary-Clair King, the researcher who discovered the BRCA gene mutation and its link to breast and ovarian cancers, to support educational efforts.
  • Estee Lauder Cosmetics Partner — Collaborates with Estee Lauder Cosmetics through Evelyn Lauder's founding of the pink ribbon campaign and the Breast Cancer Research Foundation.
  • FORCE - Facing Hereditary Cancer Partner — Partners to support individuals and families facing hereditary cancers through education, advocacy, and research.
  • Facebook Partner — Uses Facebook platform to promote the Men of Teal campaign and ovarian cancer awareness.
  • Foundation For Women's Cancer Partner — Collaborates to increase research, education, and awareness about gynecologic cancer risk, prevention, and treatment.
  • Fulton Lady Raider Volleyball Partner — Team that has donated time and money to support ovarian cancer awareness and research
  • Grace's Garden Partner — Collaborates with or refers to Grace's Garden for support services for women affected by gynecologic cancers in Central New York.
  • Growthpoint Inc. Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • MEN OF TEAL Partner — Group of 30 men annually selected to promote ovarian cancer awareness through public features.
  • Macy's Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • Marisa Fratto Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • Max's Custard Stand Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • Montezuma Winery Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • National Cancer Institute Government — Relies on NCI as the principal U.S. government agency for cancer research and dissemination of cancer-related information.
  • Office on Women's Health Government — Collaborates to advance women's health through education, prevention, and public awareness initiatives.
  • Oswego Speedway Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • Ovarian Cancer Research Alliance Partner — Works with OCRA to support research, patient support, public awareness, and advocacy for ovarian cancer.
  • Patient Advocate Foundation Partner — Partners to help patients navigate insurance, employment, and financial issues related to cancer diagnosis.
  • Rick Policastro Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • Robineau Media Partner — Company that has donated time and money to support ovarian cancer awareness and research
  • Roswell Park Ovarian Cancer Registry Partner — Engages with the registry to advance research on detection, treatment, and prevention of ovarian cancer.
+ 12 more
strategies · 4

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Early Symptom Recognition and Patient Advocacy
    methodology: patient-advocacy_for_diagnosis
    By educating women about early ovarian cancer symptoms and empowering them to advocate for diagnostic testing (e.g., transvaginal ultrasound, CA-125), we improve early detection and reduce diagnostic delays, because persistent patient-initiated follow-up overcomes systemic inertia in the absence of routine screening.
  • Genetic Risk Awareness and Family-Centered Prevention
    methodology: genetic-risk_awareness
    By promoting awareness of genetic risk factors (e.g., BRCA1/BRCA2) and encouraging genetic counseling for patients and families, we enable earlier preventive interventions and cascade testing, because identifying hereditary risk transforms ovarian cancer from an undetectable threat into a manageable familial health priority.
  • Peer and Care Partner Support Model
    methodology: care-partner_support_model
    By mobilizing care partners and peer support networks, we improve treatment adherence, emotional resilience, and diagnostic persistence, because social reinforcement increases patient agency and information retention during high-stress medical encounters.
  • Volunteer-Driven, Donation-Funded Advocacy Expansion
    methodology: volunteer-driven_operations
    By operating as a volunteer-run organization funded primarily through small-dollar donations, we maximize resource allocation to education and awareness campaigns, because minimizing overhead enables broader community reach and sustained advocacy impact.