named programs · 4 · from sources
What they call their work
Advocacy and Awareness Campaigns
Works to increase public awareness and advocate for greater funding and policy support for childhood cancer research and family support services
Butterfly Boxes
Sends care packages known as Butterfly Boxes to children with cancer and their siblings to provide comfort and support during treatment
Financial Assistance Program
Provides financial aid to families of children diagnosed with cancer to help with non-medical expenses
Pediatric Rhabdomyosarcoma Research Funding
Supports research initiatives focused on pediatric rhabdomyosarcoma, a rare form of childhood cancer
activities · 4 groups
What they do
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Cancer Awareness and Education Initiatives 1 activity
- Advocates for increased funding and awareness of childhood cancerEngages in advocacy efforts to influence public policy and increase governmental and public support for childhood cancer research, treatment, and family support services. Focuses on raising awareness and securing additional funding at national and state levels.
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Cancer Research Funding 1 activity
- Funds research on pediatric rhabdomyosarcomaSupports scientific research focused on pediatric rhabdomyosarcoma, a rare form of childhood cancer, through targeted grantmaking. This includes financing studies aimed at improving diagnosis, treatment, and outcomes.
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Cancer Patient Financial and Practical Support 1 activity
- Provides financial assistance to families of children with cancerOffers direct financial support to families managing the costs associated with pediatric cancer treatment. This includes assistance with medical, travel, and living expenses during treatment.
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Therapeutic Comfort Kits and Room Makeovers 1 activity
- Sends Butterfly Boxes to children with cancer and their siblingsDelivers Butterfly Boxes—curated care packages containing comfort items, toys, and resources—to children undergoing cancer treatment and their siblings to provide emotional support during difficult times.
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financials · form 990 · fy2025
revenue
Total revenue$118K
Contributions & grants$79K67%
Program service revenue$00%
Investment income$00%
Other revenue$40K
expenses
Total expenses$51K
Program expenses88%
Admin / overhead10%
Fundraising1%
Salaries & benefits$0
Grants paid out$43K
Largest expense lineProfessional Fees
balance sheet
Total assets$174K
Cash$174K
Investments$0
Liabilities$0
Net assets$174K
Liquid reserves41.0 mo
5 years on record · 2021–2025 · YoY revenue +194.8%
leadership · form 990 part vii · fy2025
Who runs it
board members · 6
- AMANDA LEE — BOARD MEMBER
- ANTHONY M CONTE — TREASURER
- KATIA CONTE — PRESIDENT
- LISA AMATULLI — BOARD MEMBER
- MARIA GALOFARO — BOARD MEMBER
- TONY CONTE — BOARD MEMBER
strategies · 1
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Targeted Disease Research and Family Supportmethodology: targeted-disease-research-and-family-supportBy focusing on pediatric rhabdomyosarcoma, the foundation advances medical research and provides tailored support to affected families, because specialized attention to a specific rare cancer enables more effective research outcomes and responsive family care.