irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $141KPROJECT 20 HELPS LOCAL FAMILIES THAT HAVE A CHILD WITH PEDIATRIC CANCER WITH FINANCIAL SUPPORT. SUPPORT INCLUDES PAYMENTS FOR MEDICAL BILLS, COPAYS, HOUSE BILLS, ETC.
- #2 $15KGRACE'S SIBLING SUNSHINE ACKNOWLEDGES THE STRENGTH AND BRAVERY OF THE SIBLINGS OF A CHILD WITH CANCER. A CARE PACKAGE WITH GIFTS ARE MAILED TO THE SIBLINGS.
named programs · 6 · from sources
What they call their work
Annual Hockey Tournament
Multi-day youth hockey tournament that raises funds and honors Griffin’s legacy, featuring sponsorships, raffles, and community participation
Athletes Going Gold
Partners with student athletes and sports teams to raise awareness and funds through themed games in hockey, basketball, soccer, and volleyball
Change for Hope
Annual school-based campaign in February where students collect spare change to support families affected by pediatric cancer; involves over 70 schools across New York State
Grace's Sibling Sunshine
Sends care packages with gifts to siblings of children with pediatric cancer to acknowledge their strength and bravery
Project 20
Provides financial support to local families with a child battling pediatric cancer, covering medical bills, copays, and household expenses
Soccer Shoot-Out
Annual penalty kick soccer event for youth teams across age groups, raising funds and awareness through competition and community engagement
activities · 6 groups
What they do
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Cancer Awareness and Education Initiatives 1 activity
- Advocates for pediatric cancer awareness and research fundingRaises public awareness about pediatric cancer through storytelling, such as sharing personal narratives of children’s battles with the disease, and supports broader advocacy for funding pediatric cancer research.
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Cancer Research Funding 1 activity
- Funds pediatric cancer research through grantmakingProvides financial aid for pediatric cancer research, including a $429,151.13 donation to the St. Baldrick's Foundation to partially fund a research grant selected in honor of Griffin.
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Charity Golf Tournament Fundraiser 1 activity
- Organizes annual fundraising events to support families affected by pediatric cancerHosts multiple recurring fundraising events including the Gold Tie Gala (held annually in September during Pediatric Cancer Awareness Month), an annual youth hockey tournament, a golf tournament, a soccer penalty kick event, and a bottle and can drive (Can Crush Cancer). These events have raised tens of thousands of dollars annually, such as $35,778.92 from the 2026 hockey tournament and over $35,000 from the 2025 soccer event.
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Cancer Patient Financial and Practical Support 1 activity
- Provides financial assistance to families with children battling pediatric cancerOffers direct financial aid to families in Central New York to help cover medical bills, copays, and household expenses during pediatric cancer treatment. This support is coordinated in partnership with Upstate Golisano Children's Hospital to respond to current patient and family needs.
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Public School Support Fundraising 1 activity
- Runs school-based Change for Hope fundraising campaignEngages schools across Central New York in the annual Change for Hope initiative, which raised over $65,000 in 2026 and involved 72 schools across 9 counties, supporting families with children battling pediatric cancer.
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Recreational and Emotional Support Programs for Children with Serious Illnesses 1 activity
- Supports siblings of pediatric cancer patients through care packages and programsOperates the Grace’s Sibling Sunshine Program, which provides care packages with gifts to siblings of children with cancer, offering emotional and psychosocial support during treatment.
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financials · form 990 · fy2024
revenue
Total revenue$404K
Contributions & grants$136K34%
Program service revenue$00%
Investment income$3K1%
Other revenue$266K
expenses
Total expenses$367K
Program expenses91%
Admin / overhead5%
Fundraising4%
Salaries & benefits$97K
Grants paid out$232K
Largest expense lineCompensation
balance sheet
Total assets$537K
Cash$221K
Investments$310K
Liabilities$0
Net assets$537K
Liquid reserves17.4 mo
4 years on record · 2020–2024 · YoY revenue +29.5%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 2
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| ERIN ENGLE | PRESIDENT | 35 | $61K |
| CHRISTINE DALLMANN | MEMBER | 5 | $30K |
board members · 4
- ADAM ENGLE — VICE PRESIDENT
- CHERIE BOURCY — MEMBER
- DANIEL HOWARD — SECRETARY
- JENNIFER DARMINIO — TREASURER
relationships · 32
Who they work with
- Bishop Ludden High School Partner — Participating school in the Change for Hope Campaign.
- CNS Northstars Partner — Participated in Going Gold hockey and soccer games to raise funds and awareness for Griffin's Guardians.
- CXTEC Partner — Presenting sponsor of the annual golf tournament
- Cato-Meridian High School girls basketball team Partner — Partner that conducted a fundraiser to support Griffin's Guardians.
- Cazenovia Lakers Partner — Partnered to host a Hockey Fights Cancer event benefiting Griffin's Guardians.
- Children's Hospital Los Angeles Partner — Partners with the hospital to support pediatric cancer research led by Dr. Jessica Tsai.
- Cortland Dragons Men's Hockey Partner — Co-hosted a charity NCAA III men's hockey game to support Griffin's Guardians and pediatric cancer awareness.
- EVERett Lasting Memory Partner — Sponsor of the lemonade stand at the annual golf tournament
- Fayetteville-Manlius Varsity Basketball Teams Partner — Hosted Hoops for Hope games to support Griffin's Guardians and honor children affected by pediatric cancer.
- Five Below Partner — Partner organization where conversations about pediatric cancer awareness were sparked through in-store visibility of cause-related campaigns.
- Grace's Sibling Sunshine Partner — Sponsor of the putting contest at the annual golf tournament
- Holy Family Partner — Participating school in the Change for Hope Campaign.
- Jrecks Subs Cicero Partner — Provided in-kind food donations for the Soccer Shootout event.
- Mark Squairs Partner — Sponsor of the breakfast event at the annual golf tournament
- Marriott Downtown Syracuse Partner — Venue partner for the 2nd Annual Gold Tie Gala.
- Moe's Southwest Grill Cicero Partner — Provided in-kind food donations for the Soccer Shootout event.
- Most Holy Rosary Partner — Participating school in the Change for Hope Campaign.
- Oswego Lakers Men's Hockey Partner — Co-hosted a charity NCAA III men's hockey game to support Griffin's Guardians and pediatric cancer awareness.
- Proud Partner Partner — Proud Partner branding displayed on website footer.
- Proud Partner of Partner — General reference to partnership without specific named organization
- Skaneateles High School hockey team Partner — Partner that raised approximately $5,000 for Griffin's Guardians in honor of Griffin Engle.
- Sky Zone Clay Partner — Sponsored the "100 Kickoff" level of the Soccer Shootout event.
- Sky Zone Syracuse Partner — Partner that raised and donated 100% of jump pass sales to support Griffin's Guardians' Grace’s Sibling Sunshine Program.
- St. Baldrick's Foundation Partner — Collaborates with St. Baldrick's Foundation to fund childhood cancer research, including a jointly supported grant in Griffin's honor.
- St. Baldrick's Foundation Partner — Partner organization that honored Griffin Engle through its head-shaving fundraiser event.
- St. Mary's Academy Partner — Participating school in the Change for Hope Campaign.
- Syracuse ATM Partner — Member of the ATMs for Good® program launched by Syracuse ATM.
- Syracuse Cougars Partner — Participated in joint hockey events to raise funds and awareness for Griffin's Guardians.
- The Law Offices of David S. Grasso Partner — Program sponsor of the 2026 Griffin's Guardians Hockey Tournament.
- Upstate Golisano Children's Hospital Partner — Collaborates to identify current needs of pediatric cancer patients and families.
+ 2 more
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Family-Centered Support Modelmethodology: family-centered_supportBy providing financial assistance, emotional support, and community engagement directly to families of pediatric cancer patients, the organization improves family resilience and well-being because holistic support reduces the non-medical burdens of childhood cancer.
- Grassroots Awareness and Engagement Campaignsmethodology: awareness_campaign_grassroots_growthBy modeling awareness efforts on large-scale public health campaigns and using community-driven activities (e.g., sports events, school programs), the organization increases public understanding and support for pediatric cancer because relatable, localized engagement fosters empathy and sustained participation.
- Hospital-Partnered Needs Assessmentmethodology: hospital-partnered needs assessmentBy partnering with a local children's hospital to assess and respond to real-time family needs, the organization ensures that its services are clinically relevant and timely because direct healthcare collaboration identifies emerging needs more accurately than assumptions.
- Patient-Inspired Advocacy and Research Fundingmethodology: patient-inspired advocacyBy channeling the stories and experiences of pediatric cancer patients into advocacy and targeted research funding, the organization accelerates progress against childhood cancer because emotionally resonant narratives motivate donor engagement and ensure research aligns with patient priorities.