named programs · 5 · from sources
What they call their work
Guest Pass Program
Offers meal vouchers, access to the Rejuvenation Room, and other services to families at Golisano Children’s Hospital
House Within The Hospital at URMC
Offers overnight accommodations within the University of Rochester Medical Center for families with children receiving care
House to Home
Supports families transitioning from hospital stays to home environments
Sleeping Rooms at Unity Hospital
Provides overnight accommodations at Unity Hospital for families with children receiving care
Westmoreland Ronald McDonald House
Provides overnight accommodations for families with children receiving medical care, located 12 miles from the hospital
activities · 3 groups
What they do
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Volunteer-Driven Residential Care Support 1 activity
- Engaging volunteers to support families of hospitalized childrenOrganizes volunteer opportunities for individuals and groups—including corporations, schools, and civic organizations—to support families through direct service and community-building activities, helping to create a nurturing environment during hospital stays.
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Recreational and Emotional Support Programs for Children with Serious Illnesses 1 activity
- Providing housing and support services for families of hospitalized childrenOffers free overnight accommodations and respite spaces to families with children up to age 21 receiving medical care at local healthcare facilities, including a house within URMC and sleeping rooms at Unity Hospital. Services include meals, laundry, peer and sibling support, and access to wellness resources.
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Direct Financial Assistance to Individuals 1 activity
- Quantifying and reporting financial impact to familiesTracks and reports the economic value of services provided, such as helping families save over $2.6 million in lodging and meal expenses, demonstrating the tangible financial relief offered through housing and support programs.
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financials · form 990 · fy2024
revenue
Total revenue$5.80M
Contributions & grants$5.19M90%
Program service revenue$145K3%
Investment income$470K8%
Other revenue$-10K
expenses
Total expenses$2.97M
Program expenses67%
Admin / overhead14%
Fundraising19%
Salaries & benefits$1.51M
Grants paid out$135K
Largest expense lineCompensation
balance sheet
Total assets$12.86M
Cash$834K
Investments$7.76M
Liabilities$308K
Net assets$12.55M
Liquid reserves34.7 mo
5 years on record · 2020–2024 · YoY revenue +163.4%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| JoAnne Ryan | President & CEO | 40 | $178K |
board members · 24
- Amanda L Della Sala — Director
- Amy Judson — Director
- Barb Ross — Director
- Carol Tegas — Director
- Chris Brodhead — Director
- Connor Dixon-Schwabl — Director
- Dave DeLaus — Vice Chair
- Dr Robin Cole — Director
- Elaine Avolio-Franca — Director
- Elizabeth Thorley — Treasurer
- Ellen Gallagher — Director
- Jennifer Tillou — Director
- Karen Simon — Director
- Katherine R Van Bramer — Director
- LeKeyah Wilson MD — Chair
- Lesli Myers-Small — Director
- Lisa Harris MD — Director
- Loralei L Thornburg MD — Director
- Louis Buono Jr — Director
- Mari Potter — Director
- Mark Cronin — Director
- Nancy O'Brien — Director
- Susan M Wylie — Director
- Tammy Snyder — Director
relationships · 10
Who they work with
- Civic organizations Partner — Civic organizations participate in volunteer opportunities to support families.
- Corporate groups Partner — Corporate groups participate in volunteer opportunities to support families.
- Dianne Clar Partner — Compliance Officer responsible for handling compliance-related matters
- Golisano Children’s Hospital Partner — Site of the Guest Pass Program, including meal vouchers and the Rejuvenation Room.
- Instagram Partner — Platform used for social media outreach and engagement
- LinkedIn Partner — Platform used for social media outreach and engagement
- Rochester area hospitals Partner — Collaborates with local hospitals to support families of children receiving medical care.
- School groups Partner — School groups participate in volunteer opportunities to support families.
- Unity Hospital Partner — Hosts the Sleeping Rooms at Unity Hospital for families of pediatric patients.
- University of Rochester Medical Center Partner — Hosts the Ronald McDonald House Within The Hospital at URMC for families of pediatric patients.
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Continuum of Care Modelmethodology: continuum of careBy providing a continuum of care that integrates lodging, meals, and emotional support, the organization removes barriers to healing and enables families to stay together during a child's medical treatment, thereby improving health outcomes because family presence and reduced stress support recovery.
- Family-Centered Support at No Costmethodology: family-centered_supportBy delivering all services free of charge, the organization reduces family stress and financial burden, enabling caregivers to focus fully on their child’s health and healing because removal of economic and logistical barriers enhances treatment engagement and emotional well-being.
- Referral-Based Access Aligned with Clinical Teamsmethodology: clinician-mediated_accessBy requiring referrals from medical professionals to access services, the organization ensures that support is integrated with clinical care pathways, improving timeliness and appropriateness of assistance because clinician-mediated access aligns psychosocial support with medical treatment needs.
- Volunteer-Enabled Compassionate Caremethodology: volunteer-supported_family_careBy engaging volunteers to deliver emotional and practical support, the organization extends the reach and human warmth of its services, enhancing family resilience during crisis because peer-like, compassionate presence complements clinical care and reduces isolation.