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MALECARE INC
NEW YORK, NY · EIN 134057382 · Form 990 · FY2025 · NTEE G193 · Voluntary Health Associations · Small ($100K-$1M) · malecare.org
revenue
$327K
expenses
$286K
net assets
$1.4M
employees
1
volunteers
12
program ratio
92%
mission · from form 990

TO PROMOTE THE BETTERMENT OF THE HEALTH, WELFARE, PSYCHOLOGICAL AND SOCIAL FUNCTIONING OF THE GENERAL PUBLIC, FOCUSING ON, BUT NOT LIMITED TO, MEN, THEIR FRIENDS AND FAMILIES.

profile · synthesized from sources

Malecare Inc is a nonprofit organization focused on supporting men's health, particularly those affected by prostate cancer and related conditions such as prostatitis and benign prostatic hyperplasia (BPH). The organization provides educational resources, support groups, and advocacy for men, their families, and friends, with an emphasis on psychological and social well-being. It operates primarily through online and community-based outreach in the United States.

named programs · 2 · from sources

What they call their work

Prostate Health Education
Provides comprehensive educational resources on prostate conditions including BPH, prostatitis, and prostate cancer, aimed at improving patient understanding and decision-making.
Support Groups
Facilitates peer-led support groups for men with prostate cancer and related conditions, offering emotional and psychological support through in-person and virtual meetings.
activities · 6 groups

What they do

  • Healthcare Policy Advocacy 2 activities
    • Advocating for federal funding and policy changes in prostate cancer
      Secured $25 million in consecutive federal funding allocations to the CDC’s prostate cancer programs through grassroots advocacy and promotes the PATHFINDER ACT and other tax-based incentives to increase clinical trial participation, especially among lower-income and underserved populations.
    • Advocating for male breast cancer research
      Conducts advocacy efforts to increase research attention and funding for male breast cancer, a historically underfunded area of oncology.
  • Cancer Research Funding 1 activity
    • Funding public-supported prostate cancer research via crowdfunding
      Created Start A Cure in 2013, the world’s first crowdfunding platform for cancer research, enabling the public to directly fund prostate cancer research projects.
  • Cancer Peer Support & Wellness Programs 1 activity
    • Operating national prostate cancer support groups
      Operates the largest national and global network of prostate cancer support groups, including in-person, online text-based, and Zoom-hosted groups, with specialized groups for gay and bisexual men and those with advanced prostate cancer to foster open discussion and peer support.
  • LGBTQ+ Community Support and Resource Centers 1 activity
    • Supporting LGBTQ+ cancer survivors through dedicated programming
      Founded and operates the National LGBT Cancer Project, the first national program supporting all LGBTQ+ cancer survivors, including launching the world’s first support groups for gay and bisexual men affected by prostate cancer.
  • Disease-Specific Clinical & Patient Education 1 activity
    • Supporting men with advanced prostate cancer
      Provides targeted education and psychosocial support to help men with advanced prostate cancer understand their condition, manage treatment, and collaborate with doctors to improve longevity and quality of life.
  • Uncategorized 6 activities
    • Conducting patient-centered prostate cancer research
      Leads and co-leads research initiatives including NCI-funded clinical trials, large-scale patient surveys on treatment side effects, sexual functioning, doctor-patient communication, and disparities by race, age, and sexual identity; has published 41 peer-reviewed papers and presented extensively at major conferences.
    • Delivering educational resources on prostate cancer
      Provides comprehensive educational materials on prostate anatomy, early-stage and advanced prostate cancer symptoms, inherited genetic risks, standard treatments (including active surveillance and radical prostatectomy), and non-cancerous conditions like BPH and prostatitis.
    • Distributing personalized prostate cancer news and educational content
      Compiles, personalizes, and distributes a weekly prostate cancer newsletter featuring 3 to 6 curated articles from leading cancer centers, journals, and conferences based on recipient engagement and interest.
    • Holding intellectual property for medical devices
      Received a U.S. patent in 2014 for a medical device that measures radiation exposure, marking the first time a prostate cancer nonprofit achieved this milestone.
    • Providing AI-powered patient education and support
      Developed and operates Cancer Copilot, a free AI chatbot and large language model that answers patient questions about cancer treatment, therapy, and disease management, providing real-time, accessible support.
    • Training prostate cancer survivors as community advocates
      Developed and implements the Patient Action Leaders model to train prostate cancer survivors in advocacy, mentorship, and community leadership roles since 2013.
financials · form 990 · fy2025
revenue
Total revenue$327K
Contributions & grants$327K100%
Program service revenue$00%
Investment income$00%
Other revenue$0
expenses
Total expenses$286K
Program expenses92%
Admin / overhead6%
Fundraising2%
Salaries & benefits$239K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$1.44M
Cash$1.44M
Investments$0
Liabilities$0
Net assets$1.44M
Liquid reserves60.3 mo
6 years on record · 2020–2025 · YoY revenue +715.6%
leadership · form 990 part vii · fy2025

Who runs it

paid leadership · 1
NameTitleHours/wkCompensation
DARRYL MITTELDORF EXECUTIVE DIRECTOR 55 $226K
board members · 3
  • BRUCE SHENITZ — CHAIR/TREASURER
  • KEITH SHEPARD — SECRETARY
  • VINCENT SANTILLO MD — VICE CHAIR
relationships · 10

Who they work with

  • American Cancer Society Cancer Action Network Partner — Collaborates with or aligns advocacy efforts around removing financial barriers to clinical trial participation.
  • Black Prostate Cancer Alliance Partner — Collaborates on addressing prostate cancer disparities affecting Black men.
  • CANCER MATCH Partner — Partners with CANCER MATCH to connect prostate cancer patients who live alone with dating, discussion, and support opportunities.
  • CDC Government — Advocated successfully for increased federal funding to the CDC’s prostate cancer programs.
  • Global Prostate Cancer Alliance Coalition — Malecare formed and collaborates through the Global Prostate Cancer Alliance to unite prostate cancer organizations worldwide.
  • National Cancer Institute Government — Funded the Restore Study and awarded multiple research grants to Malecare for prostate cancer research.
  • National Institutes of Health Government — Awarded major research funding grants to Malecare for prostate cancer research initiatives.
  • National LGBT Cancer Project Partner — Organization founded by Malecare to serve LGBTQ cancer patients.
  • Novartis Partner — Partnered with Malecare on initiatives addressing prostate cancer disparities.
  • University of Minnesota Partner — Collaborated with Malecare on the NCI-funded Restore Study investigating the impact of prostate cancer treatment on gay and bisexual men's sexual functioning and relationships.
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Behavioral Economics to Increase Clinical Trial Participation
    methodology: behavioral_economics_incentives
    By applying financial incentives and tax-based nudges, we reduce economic and psychological barriers to clinical trial enrollment, particularly for lower-income patients, because small structural incentives can shift behavior at scale.
  • Integrated Quality-of-Life Decision-Making
    methodology: quality_of_life_integrated_care
    By prioritizing both cancer control and quality of life in treatment discussions, we support individualized care decisions, because aligning medical choices with personal values improves psychological well-being and long-term adherence.
  • Patient Empowerment through Education and Self-Advocacy
    methodology: patient_education_for_self_advocacy
    By educating patients about their condition and treatment options in accessible ways, we enable informed decision-making and self-advocacy, because understanding leads to greater engagement in care and better health outcomes.
  • Peer-Powered Patient Activation and Support
    methodology: peer_paced_activation
    By fostering peer-to-peer support groups and leadership development, we increase patient activation and psychological resilience, because shared lived experience builds trust, reduces isolation, and normalizes help-seeking behavior among men.
  • Personalized, Technology-Enabled Care and Communication
    methodology: technology_enabled_personalization
    By leveraging AI chatbots, virtual support, and data-driven content personalization, we improve access and relevance of support, because adaptive, on-demand tools meet patients where they are—geographically, emotionally, and technologically.