irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $1.71MBEYOND OUR CONFERENCE, OCRA HAS ADDITIONAL PATIENT EDUCATION AND SUPPORT PROGRAMS AND ENGAGES IN ADVOCACY ON BEHALF OF WOMEN WITH GYNECOLOGIC CANCERS. OUR WEBSITE IS A COMPREHENSIVE SOURCE OF EDUCATIONAL INFORMATION, AND THROUGHOUT THE COURSE OF THE YEAR WE HOLD A SERIES OF FREE, EDUCATIONAL WEBINARS ON A RANGE OF TOPICS RELATED TO THE LATEST RESEARCH, TREATMENT, AND SURVIVORSHIP.OCRA OFFERS FREE GENETIC TESTING TO QUALIFIED HIGH RISK INDIVIDUALS AND FACILITATES ACCESS TO CERTIFIED GENETIC COUNSELORS. SINCE THE LAUNCH OF THE PROGRAM, OCRA HAS HELPED OVER 3,000 PEOPLE LEARN ABOUT THEIR GENETIC RISK FOR GYNECOLOGIC CANCER. OCRA'S PATIENT-SUPPORT LINE IS STAFFED BY OUR SOCIAL WORK TEAM DURING BUSINESS HOURS MONDAY THROUGH FRIDAY AND IS AVAILABLE TO ANYONE SEEKING INFORMATION, SUPPORT, PATIENT NAVIGATION, OR RESOURCE REFERRALS (MEDICAL ADVICE IS NOT PROVIDED). OUR WOMAN TO WOMAN PROGRAM IS A PEER-TO-PEER SUPPORT PROGRAM FOR WOMEN WITH GYNECOLOGIC CANCER. OCRA OFFERS BOTH A NATIONAL WOMAN TO WOMAN PROGRAM AND PROVIDES FINANCIAL SUPPORT TO HELP HOSPITALS AND OTHER ORGANIZATIONS START LOCAL WOMAN TO WOMAN PROGRAMS, WHICH ARE NOW AT MORE THAN 19 SITES ACROSS THE COUNTRY. OUR STAYING CONNECTED SUPPORT SERIES, WHICH LAUNCHED IN 2020, NOW OFFERS FOUR WEEKLY WORKSHOPS AND THREE MONTHLY WORKSHOPS WHICH PROVIDE ALL IMPACTED BY OVARIAN OR RELATED GYNECOLOGIC CANCERS A WAY TO LEARN, SHARE, AND CONNECT. OUR ARTS PROGRAM-EXPRESS YOURSELF AND BOOK CLUB- OFFERS A COMBINATION OF THERAPEUTIC ARTS, POETRY, READING AND CREATIVE EXPRESSION, AND COMMUNITY BUILDING ACTIVITIES WITH 1865 REGISTERED IN 2024. OCRA PARTNERS WITH INSPIRE.COM TO OFFER AN ONLINE SUPPORT COMMUNITY THAT HAS OVER 85,000 MEMBERS WORLD-WIDE.OCRA IS COMMITTED TO ENCOURAGING THE NEXT GENERATION OF HEALTHCARE PROFESSIONALS TO FOCUS ON THE CRITICAL NEEDS OF THOSE DIAGNOSED WITH GYNECOLOGIC CANCER, WHETHER AT BENCH OR BEDSIDE.THROUGH OCRA'S ONCOLOGY SOCIAL WORK FIELD PLACEMENT, WE ACCEPT TOP MASTER OF SOCIAL WORK CANDIDATES TO TRAIN WITH OUR LICENSED CLINICAL SOCIAL WORKERS TO ADDRESS THE SPECIFIC NEEDS OF OUR COMMUNITY.OCRA'S SURVIVORS TEACHING STUDENTS (STS) PROGRAM TRAINS OVARIAN CANCER SURVIVORS AND CAREGIVERS TO CONDUCT PRESENTATIONS IN MEDICAL EDUCATION PROGRAMS TO EDUCATE FUTURE HEALTHCARE PROVIDERS ABOUT OVARIAN CANCER. SURVIVORS SHARE THEIR STORIES OF DIAGNOSIS, TREATMENT AND BEYOND, ALONG WITH FACTS ABOUT THE DISEASE. IN 2024, MORE THAN 980 SURVIVOR VOLUNTEERS DELIVERED 439 PRESENTATIONS IN THE US, UK, AND AUSTRALIA REACHING OVER 10,000 MEDICAL, NURSING, AND PHYSICIAN'S ASSISTANT STUDENTS. THESE PRESENTATIONS ENSURE THE NEXT GENERATION OF HEALTH CARE PROVIDERS UNDERSTAND BASIC FACTS ABOUT THE DISEASE, ARE AWARE OF RISK FACTORS, AND CAN IDENTIFY THE SIGNS AND SYMPTOMS OF OVARIAN CANCER, HELPING ENSURE A TIMELY DIAGNOSIS.OVARIAN CANCER RESEARCH ALLIANCE IS A POWERFUL VOICE ON CAPITOL HILL, IN STATEHOUSES AROUND THE COUNTRY AND WITH FEDERAL AGENCIES FOR EVERYONE TOUCHED BY GYNECOLOGIC CANCER. EACH YEAR OCRA PLAYS A CRITICAL ROLE IN HELPING TO SECURE MORE THAN $200 MILLION IN FEDERAL FUNDING FOR OVARIAN CANCER RESEARCH AND EDUCATION. IN ADDITION, OUR GROWING ADVOCATE LEADER PROGRAM TRAINS MEMBERS OF THE GYNECOLOGIC CANCER COMMUNITY TO RAISE AWARENESS THROUGH NEWS ARTICLES AND OUTREACH, DEVELOP RELATIONSHIPS WITH THEIR ELECTED OFFICIALS, AND FIGHT FOR INCREASED FUNDING FOR GYNECOLOGIC CANCER RESEARCH THROUGHOUT THE COUNTRY.
- #2 $983KEACH YEAR, OCRA BRINGS TOGETHER OVARIAN CANCER PATIENTS, SURVIVORS AND CAREGIVERS AT THE INTERNATIONAL GYNECOLOGIC CANCER CONFERENCE, A THREE DAY-LONG EVENT FILLED WITH INFORMATIONAL SESSIONS FEATURING EXPERT SPEAKERS, FUN AND COMMUNITY. IN 2024, MORE THAN 600 PEOPLE FROM ALL 50 STATES AND 14 COUNTRIES CAME TOGETHER VIRTUALLY FOR THIS EVENT. THE SPIRIT OF UNITY AND HOPE IS ALWAYS STRONG AND ATTENDEES CAN LEARN MORE ABOUT THEIR DIAGNOSIS, TREATMENT, AND SURVIVORSHIP. SESSIONS FEATURE TOP OVARIAN AND GYNECOLOGIC CANCER EXPERTS WHO GENEROUSLY GIVE OF THEIR TIME, PRESENTING THE LATEST IN TREATMENTS, RESEARCH, MANAGING RECURRENCE, GENETICS, NUTRITION, CARETAKER AND SUPPORTER CARE, SUPPORT FOR YOUNG WOMEN, ADVOCACY, AND SO MUCH MORE.
named programs · 6 · from sources
What they call their work
Clinical Trial Navigator
Tool that helps patients find clinical trials in the U.S. and Canada matched to their diagnosis, treatment history, and location
International Gynecologic Cancer Conference
Annual free, online conference offering educational programming for ovarian, endometrial, cervical, and rare gynecologic cancers with expert panels
OCRA’s Living Lab
Secure patient registry where individuals with ovarian or uterine cancer contribute medical history and lived experience to accelerate research
Ovarian Cancer Observatory
Research initiative that convenes experts in a think tank format to advance prevention strategies for ovarian cancer
Partners in Science
Enables donors to sponsor specific scientists or research projects, receiving updates on progress and breakthroughs
Staying Connected Support Series
Weekly virtual support groups for patients, survivors, and caregivers, including specialized sessions for endometrial cancer, young adults, and families
activities · 5 groups
What they do
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Healthcare Policy Advocacy 1 activity
- Advocate for federal funding and policy supportConducts advocacy efforts that have contributed to securing over $3.8 billion in federal funding for ovarian and gynecologic cancer research, care, and education.
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Cancer Peer Support & Wellness Programs 1 activity
- Deliver direct support and education programsProvides free, accessible support and educational programming to over 140,000 individuals annually, including peer mentoring, one-on-one counseling, support groups, and educational workshops on treatment updates and clinical trials.
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Cancer Research Funding 1 activity
- Fund and advance ovarian and gynecologic cancer researchInvests in cutting-edge scientific research to improve treatments and outcomes, with over $140 million raised and invested to date. Supports international collaboration through initiatives like the Global Ovarian Cancer Research Consortium and operates research infrastructure such as the Living Lab patient registry and Discovery Lab for real-time global data sharing.
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Scientific Conference & Symposium Management 1 activity
- Host the International Gynecologic Cancer ConferenceOrganizes an annual free, online conference open to all, featuring expert sessions on ovarian, endometrial, cervical, and rare gynecologic cancers, serving nearly 500 registrants globally.
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Uncategorized 2 activities
- Operate the Living Lab patient registryRuns a secure patient-driven registry that collects medical history and lived experiences from individuals with ovarian or uterine cancer, creating a large dataset to accelerate research and improve understanding of the disease.
- Provide free genetic testing and risk assessmentOffers a free genetic testing program to help individuals understand their personal risk for ovarian cancer, particularly related to BRCA1 and BRCA2 mutations.
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financials · form 990 · fy2024
revenue
Total revenue$10.05M
Contributions & grants$8.54M85%
Program service revenue$301K3%
Investment income$1.22M12%
Other revenue$-11K
expenses
Total expenses$13.56M
Program expenses73%
Admin / overhead16%
Fundraising11%
Salaries & benefits$2.89M
Grants paid out$6.43M
Largest expense lineCompensation
balance sheet
Total assets$38.07M
Cash$3.16M
Investments$33.03M
Liabilities$14.91M
Net assets$23.16M
Liquid reserves32.0 mo
3 years on record · 2020–2024 · YoY revenue -25.3%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 8
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| AUDRA L MORAN | PRESIDENT & CEO | 40 | $358K |
| JONATHAN ZEIDMAN | CHIEF DEVELOPMENT OFFICER | 40 | $242K |
| SARAH C DEFEO | CHIEF PROGRAM OFFICER | 40 | $234K |
| TRACY MOORE | VICE PRESIDENT, SUPPORT & EDUCATION | 40 | $185K |
| NICOLE WARGO | VP - PHILANTHROPIC PARTNER | 40 | $162K |
| CHAD RAMSEY | VICE PRESIDENT, POLICY | 40 | $149K |
| JESSICA HUGHSON ANDRADE | SENIOR DIRECTOR, STRATEGIC ALLIANCE | 40 | $132K |
| BRIAN PHAIR | DIRECTOR, DONOR RELATIONS | 40 | $107K |
board members · 17
- ANDREW FEUERSTEIN ESQ — DIRECTOR
- CAROL J HAMILTON — DIRECTOR
- CAROLINE HIRSCH — DIRECTOR
- CHRIS NEWCOMB — DIRECTOR
- CHRISTOPHER TILBERIS — DIRECTOR
- DANA L MARK ESQ — DIRECTOR
- DEBRA BIRNBAUM — DIRECTOR
- DR CARMEL J COHEN — DIRECTOR
- ELLE SIMONE SCOTT — DIRECTOR
- JEANNETTE CHANG — DIRECTOR
- JOHN ORRICO — CHAIR
- JOHN W HANSBURY ESQ — DIRECTOR
- LISA SCHREIBER — DIRECTOR
- MARK TESSAR — TREASURER
- MATTHEW NEAL MILLER — VICE PRESIDENT
- MEI-LI DA SILVA VINT ESQ — DIRECTOR
- ROBIN S COHEN — SECRETARY
relationships · 16
Who they work with
- Amazon Web Services Partner — Provides technical infrastructure for the Discovery Lab, enabling real-time global data sharing among researchers.
- American Society of Clinical Oncology Partner — Shares treatment advances from its annual meeting in OCRA's educational webinar.
- BBB Wise Giving Alliance Government — OCRA has earned the highest ratings from BBB Wise Giving Alliance.
- Capitol Hill Government — Advocates on Capitol Hill to improve research, education, drug and diagnostic safety, and access to quality care for ovarian and gynecologic cancer patients.
- Charity Navigator Government — OCRA has earned the highest ratings from Charity Navigator.
- European Society for Medical Oncology Partner — Shares treatment advances from its gynecological cancers congress in OCRA's educational webinar.
- GuideStar Government — OCRA has earned the highest ratings from GuideStar.
- Industry partners Partner — Corporate entities that provide financial support without influencing OCRA's research or advocacy agenda.
- NCCN Partner — Collaborates on the development and dissemination of patient guidelines for uterine cancer, which OCRA sponsors.
- National Cancer Institute Government — Source of cancer statistics used to inform OCRA's public education and advocacy efforts.
- Ovarian Cancer Observatory Partner — Collaborates with OCRA on research initiatives, including convening forums on preventing ovarian cancer.
- Ovarian Cancer Observatory Partner — Funded by OCRA to accelerate research into the prevention of ovarian cancer.
- Ovarian Cancer Observatory Partner — Funded by OCRA to convene experts and advance research on preventing ovarian cancer.
- Ovarian Cancer Observatory Partner — OCRA funds the Ovarian Cancer Observatory through grants to support research on preventing ovarian cancer.
- Ovarian Cancer Observatory Partner — Ovarian Cancer Research Alliance funds the Ovarian Cancer Observatory through a grant and includes it as part of its research initiatives.
- Society of Gynecologic Oncology Partner — Shares treatment advances from its annual meeting in OCRA's educational webinar.
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Comprehensive, Family-Inclusive Support Modelmethodology: family_inclusive_supportBy designing support programs that include patients, caregivers, and chosen families, the organization improves psychosocial outcomes because inclusive care models address the full social ecosystem of illness, enhancing resilience and reducing isolation.
- Global Collaborative Research Ecosystemmethodology: international_research_collaborationBy building international research consortia and AI-powered data-sharing platforms, the organization accelerates discovery because pooling global expertise, data, and infrastructure enables scalable, real-time advances in ovarian cancer research.
- Independent Research Governancemethodology: independent_agendaBy maintaining organizational independence from corporate funders, the organization ensures research integrity and advocacy authenticity because freedom from external influence allows agenda-setting based on patient and scientific need rather than commercial interest.
- Patient-Driven Research Accelerationmethodology: patient_driven_researchBy integrating patient-reported data and experiences into research through platforms like the Living Lab and Discovery Lab, the organization accelerates gynecologic cancer research because real-world patient input enables faster, more relevant scientific discovery.
- Prevention-Through-Targeted Research Strategymethodology: prevention_focused_researchBy funding expert-convened, grant-driven research focused on prevention, the organization advances ovarian cancer prevention because structured collaboration among scientists identifies high-impact gaps and accelerates actionable strategies.