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CARCINOID CANCER FOUNDATION
MOUNT KISCO, NY · EIN 136277875 · Form 990 · FY2024 · NTEE H30Z · Medical Research · Small ($100K-$1M) · carcinoid.org
revenue
$253K
expenses
$362K
net assets
$590K
employees
2
program ratio
50%
mission · from form 990

ORGANIZATION MISSION: TO PROVIDE EDUCATION AND AWARENESS INFORMATION TO PATIENTS AND FAMILIES OF PATIENTS IMPACTED BY CARCINOID AND NEUROENDOCRINE TUMORS, AS WELL AS TO SERVE AS ADVOCATES THROUGHOUT THE COMMUNITY CONNECTING PHYSICIANS, CAREGIVERS, PATIENTS, FAMILIES OF PATIENTS AND THOSE ORGANIZATIONS SERVING THE COMMUNITY WITH DIAGNOSTIC TOOLS AND METHODS AS WELL AS THOSE PROVIDING TREATMENT.

profile · synthesized from sources

The Neuroendocrine Cancer Foundation (NCF) supports patients, caregivers, and clinicians affected by neuroendocrine cancer through education, community connection, and access to resources. It provides educational content, virtual events, clinical trial information, and peer support to help patients navigate diagnosis and treatment. The organization focuses on increasing awareness and reducing isolation for those impacted by this rare disease.

irs program accomplishments · form 990 part iii · fy2021

What they reported doing

  1. #1 primary $0
    ENCOURAGES AND SUPPORTS RESEARCH IN THE AREA OF CARCINOID AND NEUROENDOCRINE TUMORS.
named programs · 3 · from sources

What they call their work

Clinical Trials Information Portal
Online hub featuring videos and educational materials about clinical trials for neuroendocrine tumors
NET VITALS
Resource document offering critical information for newly diagnosed neuroendocrine cancer patients
Virtual Monthly Webinar Series
Online educational events providing updates and expert insights for neuroendocrine cancer patients and caregivers
activities · 2 groups

What they do

  • Disease-Specific Clinical & Patient Education 2 activities
    • Hosting educational webinars and virtual events
      Organizes monthly virtual webinars and other educational events to engage and inform neuroendocrine cancer patients about current topics in care and research.
    • Providing educational resources for neuroendocrine cancer patients and caregivers
      Offers comprehensive information on diagnosis, treatment options, and research for patients and caregivers, including over 550 educational videos and the NET VITALS guide for newly diagnosed individuals.
  • Cancer Research Funding 1 activity
    • Supporting research on carcinoid and neuroendocrine tumors
      Encourages and funds research initiatives focused on carcinoid and neuroendocrine tumors, advancing scientific understanding and treatment development.
financials · form 990 · fy2024
revenue
Total revenue$253K
Contributions & grants$259K102%
Program service revenue$00%
Investment income$-5K-2%
Other revenue$0
expenses
Total expenses$362K
Program expenses50%
Admin / overhead41%
Fundraising9%
Salaries & benefits$219K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$597K
Cash$592K
Investments$0
Liabilities$8K
Net assets$590K
Liquid reserves19.6 mo
5 years on record · 2020–2024 · YoY revenue +28.3%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 1
NameTitleHours/wkCompensation
KEITH WARNER CEO/CHAIRMAN/TREASURER 40 $125K
board members · 2
  • BRIAN THEDE — DIR/BOARD MEMBER
  • STEVEN MUELLER — DIRECTOR/BOARD MEMBE
relationships · 1

Who they work with

  • NET VITALS Partner — Collaborates on the development and distribution of the NET VITALS document for patient education.
strategies · 1

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Education and Community Connection as Care Accelerants
    methodology: education_connection_support
    By providing credible disease-specific education and fostering peer and expert connections, the foundation improves patient access to diagnostics and treatment, because informed and supported patients are better equipped to navigate complex care pathways and advocate for timely interventions.