named programs · 5 · from sources
What they call their work
Annual Sarcoma Strong Gala
Formal fundraising dinner event held in Upstate New York to support the organization’s mission and research funding
REACH Program
Initiative to educate medical students on the soft skills of patient care and physician empathy, with plans to seek grant funding for national expansion
Sarcoma Strong 5K Run/Walk
Annual global 5K event held in multiple U.S. cities and virtually to raise awareness and funds for sarcoma research; includes in-person and virtual participation options
Sarcoma Strong Research Grant
Collaborative grant program with the Musculoskeletal Tumor Society funding sarcoma research, including $100,000 recurring grants and $25,000 mentorship grants for clinician scientists
SarcomaStrong Service Learning Program
Medical student program at Albany Medical College that educates future physicians on sarcoma and supports patient outreach and awareness initiatives
activities · 5 groups
What they do
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Academic Medical Training Support 1 activity
- Expands medical education through service learning programsPartners with Albany Medical College to expand a service learning program that trains medical students to raise sarcoma awareness and educate future physicians, growing from ten to thirteen participating students.
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Cancer Research Funding 1 activity
- Funds sarcoma research through grantmakingAwards grants for sarcoma research using funds raised from events and sponsorships, including a $100,000 grant to the Musculoskeletal Tumor Society and support for individual research projects such as Dr. Bang Hoang’s osteosarcoma study. Has raised over $1 million cumulatively for sarcoma research.
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Charity Event Organization 1 activity
- Hosts annual Sarcoma Strong 5K Run/Walk eventsOrganizes an annual in-person 5K run/walk event, primarily held at Saratoga Spa State Park in New York, and offers virtual participation options. The event brings together patients, families, and supporters globally, with satellite events organized across the U.S., drawing hundreds to thousands of participants annually.
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Disease-Specific Clinical & Patient Education 1 activity
- Provides educational resources for patients and healthcare providersDistributes patient-focused materials on various sarcoma types (including osteosarcoma, Ewing’s sarcoma, and soft tissue sarcomas), early detection guides for primary care workers, NCCN guidelines, and support resources for parents of children with cancer.
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Community Recovery Awareness Events 1 activity
- Supports community engagement and awareness-building eventsHosts an annual gala at Glen Sanders Mansion and previously organized a sarcoma awareness picnic to foster community among patients, families, and friends outside clinical environments.
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financials · form 990 · fy2024
revenue
Total revenue$217K
Contributions & grants$257K119%
Program service revenue$00%
Investment income$8K4%
Other revenue$-48K
expenses
Total expenses$174K
Program expenses96%
Admin / overhead4%
Fundraising0%
Salaries & benefits$0
Grants paid out$168K
Largest expense lineProfessional Fees
balance sheet
Total assets$207K
Cash$207K
Investments$0
Liabilities$0
Net assets$207K
Liquid reserves14.3 mo
2 years on record · 2023–2024 · YoY revenue +21.4%
leadership · form 990 part vii · fy2024
Who runs it
board members · 7
- AIDAN O'BRIEN — BOARD MEMBER
- BENJAMIN VILLACRES — BOARD MEMBER
- BLAIR L DICAPRIO — BOARD MEMBER
- BRADFORD PALMER — BOARD MEMBER
- MARIA CONNALLY — BOARD MEMBER
- MICHAEL HARRINGTON — BOARD MEMBER
- ZACHARY NYLUND — BOARD MEMBER
relationships · 24
Who they work with
- Albany Medical Center Partner — Health system that published stories about patients involved with Sarcoma Strong and collaborated on awareness efforts.
- Albany Medical College Partner — Hosts the SarcomaStrong service learning program for medical students to increase sarcoma awareness and education.
- Cancer net: Sarcoma Page Partner — Listed as a helpful link for sarcoma information.
- Children’s Oncology Group Partner — Listed as a helpful link for pediatric cancer resources.
- Clinical Trials Partner — Listed as a helpful link to support access to clinical trials.
- Connective Tissue Oncology Group Partner — Listed as a helpful link for sarcoma-related resources.
- Liddy Shriver Sarcoma Initiative Partner — Funds raised from the inaugural Sarcoma 5k Run/Walk in 2014 supported research through this organization.
- Liddy Shriver Sarcoma Initiative Partner — Listed as a helpful link for sarcoma education and awareness.
- Make It Better Agents Partner — Listed as a helpful link for sarcoma patient support.
- Musculoskeletal Tumor Society Partner — Collaborated with MSTS to establish the Sarcoma Strong/MSTS Research Grant, focusing on funding sarcoma research.
- Musculoskeletal Tumor Society Partner — Collaborates with MSTS to fund sarcoma research grants.
- Musculoskeletal Tumor Society Partner — Collaborates with Sarcoma Strong to fund sarcoma research grants and co-sponsor research initiatives.
- Musculoskeletal Tumor Society Partner — Listed as a helpful link for sarcoma-related resources.
- National Cancer Institute Partner — Provides patient information on Ewing's sarcoma and is listed as a helpful link.
- Saratoga Spa State Park Partner — Host site for the in-person Sarcoma Strong 5K Run/Walk event.
- Saratoga Spa State Park Partner — Hosts the in-person Sarcoma Strong 5k run/walk event.
- Sarcoma Alliance Partner — Listed as a helpful link for sarcoma-related resources.
- Sarcoma Foundation of America Partner — Listed as a helpful link for sarcoma-related resources.
- Spectrum News Partner — Media partner that covered stories about Sarcoma Strong participants and events.
- St. Baldrick's foundation Partner — Listed as a helpful link for childhood cancer support and research.
- Times Union Partner — Media partner that featured coverage of the annual Sarcoma Strong Gala.
- UCSF Mission Bay Hospital Partner — Hosts the in-person event in San Francisco, CA.
- WNYT Channel 13 Partner — Collaborated on a media interview to share a patient story.
- WNYT Channel 13 Partner — Local media partner that covered the Sarcoma Strong 5K event.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Community-Driven Engagement and Fundraisingmethodology: community_engagementBy combining storytelling, survivor participation, and accessible hybrid events (in-person and virtual), the organization builds a global community that fosters emotional healing and drives sustained funding for research because shared lived experiences increase empathy, retention, and donor motivation.
- Journey-Based Patient Supportmethodology: comprehensive_patient_journey_supportBy providing continuous, tailored support throughout the sarcoma patient journey—from diagnosis through treatment and beyond—the organization improves care navigation and outcomes because sustained engagement addresses evolving needs at critical stages.
- Mentorship and Sustained Research Investmentmethodology: mentorship-and-recurring-grant-modelBy funding both early-career clinician scientists through mentorship grants and experienced researchers through recurring grants, the organization accelerates sarcoma research advancement because it simultaneously cultivates new expertise and maintains continuity in high-impact projects.