named programs · 2 · from sources
What they call their work
Annual Golf Outing
Major fundraising event that has generated over $385,000 in seven years to support research and family assistance programs
Family Support Program
Provides financial and emotional support to local families affected by childhood brain cancer to alleviate burdens associated with diagnosis and treatment
activities · 3 groups
What they do
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Charity Golf Tournament Fundraiser 1 activity
- Organizes fundraising events to support research and family servicesHosts annual fundraising events, including a golf tournament initiated in 2017, which raised $85,000 in 2025 and over $385,000 cumulatively over seven years to support research and family support programs.
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Cancer Patient Financial and Practical Support 1 activity
- Provides direct support to families affected by childhood brain cancerOffers financial and emotional support to families in the Western New York community affected by childhood brain cancer, addressing needs arising from diagnosis and treatment.
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Cancer Research Funding 1 activity
- Supports pediatric brain cancer and ependymoma researchFunds and supports research initiatives focused on pediatric brain cancer and ependymoma, contributing to scientific advancement in the field.
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financials · form 990EZ · fy2025
revenue
Total revenue$88K
Contributions & grants$10K11%
Program service revenue$00%
Investment income$00%
Other revenue—
expenses
Total expenses$89K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out$85K
balance sheet
Total assets$3K
Cash—
Investments—
Liabilities—
Net assets$3K
4 years on record · 2022–2025 · YoY revenue +23.2%
relationships · 5
Who they work with
- CERN Foundation Partner — Co-recipient of recognition and partner in awarding CBCRC the 1st Annual Community Award.
- DeLotto family Partner — Family whose experience inspired the organization and with whom there is an ongoing relationship.
- Jonathan McGrath Partner — Development Director and father of a child lost to pediatric brain cancer, engaged in partnership to advance the organization's mission.
- National Brain Tumor Society Partner — Partner organization that recognized CBCRC with a Community Award and participated in CBCRC events.
- P.U.N.T. Pediatric Cancer Collaborative Partner — Partner organization whose representatives spoke at CBCRC's annual golf outing.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Collaborative Research Accelerationmethodology: collaborative_partnershipBy partnering with aligned organizations, the organization amplifies its impact on pediatric brain cancer research and support, because collaboration reduces duplication, pools resources, and increases collective influence beyond what any single entity can achieve.
- Community-Driven Giving Cyclemethodology: community_driven_givingBy engaging families who have received support as donors, the organization sustains funding and engagement, because those directly impacted are more likely to contribute when invited into a reciprocal relationship of care and continuity.
- Family-Driven Advocacy and Research Fundingmethodology: family_driven_advocacyBy leveraging personal experience with pediatric brain cancer, the organization generates awareness and secures research funding, because lived experience creates authentic advocacy that mobilizes community support and drives investment in treatments.