irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $36.27MWAIVER SERVICES - OFFERS CHOICES FOR INDIVIDUALIZED TREATMENT AND TRAINING TO PEOPLE WITH DEFICITS IN SELF CARE AND DOMESTIC AND INDEPENDENT LIVING SKILLS. SOME OF THESE SERVICES ARE: 1. COMMUNITY HABILITATION: AN IN-HOME TRAINER HELPS THE INDIVIDUAL IN THE PRIVACY OF HIS/HER OWN HOME AND COMMUNITY TO ACQUIRE AND IMPROVE SKILLS IN MANY AREAS. 2. DAY HABILITATION: DAY PROGRAMMING WHICH OFFERS TRAINING IN SELF-CARE, DOMESTIC, TRAVEL AND INDEPENDENT LIVINGSKILLS. IT PROVIDES A UNIQUE OPPORTUNITY TO ACQUIRE SKILLS IN ACTUAL COMMUNITY SITES. 3. WAIVER RESPITE: WAIVER AFTER-SCHOOL RESPITE PROGRAMMING OFFERS RECREATION SERVICES TO STUDENTS, CHILDREN AND ADULTS WITH DEVELPMENT DISABILITIES; AGES 14-21 AND OVER. IT USES THE COMBINATION OF SPECIALTY INSTRUCTORS AND COMMUNITY-BASED RECREATION, ACCESS TOP RECREATIONAL ACTIVITIES IN THE COMMUNITY THROUGH THE USE OF TECHNOLOGY TO ENABLE THEM TO ENJOY LEISURE TIME PARALLEL TO THEIR NON-DISABLED PEERS.
- #2 $1.44MARTICLE 16 CLINIC-DESIGNED TO MEET THE SPECIFIC CLINICAL NEEDS OF DEVELOPMENTALLY DISABLED INDIVIDUALS AND TO HELP SUSTAIN THEM IN THEIR COMMUNITIES. THE CLINIC PROVIDES PERSONAL ASSESSMENT AND TREATMENT BY PROFESSIONAL, FULLY-ACCREDITED PRACTITIONERS. SOME OF THE SERVICES CURRENTLY PROVIDED INCLUDE: PSYCHOLOGICAL COUNSELING REHABILITATION COUNSELING, OCCUPATIONAL THERAPY, NUTRITION, SEXUALITY COUNSELING, MEDICAL EXAMINATIONS AND PSYCHIATRY.
named programs · 5 · from sources
What they call their work
Adult Respite
Temporary support program for adults aged 21 and older with developmental disabilities, providing caregivers relief while participants engage in social, recreational, and community activities.
After School Respite Program
Recreational and social support program for students aged 14–21 with developmental disabilities, offered Monday through Thursday in the Bronx and Manhattan following the school calendar.
Article 16 Clinic
Clinical services program providing psychological counseling, occupational therapy, nutrition, psychiatry, and medical examinations tailored to individuals with developmental disabilities.
Community Habilitation
An in-home training program that helps individuals with intellectual and developmental disabilities acquire and improve skills in self-care, domestic tasks, and independent living within their own homes and communities.
Day Habilitation
Day programming that offers training in self-care, domestic skills, travel, and independent living, with opportunities to practice skills in actual community settings.
activities · 9 groups
What they do
-
Residential Support for Developmental Disabilities 2 activities
- Operate certified service sites for individuals with developmental disabilitiesOperates 135 certified service sites across 7 counties in New York, providing community-based services to support individuals with intellectual and developmental disabilities.
- Provide in-home skills training for independent livingProvides in-home training to individuals with intellectual and developmental disabilities to improve self-care, domestic, and independent living skills within their own homes and communities.
-
-
Disability Rights Advocacy & Self-Advocacy Empowerment 1 activity
- Advocate for individuals with intellectual and developmental disabilitiesParticipates in major professional and regional advocacy groups to advance the welfare and rights of individuals with intellectual and developmental disabilities.
-
-
Outpatient Mental Health Clinic Services 1 activity
- Deliver clinical services through an Article 16 clinicOperates an Article 16 clinic that provides clinical assessment and treatment services including psychological counseling, occupational therapy, medical examinations, psychiatry, and nutrition counseling to support community integration for individuals with developmental disabilities.
-
-
Day Habilitation Services 1 activity
- Deliver day programming for skill development in community settingsOffers day programming that helps individuals with intellectual and developmental disabilities develop self-care, domestic, travel, and independent living skills through hands-on experiences in real-world community environments.
-
-
Fundraising and Financial Support for IDD Services 1 activity
- Fund programs serving individuals with developmental disabilitiesProvides financial support to Lifespire Inc. for programs and services benefiting 1,500 New Yorkers with intellectual and developmental disabilities in New York City.
-
-
Respite Care for Developmental Disabilities 1 activity
- Operate After School Respite Program for youth and adults with disabilitiesRuns an After School Respite Program for students aged 14–21 and an Adult Respite program for those aged 21+, offering social, recreational, and academic activities to promote independence and provide caregiver relief.
-
-
Medicaid Health Home Care Coordination 1 activity
- Provide care coordination for Medicaid waiver enrolleesDelivers plan of care support services for individuals enrolled in the home and community-based services waiver who have opted out of Medicaid service coordination.
-
-
Supported Employment for Developmental Disabilities 1 activity
- Provide prevocational training for integrated employmentOffers prevocational day programming that engages individuals with limited work-related skills in meaningful tasks aligned with their interests to enhance their ability to achieve integrated employment.
-
-
Professional Certification and Continuing Education 1 activity
- Provide staff training and professional developmentOffers comprehensive staff training programs including AMAP, SCIP-R, OPWDD-mandated training, and Driver Safety, delivered through online (RELIAS LMS), virtual, and in-person formats to support professional growth.
-
financials · form 990 · fy2024
revenue
Total revenue$110.67M
Contributions & grants$2.84M3%
Program service revenue$106.92M97%
Investment income$900K1%
Other revenue$3K
expenses
Total expenses$104.32M
Program expenses92%
Admin / overhead8%
Fundraising0%
Salaries & benefits$51.68M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$166.16M
Cash$57.15M
Investments$492K
Liabilities$88.34M
Net assets$77.82M
Liquid reserves6.6 mo
6 years on record · 2019–2024 · YoY revenue +7.8%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 8
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| THOMAS LYDON | PRESIDENT/CEO | 35 | $362K |
| EMILIO BONILLA | CHIEF FINANCIAL OFFICER | 35 | $279K |
| PETER VALVO | VP FOR IT | 48 | $206K |
| JAMES NORMANDY | VP FOR DAY & COMMUNITY SVCS | 35 | $205K |
| DIANA PORTOCARRERO VEGA | CHIEF OPERATING OFFICER | 35 | $204K |
| AKINTAYO FADOJU | DIRECTOR OF NURSING SERVICES | 35 | $182K |
| HOWARD TRAUB | DIRECTOR OF CLINICAL SERVICE | 35 | $176K |
| QUYEN LY | CONTROLLER | 35 | $143K |
board members · 16
- AUTHUR PALEVSKY — BOARD MEMBER
- BERNADETTE TISO — BOARD MEMBER
- DANIEL HAFF — BOARD MEMBER
- ELLEN GREENE — BOARD MEMBER (UNTIL APRIL 2025)
- JANELLE COLON — BOARD MEMBER
- JEFFREY GOODMAN — BOARD MEMBER
- LUCY PERMAN — VICE CHAIR
- LYNN STANSEL — BOARD MEMBER
- MARGARET DAVINO — BOARD MEMBER
- MICHAEL S GROSS — CHAIRMAN
- PAUL CASSONE — BOARD MEMBER
- PEDRO SANTIAGO — BOARD MEMBER
- ROBERT KRAKOW — BOARD MEMBER
- SUZANNE REVELL — TREASURER
- THOMAS MCALVANAH — BOARD MEMBER
- WENDY INGORVAIA — BOARD MEMBER
relationships · 4
Who they work with
- Board of Education Government — Coordinates program scheduling with the Board of Education calendar for the After School Respite Program.
- Harry Kamish Partner — Co-founder of the organization that became Lifespire, partnered with Ida Rappaport to advocate for educational rights and services for people with intellectual and developmental disabilities.
- Lifespire Inc. Partner — Primary beneficiary of financial support and collaborative mission alignment.
- major professional and regional groups Coalition — Member of or represented in groups promoting the interests and welfare of people with intellectual and developmental disabilities.
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Advocacy-Driven Systems Changemethodology: advocacy-driven_service_expansionBy engaging in systemic advocacy and affiliation with professional networks, we expand social, legal, and vocational opportunities for individuals with intellectual and developmental disabilities because structural change enables broader access to rights and services than individual programs alone.
- Community-Based Habilitationmethodology: community-based_habilitationBy teaching life and independent living skills in natural, real-world settings, we increase functional independence and skill generalization for individuals with intellectual and developmental disabilities because learning in context improves retention and real-life application.
- Holistic Parallel Support Modelmethodology: parallel_supportBy supporting both service recipients and staff through integrated personal and professional development, we improve outcomes for individuals with intellectual and developmental disabilities because growth in one group reinforces growth in the other, creating a feedback loop of mutual empowerment.
- Inclusive Recreational Engagementmethodology: inclusive_recreation_with_assistive_technologyBy integrating recreational activities with assistive technology and respite care, we enhance socialization, communication, and independence for individuals with developmental disabilities because meaningful participation in joyful, peer-aligned experiences builds both skills and dignity.