named programs · 2 · from sources
What they call their work
Financial Support Program
Provides direct financial assistance to individuals and families impacted by ovarian cancer
Fundraising Events
Organizes events to raise money for cancer research and support services for affected individuals and families
activities · 3 groups
What they do
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Rare Genetic Disease Research and Advocacy 1 activity
- Conducting research on gynecologic cancer subtypesSupports and conducts research to identify molecular features of gynecologic cancer subtypes, particularly focusing on the genetic landscape of ovarian cancers such as SCCOHT, to develop tailored therapeutic approaches. Also supports access to research resources through partnership with the SCCOHT-SMARCA4 Registry.
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Cancer Research Funding 1 activity
- Funding ovarian cancer research through grantsFunds ovarian cancer research institutions and individual researchers, including support for clinical trials and laboratory-based studies on Small Cell Carcinoma of the Ovary, Hypercalcemic Type (SCCOHT) and other forms of ovarian cancer. Specific grants have been awarded to Cold Spring Harbor Laboratory and Northwell Health for research and patient care programs.
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Charity Golf Tournament Fundraiser 1 activity
- Organizing annual fundraising events for ovarian cancer researchHosts recurring fundraising events including an annual 5K run/walk, a dinner gala, a silent auction, and a virtual auction ("Night at the Links") to raise funds for ovarian cancer research and awareness. Past 5K events have raised between $10,000 and $20,000 annually.
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financials · form 990EZ · fy2025
revenue
Total revenue$69K
Contributions & grants$57K82%
Program service revenue$00%
Investment income$3K5%
Other revenue$47
expenses
Total expenses$70K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out$61K
balance sheet
Total assets$234K
Cash—
Investments—
Liabilities—
Net assets$234K
6 years on record · 2020–2025 · YoY revenue +29.6%
leadership · form 990 part vii · fy2025
Who runs it
board members · 6
- Anton Weber — Treasurer & Finance Director
- Debbie Kucharczk — Development Director
- Dee Jae Diliberto — Community Outreach Director
- Elizabeth Oppo — Executive Director
- Gina LoBello — Strategic Planning Director
- Paul Bunk — Science Advisory Director
relationships · 10
Who they work with
- Cold Spring Harbor Laboratory Partner — Recipient of funding for ovarian cancer research
- Cold Spring Harbor Laboratory Partner — Recipient of multiple research grants from KORF in 2019 and 2022.
- Douglas A. Levine Partner — Lead researcher conducting studies on the biology and treatment of gynecologic cancers, including SCCOHT, in collaboration with KORF.
- Harbor Links Golf Course Partner — Host venue for the "Night at the Links" fundraising event.
- Mount Sinai Health System Partner — Honored Dr. Ramon Parsons, a leader at Mount Sinai, as a 2018 gala honoree for his contributions to cancer research.
- Northwell Health Partner — Recipient of a KORF grant to conduct a clinical trial for advanced ovarian cancer.
- OvarCare Patient Assistance Program Partner — Supported program providing patient assistance
- SCCOHT-SMARCA4 Registry & Biobank Partner — Partner organization providing access to information and resources for research on SCCOHT and SMARCA4 variants.
- Team Katie Coalition — Founding group of family and friends who established the Katie Oppo Research Fund and continue to lead its mission.
- Team Katie Partner — Organizing group for the annual 5K fundraiser supporting the Katie Oppo Research Fund.
strategies · 2
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Precision Medicine in Gynecologic Cancer Treatmentmethodology: precision_medicineBy tailoring therapeutic strategies to the genetic and molecular profile of individual tumors, the organization improves treatment outcomes for gynecologic cancers because personalized interventions are more effective than one-size-fits-all approaches.
- Targeted Research Funding for Rare Ovarian Cancersmethodology: targeted-fundraising-for-rare-cancerBy focusing research funding on rare and understudied ovarian cancers like small cell carcinoma of the ovary, hypercalcemic type (SCCOHT), the organization advances prevention, screening, and treatment breakthroughs because rare cancers are often neglected by mainstream research initiatives.