irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $206KDAYSTAR KIDS' FAMILY SUPPORT SERVICES PROGRAM IS SUPPORTED BY NEW YORK STATE OFFICE FOR PEOPLE WITH WITH DEVELOPMENTAL DISABILITIES AND PROVIDES ESSENTIAL CARE COORDINATION SERVICES, TRANSITIONAL SUPPORT SERVICES, PREVENTIVE HEALTHCARE SERVICES, HEALTHCARE NAVIGATION ASSISTANCE, FAMILY ADVOCACY, AND ESSENTIAL EDUCATION AND TRAINING SERVICES TO UP TO 50 FAMILIES ANNUALLY WITH AN INFANT OR CHILD WITH COMPLEX HEALTHCARE CONDITIONS AND DEVELOPMENTAL DISABILITIES. DURING 2024, DAYSTAR SERVED 57 FAMILIES WHO WERE APPROVED FOR THIS SERVICE, EMPOWERING THEM TO EFFECTIVELY ADVOCATE AND MANAGE THEIR CHILD'S COMPLEX HEALTH CARE, SOCIAL-EMOTIONAL, AND EDUCATIONAL GOALS, WHILE SUPPORTING THEIR FAMILY'S NEED FOR ADDITIONAL CARE COORDINATION SUPPORTS.
- #2 $396KDAYSTAR KIDS' EARLY INTERVENTION AND PRESCHOOL SPECIAL SERVICES PROGRAM CONSISTS OF A DEDICATED TEAM OF RELATED PROVIDERS EXPERT IN WORKING WITH CHILDREN WITH MEDICAL COMPLEXITY TO PROVIDE ASSESSMENTS, EVALUATION SERVICES, AND THERAPY SERVICES. THIS PROGRAM IMPROVES SERVICE INTEGRATION, LINKING THE AGENCY'S CURRICULUM, THERAPEUTIC GOALS, AND HEALTH CARE DIRECTIVES TO SUPPORT THE INDIVIDUALIZED NEEDS OF EACH ENROLLEE, AND CREATES UNPARALLELED CONTINUITY OF CARE BY MINIMIZING PATIENT TRANSITIONS AND DISRUPTION OF SERVICES. DURING 2024, DAYSTAR PROVIDED THESE SERVICES TO 62 ENROLLEES.
named programs · 3 · from sources
What they call their work
Early Intervention and Preschool Special Services Program
Offers assessments, evaluations, and therapy services through a team of providers specializing in children with medical complexity, ensuring continuity of care and integration with health and educational goals.
Family Support Services Program
Provides care coordination, transitional support, preventive healthcare, healthcare navigation, family advocacy, and education for families of children with complex medical and developmental needs, authorized by NY State OPWDD.
SEEDS (Special Early Education Developmental Strategies)
Adaptive early intervention curriculum that supplements IFSPs and IEPs, focusing on cognitive, motor, social-emotional, and adaptive development in a nurturing, non-clinical environment.
activities · 5 groups
What they do
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Special Education Preschool Programs 2 activities
- Comprehensive day services for medically fragile childrenProvides center-based, full-day programs for children from four months through kindergarten transition, operating 50 weeks per year, Monday through Friday, with integrated medical care, early education, and therapeutic services. Serves children with complex medical conditions, including those dependent on feeding tubes, oxygen, tracheostomies, central lines, or ostomies.
- Integrated early intervention and special education programmingDelivers individualized, developmentally appropriate early educational enrichment and special education services, including an adaptive early intervention curriculum developed in 2008. Integrates Individualized Family Service Plan (IFSP) goals into daily routines and provides planned activities to support progress across developmental domains.
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Inclusive Social & Recreational Events 1 activity
- Family support and community connection servicesOffers family training, education, social events, and referral services to connect families of medically fragile children to community resources. Includes transportation assistance, holiday support through the Holiday Helpers Program, and events such as family social hours, costume parades, and graduation celebrations.
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Early Childhood Developmental Evaluation and Screening 1 activity
- Health and developmental intake and monitoringCollects health histories and patient records via parental consent and conducts assessments and evaluations to inform individualized service plans. Routinely monitors and documents child progress across developmental domains including fine motor, gross motor, cognitive, and social-emotional skills.
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Specialized Therapy for Children with Disabilities 1 activity
- On-site and coordinated therapeutic servicesProvides and coordinates physical, occupational, speech, music, vision, and nutrition therapies for children through partnerships with the Monroe County Early Intervention Program and local school districts. Therapists conduct scheduled sessions on-site, and therapeutic goals are integrated into individualized daily care plans.
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Comprehensive Care Management Services 1 activity
- Transition and care coordination supportProvides care coordination, healthcare navigation, family advocacy, and support for preschool and school transitions. Conducts eligibility screenings and collaborates with pediatric specialty departments to ensure continuity of care for children with complex healthcare needs.
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financials · form 990 · fy2024
revenue
Total revenue$10.44M
Contributions & grants$7.36M71%
Program service revenue$3.00M29%
Investment income$140K1%
Other revenue$-70K
expenses
Total expenses$4.00M
Program expenses76%
Admin / overhead20%
Fundraising3%
Salaries & benefits$2.90M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$17.43M
Cash$100K
Investments$7.49M
Liabilities$893K
Net assets$16.54M
Liquid reserves22.8 mo
5 years on record · 2020–2024 · YoY revenue +118.3%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 5
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| KIM CONDON | CHIEF EXECUTIVE OFFICER | 40 | $184K |
| LISA DIDOMENICO | CHIEF PROGRAM OFFICER | 40 | $165K |
| NICOLE VIGGIANO | CHIEF HUMAN RESOURCES OFFICER | 40 | $126K |
| FREDRICK MOORE | CHIEF FINANCIAL OFFICER | 40 | $53K |
| DIANE TUCKER | CHIEF FINANCIAL OFFICER | 40 | $23K |
board members · 14
- ADAM SMITH — BOARD MEMBER
- AMBER FOSTER — BOARD MEMBER
- ANDREW PLUTA — BOARD MEMBER
- GABRIEL CHODAK — BOARD MEMBER
- JESSE HAMLIN — BOARD MEMBER
- KATHY RIDEOUT EDD PNP-BC FNAP — BOARD MEMBER
- LINDSAY PRICHARD FOX — BOARD MEMBER
- MASON GROWER IV — BOARD MEMBER
- MICHAEL SCHWABL — VICE PRESIDENT
- MIKE BUCKLEY — PRESIDENT
- MIKE HESS — BOARD MEMBER
- PHIL CASTLEBERRY — SECRETARY
- SR BETH SUTTER — BOARD MEMBER
- STEVE MCCLUSKI — TREASURER
relationships · 16
Who they work with
- Cornell/Weinstein Family Foundation Funder — Provided a grant to support the development of the SEEDS adaptive early intervention curriculum.
- Development Office Partner — Department responsible for managing donations and donor inquiries.
- Golisano Children's Hospital Partner — Jennifer Johnson, Director of Family and Community Outreach at Golisano Children's Hospital, serves on the Board of Directors.
- Monroe County Early Intervention Program Partner — Partnership to coordinate and deliver required therapies for children, including physical, occupational, speech, and other interventions.
- Monroe County’s Early Intervention program Partner — Collaborates with Daystar Kids to coordinate therapeutic services for children.
- NEW YORK STATE OFFICE FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES Government — Supports the Family Support Services Program and provides funding for services to families of children with developmental disabilities.
- Nazareth University Partner — Erin Cole, Assistant Professor of Social Work at Nazareth University, serves on the Board of Directors.
- New York State Government — Designates Daystar Kids as the state’s only Pediatric Complex Care and Learning Center.
- New York State Community Commission on Reparations Remedies Government — Dr. Hawkins serves as Chair, leading a statewide effort to examine systemic inequities and shape policy recommendations.
- New York State Office of Children and Family Services Government — Recognized Daystar Kids as a Best Practices Program & Environment.
- RIT Partner — Phil Castleberry, VP University Advancement at RIT, serves as President of the Board of Directors.
- Sisters of Saint Joseph of Rochester Partner — Beth Sutter, SSJ, representing the Sisters of Saint Joseph of Rochester, serves on the Board of Directors.
- URMC Partner — Dennis Kuo, Chief of the Division of Developmental and Behavioral Pediatrics at URMC, serves on the Board of Directors.
- Urban League of Rochester Partner — Dr. Hawkins served as President and CEO, where she doubled the operating budget and expanded organizational reach.
- area school districts Partner — Works cooperatively with Daystar Kids to support children's educational and therapeutic needs.
- info@daystarkids.org Partner — Primary contact email for admissions inquiries
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Family-Centered Coordinated Support Networkmethodology: family-centered_coordinated-careBy embedding family support and external community resources into a unified care plan, we improve child and family outcomes because inclusive, individualized models strengthen engagement, reduce isolation, and address social determinants of health alongside clinical needs.
- Integrated Care Model for Medically Fragile Childrenmethodology: integrated_care_modelBy co-locating pediatric medical care, therapeutic interventions, and early education within a single interdisciplinary framework, we produce improved developmental outcomes for medically fragile children because continuous, coordinated support reduces service fragmentation and enhances individualized care delivery.
- Naturalistic Integration of Therapeutic and Educational Goalsmethodology: integrated_daily_routineBy integrating IFSP/IEP goals and therapeutic services into daily routines and classroom activities, we enhance developmental skill acquisition because frequent, context-rich practice in non-clinical settings promotes functional learning and generalization across environments.