named programs · 2 · from sources
What they call their work
CF Christmas Ball
Annual gala event that raises awareness and funds for cystic fibrosis patients and families
Financial Assistance Program
Provides grants to individuals with cystic fibrosis for medical bills, prescriptions, rent/mortgage, surgery costs, travel, and insurance expenses
activities · 2 groups
What they do
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Charity Event Organization 1 activity
- Organizing awareness and fundraising events for cystic fibrosisHosts local and annual events aimed at raising public awareness about cystic fibrosis and generating funds to support its programs and services.
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Familial Support for Rare Genetic Conditions 1 activity
- Providing financial assistance to individuals and families affected by cystic fibrosisOffers financial support to individuals and families in Western New York affected by cystic fibrosis, including assistance with medical treatments, medical equipment, travel expenses, and lung transplant-related costs. In its first year, provided support to 12 local families.
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financials · form 990EZ · fy2025
revenue
Total revenue$7K
Contributions & grants$7K100%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$28K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$47K
Cash—
Investments—
Liabilities—
Net assets$46K
6 years on record · 2020–2025 · YoY revenue +40.0%
relationships · 3
Who they work with
- CF Foundation Partner — Provides grants to the Cystic Fibrosis Foundation.
- Jenna Simonetti Partner — Individual whose personal connection to cystic fibrosis inspired the founding of the CF Christmas Ball event.
- Western New York Government — Provides assistance exclusively to residents of Western New York.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Financial Hardship Relief as Health Support 69 orgsmethodology: financial_assistance_for_medical_hardshipBy providing financial assistance for medical expenses and related stressors, the foundation improves the daily manageability of cystic fibrosis for patients and families, because reducing economic burden enables greater focus on care and treatment adherence.shared approach: Direct Financial Relief →
- Equitable Grant Allocation 37 orgsmethodology: case-by-case_grant_reviewBy reviewing grant applications on a case-by-case basis without exclusions based on personal characteristics, the foundation ensures fair access to support, because individualized assessment allows for responsive and inclusive aid distribution.shared approach: Targeted Support for High-Need Populations →
- Patient-Inspired Mission Designmethodology: patient-inspired_missionBy grounding the organization’s mission in personal lived experience with cystic fibrosis, the foundation ensures authentic engagement and relevance to the community it serves, because programs and support are shaped by firsthand understanding of patient and family needs.