COMMON MAPS
Map version new-york activity top-down
Main site Contact
Menu
↑ parent activity group ·
research dossier

BAND OF PARENTS INC
NEW YORK, NY · EIN 261227872 · Form 990 · FY2024 · NTEE P20 · Human Services · Medium ($1M-$10M) · bandofparents.org
revenue
$1.5M
expenses
$1.3M
net assets
$608K
employees
2
volunteers
15
program ratio
84%
mission · from form 990

THE PRIMARY GOAL OF THE ORGANIZATION IS TO FUND AND SUPPORT RESEARCH RELATED TO THE STUDY OF PEDIATRIC CANCER INCLUDING, BUT NOT LIMITED TO, THE STUDY OF NEUROBLASTOMA.

profile · synthesized from sources

Band of Parents is a nonprofit organization founded by families affected by neuroblastoma to fund research and support families navigating pediatric cancer treatment. The group raises funds for clinical trials and innovative therapies, particularly at major cancer centers, while providing emotional and logistical support to families. It operates as both a research funder and a community network for affected parents across the U.S. and internationally.

irs program accomplishments · form 990 part iii · fy2024

What they reported doing

  1. #1 primary $180K
    GIVEN TO MONTEFIORE EINSTEIN MEDICAL CENTER TO SUPPORT THE RESEARCH PROJECT TO REDUCE CISPLATIN-INDUCED HEARING LOSS IN PEDIATRIC CANCER PATIENTS.
  2. #2 $75K
    GIVEN TO GARDEN OF DREAMS FOUNDATION TO HELP MAKE DREAMS COME TRUE FOR CHILDREN IN NEED.
named programs · 3 · from sources

What they call their work

Fundraising Events
Organizes annual events including the BOP Golf Tournament, Kids Walk for Kids with Cancer, and charity sports tournaments to raise awareness and funds.
Research Funding for Neuroblastoma
Funds innovative clinical trials and research initiatives at major cancer centers in the U.S. and Europe, with over $17 million committed to date.
Support Network for Families
Provides emotional and informational support through an email group, social media, and in-person meetings with doctors and researchers.
activities · 7 groups

What they do

  • Cancer Awareness and Education Initiatives 3 activities
    • Engage in advocacy for improved pediatric cancer treatments
      Works to advance better drug treatments into clinical settings for children with neuroblastoma and supports policy and medical progress through family and community advocacy.
    • Facilitate family and medical collaboration
      Holds periodic meetings between families and doctors to discuss current neuroblastoma treatment protocols and ongoing research initiatives.
    • Operate an Associate Board for outreach and awareness
      Maintains an Associate Board that promotes awareness of neuroblastoma and the organization through public relations, fundraising, outreach, and member recruitment.
  • Familial Support for Rare Genetic Conditions 2 activities
    • Build capacity through educational resources for families
      Co-created the Neuroblastoma Parent Handbook with input from member families, providing firsthand knowledge and practical guidance to support newly diagnosed families.
    • Support families of children with neuroblastoma
      Provides support to families of newly diagnosed children during treatment, offers free membership to affected families, and facilitates peer support and information sharing.
  • Biomedical Research and Innovation 1 activity
    • Advance neuroblastoma research infrastructure and scientific knowledge
      Pioneered immunocytology and molecular markers for measuring minimal residual disease, established a human tumor and tissue archive, authored over 370 peer-reviewed articles, and holds patents on 50 cancer therapy families.
  • Fundraising for Community and Charitable Initiatives 1 activity
    • Facilitate peer-to-peer and community fundraising
      Supports fundraising through Facebook Birthday Fundraisers and community-organized events such as dinners, races, and galas across multiple states.
  • Cancer Research Funding 1 activity
    • Fund neuroblastoma research and clinical trials
      Funds innovative research and clinical trials for neuroblastoma to improve survival rates, including over $17 million committed to research and support for life-saving studies and therapies.
  • Charity Event Organization 1 activity
    • Organize annual fundraising events for pediatric cancer causes
      Hosts recurring events including the annual golf tournament in the Bronx, BOP Kids Walk in Central Park, Play Like a Pro hockey game, Bound By Hoops basketball tournament, and participates in Cycle for Survival events in New York, Westchester, and Palo Alto.
  • Uncategorized 1 activity
    • Provide direct clinical care and treatment development for neuroblastoma
      Established and led the neuroblastoma program at Memorial Sloan-Kettering Cancer Center since 1987, serving over 100 new patients annually; developed monoclonal antibodies (3F8, naxitamab, omburtamab) and secured FDA breakthrough designations and approvals for pediatric cancer treatments.
financials · form 990 · fy2024
revenue
Total revenue$1.49M
Contributions & grants$1.47M99%
Program service revenue$00%
Investment income$34K2%
Other revenue$-20K
expenses
Total expenses$1.33M
Program expenses84%
Admin / overhead4%
Fundraising11%
Salaries & benefits$230K
Grants paid out$1.03M
Largest expense lineCompensation
balance sheet
Total assets$623K
Cash$324K
Investments$270K
Liabilities$15K
Net assets$608K
Liquid reserves5.3 mo
5 years on record · 2020–2024 · YoY revenue +72.2%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 1
NameTitleHours/wkCompensation
PRISCILLA MA EXECUTIVE DI 40 $175K
board members · 15
  • ABBY BRODY UNTIL 7124 — DIRECTOR
  • ADNAN SIDDIQI — TREASURER
  • AMIEE MITTLEMAN — DIRECTOR
  • CARYN FRANCA — DIRECTOR
  • EMILY GOEBEL — DIRECTOR
  • FRANCESCA DEMERS — DIRECTOR
  • GARY ROTHSCHILD — DIRECTOR
  • GREGORY SIZIKOV — DIRECTOR
  • JENN WOLF — DIRECTOR
  • JILL OSTRAGER-COHEN — DIRECTOR
  • KENNETH LYNCH — DIRECTOR
  • MARC WINTHROP — CHAIRMAN
  • MARK UNGER — SECRETARY
  • MISTY ROHALY — DIRECTOR
  • VANESSA FORTE-ABBADESSA — DIRECTOR
relationships · 12

Who they work with

  • American Association for Cancer Research Coalition — Professional society in which Dr. Cheung is involved to support cancer research.
  • American Society of Clinical Oncology Coalition — Professional organization in which Dr. Cheung participates.
  • CNCF Partner — Collaborated with CNCF to create the Neuroblastoma Parent Handbook, incorporating contributions from Band of Parents members.
  • Chad Feay Partner — Primary contact for Associate Board membership inquiries
  • Children’s Oncology Group Coalition — Professional organization in which Dr. Cheung participates to advance pediatric cancer research and treatment.
  • Cycle for Survival Partner — Collaborates with Cycle for Survival to raise money for rare cancer research through team participation.
  • DonateStock.com Partner — Partnered to facilitate secure and easy stock donations from supporters.
  • Kim Roginski Partner — Point of contact for event planning and brainstorming support for grassroots fundraising initiatives.
  • Kim Roginski Partner — Primary contact for membership and engagement with Band of Parents.
  • Memorial Sloan-Kettering Cancer Center Partner — Primary institution where Dr. Nai-Kong Cheung conducts clinical and research activities in pediatric oncology.
  • Society for Immunotherapy of Cancer Coalition — Professional society focused on cancer immunotherapy in which Dr. Cheung is active.
  • major cancer centers Partner — Funded by Band of Parents for neuroblastoma research
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Accelerating Targeted Therapies Through Translational Research
    methodology: translational_science
    By funding translational science and developing novel antibody-based platforms, the organization advances targeted therapies for neuroblastoma, because moving laboratory discoveries directly into clinical applications increases treatment precision and reduces toxicity.
  • Grassroots Mobilization via Peer-to-Peer and Story-Based Engagement
    methodology: peer_to_peer_fundraising
    By empowering individuals to lead peer-to-peer fundraising and share personal stories, the organization expands advocacy and donor engagement, because lived experience builds trust, strengthens networks, and motivates community action.
  • Grassroots-Fueled Research Funding
    methodology: grassroots_peer_to_peer_fundraising
    By empowering individuals to lead peer-to-peer fundraising and community events, the organization generates research funding because personal networks and stories drive deeper engagement and sustained donor participation.
  • Peer-Informed Advocacy and Support Ecosystem
    methodology: peer-informed resource development
    By integrating lived experience into resource development and peer networks, the organization enhances support and advocacy because parents with direct experience co-create practical tools and foster trust within the community.
  • Targeted Therapies Development
    methodology: targeted_therapies
    By focusing on the development of less toxic, targeted therapies, the organization accelerates progress toward a cure for neuroblastoma because these treatments are designed to specifically attack cancer cells while minimizing harm to healthy tissue, improving both safety and efficacy.