named programs · 5 · from sources
What they call their work
Adult Epilepsy Counseling
Offers individual and group counseling, vocational guidance, and liaison services to help adults with epilepsy manage emotional, social, and practical challenges.
Epilepsy Association Scholarships
Provides scholarships to individuals with epilepsy through the Epilepsy Fund of WNY, Inc., funded by the estate of Dennis Durfee.
Epilepsy Health & Wellness Sessions
Free classes in meditation, relaxation techniques, and energy healing to reduce stress and promote well-being for people with epilepsy and their caregivers.
Family Support
Provides parent training, family counseling, and sibling support to help families adjust to a child's epilepsy diagnosis and improve family dynamics.
Outreach Education
Delivers educational presentations on epilepsy, seizure types, and first aid to schools, healthcare providers, and community organizations.
activities · 6 groups
What they do
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Disease-Specific Clinical & Patient Education 2 activities
- Distribution of educational materials and resourcesProvides accessible educational content through a blog, a free newsletter (The Epi-Gram), and informational resources about epilepsy diagnosis, causes, treatments, and living with epilepsy.
- Epilepsy education and community outreach programsConducts in-person and virtual educational in-services, presentations, and public awareness campaigns for schools, healthcare providers, community organizations, and the general public, covering seizure first aid, seizure types, medications, treatments, and general epilepsy information.
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Neurological Disorder Research & Rehabilitation 1 activity
- Advancing epilepsy knowledge through research and educationConducts charitable, scientific, and educational activities to advance understanding of epilepsy and related conditions.
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Familial Support for Rare Genetic Conditions 1 activity
- Direct support services for individuals and families affected by epilepsyProvides individual, family, and group counseling; parent training; child and sibling support services; and coordination with schools, medical providers, legal services, and social service agencies to support adjustment, communication, and effective management of epilepsy.
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Charity Event Organization 1 activity
- Public awareness and fundraising eventsOrganizes the annual Maggie Lee Memorial 5K Run/Fun Walk for Epilepsy Awareness, including post-event activities and fundraising, with proceeds supporting outreach, education, and awareness initiatives.
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Healthcare Education Scholarships and Fellowships 1 activity
- Scholarship program administrationAdministers a scholarship program for individuals affected by epilepsy, funded through the Epilepsy Fund of WNY, Inc.
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Uncategorized 1 activity
- Health and wellness programming for people with epilepsy and caregiversOffers free in-person health and wellness classes in Buffalo, NY, focused on stress reduction, healthy living habits, and overall well-being for individuals with epilepsy and their caregivers.
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financials · form 990 · fy2025
revenue
Total revenue$377K
Contributions & grants$360K96%
Program service revenue$4440%
Investment income$4310%
Other revenue$16K
expenses
Total expenses$443K
Program expenses84%
Admin / overhead16%
Fundraising0%
Salaries & benefits$361K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$173K
Cash$145K
Investments$0
Liabilities$48K
Net assets$126K
Liquid reserves3.9 mo
6 years on record · 2020–2025 · YoY revenue -16.5%
leadership · form 990 part vii · fy2025
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| JEFFREY IRWIN | EXECUTIVE DIRECTOR | 35 | $99K |
board members · 8
- ALEXUS P LUDWIG DO — DIRECTOR
- CATHERINE KETTNER — DIRECTOR
- DANIEL SUTTELL CPA — TREASURER
- KYLE KIEFFER — DIRECTOR
- REBECCA SMITH — VICE PRESIDENT
- ROBERT GLOVER MD — DIRECTOR
- SEAN RADLICH — PRESIDENT
- THERESA DRUM — SECRETARY
relationships · 5
Who they work with
- Epistle Fund of WNY, Inc. Partner — Partner organization through which scholarship funds are administered.
- St George Hall Partner — Hosts the 25th Annual Maggie Lee Memorial 5K Run/Fun Walk event.
- legal and other social service providers Partner — Refers and links families to legal and social service agencies for additional support.
- medical community Partner — Provides liaison and referral services to connect families with medical providers.
- public and private schools Partner — Collaborates with schools to promote understanding of epilepsy and address social challenges faced by students.
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Comprehensive Support Modelmethodology: comprehensive_support_modelBy integrating education, advocacy, and direct services, the organization produces holistic support for individuals and families affected by epilepsy because addressing multiple dimensions of need concurrently leads to more sustainable outcomes and greater system navigation capacity.
- Family-Centered and Systems-Based Caremethodology: family-centered_careBy engaging entire families and addressing systemic dynamics, the organization strengthens support for children with epilepsy because family-wide involvement improves care continuity, social inclusion, and long-term adjustment within school and community settings.
- Holistic Case Managementmethodology: holistic case managementBy integrating counseling with coordination across health, legal, vocational, and social systems, the organization addresses the full spectrum of client needs because epilepsy’s impact is multifaceted and effective support requires breaking down service silos.
- Peer-Led Support for Emotional Resiliencemethodology: peer_support_groupsBy facilitating peer-led support groups, the organization improves coping and adjustment among individuals with epilepsy because shared lived experiences foster trust, reduce isolation, and enhance emotional resilience in ways that clinical interventions alone cannot.
- Stigma Reduction Through Audience-Tailored Educationmethodology: stigma-reduction_through_educationBy delivering education that is customized to audience age and context and that reframes epilepsy with historical and medical facts, the organization reduces stigma because accurate, relatable knowledge displaces myths and builds public empathy.