named programs · 1 · from sources
What they call their work
Virtual Brain Tumor Support Group
Monthly online support group via Zoom for brain tumor patients, family members, and caregivers, led by a social worker and brain tumor survivor
activities · 5 groups
What they do
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Cancer Peer Support & Wellness Programs 2 activities
- Hosts virtual support groups for brain tumor patients and caregiversFacilitates virtual brain tumor support groups twice monthly, including a recurring session on the last Wednesday of every month from 7:30–9 PM via Zoom, for patients, family members, and caregivers.
- Provides information and support for brain tumor and brain injury patientsOffers information, education, emotional support, and research resources to patients and families affected by brain tumors and brain injuries, including an online platform for sharing words of encouragement.
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Cancer Awareness and Education Initiatives 2 activities
- Operates Butterfly Kisses program for emotional supportRuns the Butterfly Kisses program, which invites the public to print and color butterfly cards and send get-well wishes to individuals affected by brain tumors, traumatic brain injury (TBI), and Creutzfeldt-Jakob Disease (CJD) as a symbolic gesture of support.
- Organizes annual awareness and fundraising events for neuroscience researchHosts annual events aimed at raising public awareness and funds to support neuroscience research on brain tumors and brain injuries.
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Website Accessibility Implementation 1 activity
- Ensures digital accessibility of websiteMaintains an accessible website in compliance with WCAG 2.1 standards through best practices and the UserWay Website Accessibility Widget, and provides phone-based support for users facing accessibility barriers.
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Children's Book Distribution Programs 1 activity
- Runs book donation campaigns at Barnes & Noble storesConducts wrapping book campaigns at local Barnes & Noble bookstores, leveraging book donations to support the foundation’s mission.
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Charity Event Organization 1 activity
- Supports third-party fundraising eventsEnables volunteers and supporters to organize and run third-party fundraising events such as bowling tournaments, book sales, auctions, golf tournaments, and comedy shows to benefit the foundation.
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financials · form 990 · fy2024
revenue
Total revenue$13K
Contributions & grants$13K100%
Program service revenue$00%
Investment income$80%
Other revenue$0
expenses
Total expenses$7K
Program expenses77%
Admin / overhead19%
Fundraising3%
Salaries & benefits$0
Grants paid out$0
Largest expense lineProfessional Fees
balance sheet
Total assets$86K
Cash$86K
Investments$0
Liabilities$0
Net assets$86K
Liquid reserves144.8 mo
5 years on record · 2020–2024 · YoY revenue +43.2%
relationships · 4
Who they work with
- Barnes & Noble Partner — Partners with Barnes & Noble to run wrapping book campaigns that generate donations for the foundation.
- CJD Foundation Partner — Collaborates with or refers to the CJD Foundation for additional information about Creutzfeldt-Jakob Disease.
- UserWay Partner — Partnered with UserWay to implement the Website Accessibility Widget on the foundation's website.
- Zoom Partner — Uses Zoom as the platform for hosting virtual support groups
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Integrated Support and Research Modelmethodology: integrated_patient-support-and-researchBy combining patient support services—such as information, education, and emotional support—with medical research, the organization ensures that research remains patient-centered and clinically relevant while simultaneously improving patient outcomes through access to cutting-edge knowledge and care pathways.
- Participatory Art for Awareness and Educationmethodology: participatory_art_awarenessBy engaging the public in symbolic art activities like butterfly card creation and disease-themed art projects, the organization raises awareness about rare brain conditions because experiential and creative participation fosters emotional connection and memory retention more effectively than informational campaigns alone.
- Peer-Support Modelmethodology: peer_supportBy leveraging shared lived experiences of brain tumors and injuries, the organization creates safe spaces for mutual emotional and psychological support, which fosters trust, reduces isolation, and increases engagement because participants perceive peers as more relatable and credible than clinical providers.