named programs · 6 · from sources
What they call their work
NY Childhood Cancer Summit
Annual summit offering resources, advocacy, and networking for pediatric cancer patients, survivors, and families, including caregiver support and community fairs
Paige’s Butterfly Run
Annual 5K race held in downtown Syracuse that raises funds for pediatric oncology research and patient programs at Upstate Golisano Children’s Hospital
Paige’s Pajamarama Gathering
Community event bringing together families affected by pediatric cancer for connection, support, and remembrance
Pedaling 4 Paige
Indoor spinning event that engages participants to raise funds for pediatric cancer research and family support programs in Central New York
Survivor Wellness Program
Provides long-term follow-up care for childhood cancer survivors, covering unmet medical needs such as dental care, fertility preservation, and audiology services
Toast for Gold
Cocktail event celebrating Childhood Cancer Awareness Month and serving as a kickoff to the NY Childhood Cancer Summit, featuring mission highlights and community recognition
activities · 6 groups
What they do
-
Charity Event Organization 2 activities
- Engaging volunteers and organizing fundraising initiativesMobilizes volunteers to support fundraising through events, butterfly sales, and donation outreach; also organizes school fundraising competitions and indoor spinning events to raise money for pediatric cancer research and programs in Central New York.
- Organizing annual 5K run/walk and community festival to raise funds for pediatric cancerHosts an annual 5K run/walk and community festival in downtown Syracuse, drawing over 1,140 participants, to raise funds for pediatric cancer research and patient programs. The 2026 event marked the 30th anniversary of this initiative.
-
-
Cancer Awareness and Education Initiatives 1 activity
- Collecting and sharing stories of pediatric cancer survivorsCollects and shares personal stories from children in the community who have fought pediatric cancer to raise awareness and support for the cause.
-
-
Pediatric Medical Care and Research Support 1 activity
- Funding pediatric oncology research and patient programs at Upstate Golisano Children's HospitalProvides financial support for pediatric cancer research and patient care programs at Upstate Golisano Children's Hospital in Syracuse, benefiting pediatric cancer patients and their families in Central New York. In one instance, donated $247,500 specifically to the Pediatric Oncology Clinic.
-
-
Inclusive Social & Recreational Events 1 activity
- Hosting childhood cancer awareness and survivorship eventsOrganizes and hosts events including a holiday party for over 200 attendees, caregiver self-care and grieving breakout sessions, a candlelight vigil, and a community partner fair to celebrate Childhood Cancer Awareness and support survivors and families.
-
-
Cancer Peer Support & Wellness Programs 1 activity
- Supporting adolescent and young adult cancer survivors' participation in national programsProvides support for adolescent and young adult cancer survivors to attend national programs such as Camp Mak-A-Dream and the Cancer Connections AYA conference.
-
-
Cancer Patient Financial and Practical Support 1 activity
- Supporting families affected by childhood cancer and blood disordersUses donations to provide direct support to families affected by childhood cancer and blood disorders, including covering unmet medical needs such as dental care, fertility preservation, infertility assessments, audiology services, and long-term follow-up care for survivors.
-
financials · form 990 · fy2024
revenue
Total revenue$401K
Contributions & grants$331K82%
Program service revenue$00%
Investment income$7K2%
Other revenue$64K
expenses
Total expenses$344K
Program expenses64%
Admin / overhead14%
Fundraising22%
Salaries & benefits$87K
Grants paid out$216K
Largest expense lineCompensation
balance sheet
Total assets$187K
Cash$167K
Investments$0
Liabilities$7K
Net assets$180K
Liquid reserves5.8 mo
4 years on record · 2020–2024 · YoY revenue +6.5%
leadership · form 990 part vii · fy2024
Who runs it
board members · 13
- CHRISTOPHER ARNOLD — CO-CHAIR
- ELIJAH CONTE — BOARD MEMBER
- ELLEN YEOMANS — CO-CHAIR
- ERICA MUSCATELLO — BOARD MEMBER
- JOYCE DENNINGTON — SECRETARY
- KATIE HEATON — BOARD MEMBER
- KEVIN M BERNSTEIN ESQ — VICE PRESIDENT
- KEVIN VISCONTI — BOARD MEMBER
- MELANIE A COMITO MD — BOARD MEMBER
- NICHOLE MOLES — BOARD MEMBER
- RALPH SIMONE — PRESIDENT
- TIMOTHY PEREZ — BOARD MEMBER
- UYEN PH NGYUYEN — TREASURER
relationships · 23
Who they work with
- Angel Flight Partner — Community partner participating in the 2025 NY Childhood Cancer Summit.
- Barnes & Noble Partner — Hosted the Annual Book Fair benefiting Upstate Golisano Children’s Hospital in support of Paige's Butterfly Run.
- Brian’s Kids Partner — Community partner participating in the 2025 NY Childhood Cancer Summit.
- Camp Good Days Partner — Community partner participating in the 2025 NY Childhood Cancer Summit.
- Camp Mak-A-Dream Partner — Partner organization whose national program is supported for participation by adolescent and young adult cancer survivors.
- Cancer Connections AYA conference Partner — Partner organization whose national conference is supported for participation by adolescent and young adult cancer survivors.
- CureFest USA Partner — Community partner participating in the 2025 NY Childhood Cancer Summit.
- David’s Refuge Partner — Community partner participating in the 2025 NY Childhood Cancer Summit.
- Fleet Feet of Syracuse Partner — Official running store of Paige’s Butterfly Run and provider of a training program for first-time 5K participants.
- Griffin’s Guardians Partner — Community partner participating in the 2025 NY Childhood Cancer Summit.
- Make-a-Wish Partner — Community partner participating in the 2025 NY Childhood Cancer Summit.
- Maureen’s Hope Partner — Community partner participating in the 2025 NY Childhood Cancer Summit.
- Patrick Wiese Foundation Partner — Community partner participating in the 2025 NY Childhood Cancer Summit.
- Taste of Syracuse Partner — Host festival held concurrently with Paige’s Butterfly Run, promoting joint community engagement and event visibility.
- TheTruth365 Partner — Community partner participating in the 2025 NY Childhood Cancer Summit.
- Upstate Foundation Partner — Receives annual donations from Paige's Butterfly Run to support pediatric oncology services at Upstate Golisano Children’s Hospital.
- Upstate Golisano Children's Hospital Partner — Partner institution where funded programs and research for pediatric cancer and blood disorders are conducted.
- Upstate Golisano Children's Hospital Partner — Partner institution where pediatric oncology research and patient programs are sponsored.
- Upstate Golisano Children’s Hospital Partner — Collaborates on the delivery of long-term follow-up care for childhood cancer survivors through the Survivor Wellness Program.
- Upstate Golisano Children’s Hospital Partner — Collaborates with the hospital to support pediatric cancer research and patient programs at the Dr. William J. Waters Center for Children’s Cancer and Blood Disorders.
- Upstate Golisano Children’s Hospital Partner — Collaborates with the hospital to support pediatric cancer research and patient programs.
- Upstate Golisano Children’s Hospital Partner — Receives proceeds from the Paige’s Butterfly Run to support pediatric cancer research and patient programs.
- William and Mary L. Thorpe Charitable Trust Funder — Provided a grant to Paige's Butterfly Run.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Community Healing Through Shared Memorialmethodology: community-healing-gatheringsBy hosting gatherings that honor children lost to cancer, the organization fosters community healing because collective remembrance reduces isolation and strengthens long-term engagement among bereaved families.
- Memorial-Driven Funding for Research and Supportmethodology: memorial-giving_modelBy channeling memorial donations into pediatric cancer research and patient programs, the organization generates sustained funding because aligning donor tributes with mission-driven outcomes increases donor commitment and long-term support.
- Psychosocial Peer Community for AYA Survivorsmethodology: psychosocial_support_for_aya_survivorsBy connecting adolescent and young adult (AYA) cancer survivors to peer-focused national programs, the organization improves post-treatment well-being because shared identity and community reduce isolation and support long-term psychosocial recovery.