irs program accomplishments · form 990 part iii · fy2023
What they reported doing
- #1 primary $324KFAMILY PROGRAMS.
- #2 $266KDOING A WORLD OF GOOD - A RESIDENTIAL CAMPING PROGRAM FOR CHILDREN WITH CANCER FROM THE UNITED STATES AND OTHER COUNTRIES AROUND THE WORLD. DOING A WORLD OF GOOD OFFERS A UNIQUE OPPORTUNITY FOR CHILDREN WITH CANCER FROM ALL OVER THE WORLD TO INTERACT, BOND, AND LEARN FROM ONE ANOTHER THROUGH A VARIETY OF SUMMER CAMP ACTIVITIES AND EXPERIENCES.
named programs · 3 · from sources
What they call their work
Adult Oncology
Residential and non-residential camping programs designed for adults dealing with cancer, focusing on emotional and physical well-being through group and individual activities.
Doing a World of Good
Residential camping program for children with cancer from the United States and other countries, offering summer camp activities and experiences to foster bonding and emotional support.
Family Programs
Programs that support families affected by cancer and sickle cell anemia, providing recreational and emotional enrichment opportunities.
activities · 3 groups
What they do
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Recreational and Emotional Support Programs for Children with Serious Illnesses 2 activities
- Operating residential and day camp programs for children affected by cancer or sickle cell anemiaProvides overnight and day camp programs for children aged 4–17 affected by cancer or sickle cell anemia, including those diagnosed, with an affected family member, or bereaved. Programs include weeklong summer sessions at a facility on Keuka Lake and day camps hosted in Buffalo, Rochester, and Syracuse, featuring recreational and social activities in a supportive environment. Transportation is provided from regional hubs, and enrollment is managed through a centralized Parent Portal.
- Providing year-round recreational and support programs for individuals and families affected by cancer or sickle cell anemiaOffers ongoing recreational and support activities throughout the year for children, adults, and families affected by cancer or sickle cell anemia, including snow tubing, fishing, bowling, concerts, sporting events, costume parties, and Fall Fest weekend camps. Specialized programs include events for women and young adults such as Sabres games, drum circles, and pottery painting, with services provided free of charge across Western New York.
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Charity Event Organization 1 activity
- Hosting the Courage Bowl and related fundraising and recognition eventsOrganizes the annual Courage Bowl, a collegiate football game between St. John Fisher University and The College at Brockport that has served as a major fundraiser since 2004. The event includes honoring children affected by cancer as honorary coaches and cheerleaders and presenting the Teddi Trophy to recognize leadership, sportsmanship, and participant involvement.
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Cancer Peer Support & Wellness Programs 1 activity
- Operating adult and family camping and retreat programsProvides residential camping experiences and retreats for adults dealing with cancer and for families affected by cancer or sickle cell anemia, offering structured support and activities to strengthen emotional and physical well-being during and after treatment.
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financials · form 990 · fy2023
revenue
Total revenue$4.42M
Contributions & grants$3.39M77%
Program service revenue$00%
Investment income$573K13%
Other revenue$455K
expenses
Total expenses$2.92M
Program expenses88%
Admin / overhead7%
Fundraising5%
Salaries & benefits$1.47M
Grants paid out$12K
Largest expense lineCompensation
balance sheet
Total assets$33.44M
Cash$5.08M
Investments$12.97M
Liabilities$509K
Net assets$32.93M
Liquid reserves74.0 mo
5 years on record · 2019–2023 · YoY revenue -0.3%
leadership · form 990 part vii · fy2023
Who runs it
paid leadership · 3
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| GARY MERVIS | CHAIRMAN & FOUNDER | 39 | $154K |
| WENDY MERVIS | EXECUTIVE DIRECTOR | 39 | $141K |
| JEFF BARTHOLOMEW | DIRECTOR OF FINANCE | 38 | $59K |
board members · 22
- BILL MCAULIFFE — BOARD MEMBER
- BRANDON BEARDSLEY — VICE CHAIR
- CHRISTINA AMBROSE — SECRETARY
- DANIEL RIVERS — BOARD MEMBER
- DAVID KORONES MD — BOARD MEMBER
- DONALD DEBLASE — TREASURER
- DR MARK GESTRING — BOARD MEMBER
- ELISABETH CURRAN — BOARD MEMBER
- ERIC FOSTER — BOARD MEMBER
- FRANK TOWNER — BOARD MEMBER
- J ROBERT BLEIER — PRESIDENT
- JAY JAY VANDERSTYNE — BOARD MEMBER
- JEAN V JOSEPH MD — BOARD MEMBER
- JEFFREY MESSINA — BOARD MEMBER - AS OF OCT 2023
- JOSEPH VASILE MD MBA — BOARD MEMBER
- KATE TOROK — BOARD MEMBER - AS OF OCT 2023
- LIZ VEGA — BOARD MEMBER - THRU OCT 2023
- MARY DADEY — BOARD MEMBER
- MATTHEW ANDERSON — BOARD MEMBER
- MICHAEL MERCIER — BOARD MEMBER - RESIGNED DEC 2023
- PATRICIA STEVENS — BOARD MEMBER
- RICHARD KAPLAN — BOARD MEMBER
relationships · 25
Who they work with
- American Camp Association Network — Maintains accreditation from the American Camp Association.
- Buffalo Partner — Hosts day camp programming for Junior Campers (ages 4-7) affected by cancer.
- Buffalo Partner — Regional office providing busing for overnight camp participants
- Buffalo Regional Office Partner — Regional office hosting year-round programs for Camp Good Days participants
- Canandaigua National Bank Partner — Employer of Board Chair Brandon Beardsley, who brings financial services expertise to the organization.
- City of Rochester Fire Department Partner — Employer of Board Vice Chair Christina Ambrose.
- Genesee Regional Bank Partner — Former employer of Board Chair Brandon Beardsley, where he held leadership roles in internal audit and risk management.
- Golisano Children's Hospital Partner — Institutional affiliation of board member Dr. David Korones, indicating a professional connection to the hospital.
- Grady Health System Partner — Integrated food prescriptions into primary care
- Keuka Lake Partner — Supports a recreational facility located on Keuka Lake for use in programs.
- Marist College Partner — Institutional affiliation of board member Dr. Wendy Gladstone-Brown, who is retired from the college.
- Massachusetts Institute of Technology Partner — Educational institution of Associate Board Chair Collin Preston.
- PwC Partner — Former employer of Board Chair Brandon Beardsley, where he worked on the Risk Assurance team.
- Rochester Partner — Hosts day camp programming for Junior Campers (ages 4-7) affected by cancer.
- Rochester Partner — Regional office providing busing for overnight camp participants
- Rochester Regional Office Partner — Regional office hosting year-round programs for Camp Good Days participants
- St. John Fisher University Partner — Co-hosts the annual Courage Bowl football game with The College at Brockport to benefit Camp Good Days.
- St. John Fisher University Partner — Institutional affiliation of board members Chris Keyes and Kate Torok.
- Syracuse Partner — Hosts day camp programming for Junior Campers (ages 4-7) affected by cancer.
- Syracuse Partner — Regional office providing busing for overnight camp participants
- Syracuse Regional Office Partner — Regional office hosting year-round programs for Camp Good Days participants
- The College at Brockport Partner — Co-hosts the annual Courage Bowl football game with St. John Fisher University to benefit Camp Good Days.
- URMC Golisano Children's Hospital Partner — Employer of Associate Board member Jordyn Poole.
- University Of Rochester Medical Center Partner — Institutional affiliation of board member Dr. Jean Joseph, indicating a professional connection to the medical center.
- campmanagement.com Partner — Platform used to host the Parent Portal for enrollment, forms, and program registration.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Family-Centered Care with Inclusive Eligibilitymethodology: family-centered_careBy extending program eligibility to individuals with direct diagnoses as well as those affected through family members, the organization addresses the full spectrum of psychosocial impact, because illness affects entire family systems and support should not be limited to the diagnosed individual.
- Free Access Modelmethodology: free_access_modelBy offering all programs and services free of charge, the organization removes financial barriers to participation, thereby increasing access and engagement for individuals and families affected by cancer or sickle cell anemia, because cost is a known deterrent to service utilization in vulnerable populations.
- Peer-Based Residential Campingmethodology: peer_support_residential_modelBy immersing children and adults affected by cancer in residential camp settings with peers facing similar challenges, the organization fosters emotional support, social connection, and mutual learning, because shared lived experience reduces isolation and promotes psychosocial healing.