named programs · 3 · from sources
What they call their work
Medical Grant Program
Provides financial assistance to individuals seeking treatment from Lyme-literate medical providers
Monthly Support Meetings
Hosts gatherings for Lyme patients and families to share experiences, receive resources, and connect with others facing similar challenges
Stomps Out Lyme Walk
Annual community event to raise awareness and funds for Lyme disease education and patient support
activities · 2 groups
What they do
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Peer-Led Mental Health Support Groups 1 activity
- Hosts monthly in-person support meetings for individuals affected by Lyme diseaseOrganizes and facilitates regular peer support meetings that connect patients and families affected by Lyme disease, providing a platform for shared experiences and access to resources.
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Disease-Specific Clinical & Patient Education 1 activity
- Provides public education and support services for Lyme diseaseOffers educational resources, guidance on tick testing, and support to individuals and families affected by Lyme disease and co-infections. Serves as a resource hub for diagnosis, treatment, and prevention information.
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financials · form 990EZ · fy2025
revenue
Total revenue$21K
Contributions & grants$3K15%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$33K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$71K
Cash—
Investments—
Liabilities—
Net assets$71K
4 years on record · 2021–2025 · YoY revenue -30.6%
relationships · 3
Who they work with
- Rebecca Roll Partner — Founding member and active leader who connects patients to Lyme WNY resources and support networks.
- TickCheck Partner — Partner organization offering tick testing services for Lyme disease
- Tickreport Partner — Partner organization providing tick testing services for Lyme disease
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Community Education and Advocacy to Increase Awarenessmethodology: community-education-and-advocacyBy combining public education with advocacy, we increase awareness and policy attention around Lyme and tick-borne diseases, because informed communities are better equipped to prevent disease and demand systemic change.
- Community-Driven Peer Support to Reduce Isolationmethodology: community-driven supportBy facilitating peer-led support groups, we reduce psychosocial isolation among Lyme patients, because shared lived experience fosters emotional resilience and sustained engagement in care.
- Early Detection Through Tick Testingmethodology: early_detection_through_tick_testingBy promoting tick testing, we enable early identification of Lyme disease exposure, because early detection improves treatment outcomes and reduces long-term morbidity.
- Patient Navigation to Bridge Gaps in Caremethodology: patient navigation and educationBy connecting patients to Lyme-literate providers and educating them on the healthcare system, we improve access to accurate diagnosis and treatment, because systemic gaps in mainstream care often delay or prevent effective intervention.