irs program accomplishments · form 990 part iii · fy2025
What they reported doing
- #1 primary $243KGLOBAL PATIENT ADVOCACY COALITION - GPAC IS CURRENTLY STRUCTURED AS A COMMITTEE OF THE AMERICAN MIGRAINE FOUNDATION AND PROVIDES INFORMATION AND EDUCATION FOR THOSE WITH MIGRAINE THROUGHOUT THE GLOBE. GPAC HAS A PROGRAM CALLED MIGRAINE FITNESS AT WORK.
named programs · 5 · from sources
What they call their work
Emerging Advocates Program
Training program that helps people with migraine build advocacy skills, share their stories, and become stronger voices in the community; includes education on migraine science, stigma, and advocacy strategies.
Global Patient Advocacy Coalition (GPAC)
Committee of AMF providing global education and advocacy support for people with migraine; includes the Migraine Fitness at Work program.
Migraine Advocacy Hub
Centralized platform offering tools and resources for advocacy in family, work, school, community, and healthcare settings; includes an advocate heat map and action guides.
Move Against Migraine
Online support community on Facebook connecting over 38,000 people living with migraine for shared experiences, emotional support, and peer-led advocacy.
Resource Library and Patient Guides
Collection of doctor-verified educational materials covering diagnosis, treatment, symptoms, mental health, and lifestyle management for migraine.
activities · 8 groups
What they do
-
Biomedical Research and Innovation 1 activity
- Conducting and supporting migraine research through data collection and clinical studiesAdvances migraine research through the American Registry for Migraine Research by collecting and analyzing patient data. Also supports clinical trials evaluating new treatments, diagnostic tools, and technologies via human participant research.
-
-
Healthcare Provider Directories and Clinical Support Services 1 activity
- Operating a Find a Doctor tool for migraine careProvides a digital tool that connects patients with medical professionals experienced in migraine and headache care, improving access to specialized treatment.
-
-
Organization Website and Online Platform Management 1 activity
- Operating the Migraine Advocacy HubMaintains a centralized online platform—the Migraine Advocacy Hub—that provides advocacy resources, tools for community mobilization, and opportunities for individuals to engage in migraine-related advocacy efforts. Multiple website sources confirm its ongoing operation and purpose.
-
-
Peer-Led Mental Health Support Groups 1 activity
- Operating the Move Against Migraine Facebook support groupFacilitates a peer support community on Facebook for individuals living with migraine, connecting over 38,000 members to share experiences and support. The group is actively maintained as part of the organization's patient engagement efforts.
-
-
Disease-Specific Clinical & Patient Education 1 activity
- Providing free, doctor-verified educational resources and guidesOffers a comprehensive library of free, physician-reviewed patient education materials, including downloadable guides on migraine symptoms, triggers, treatment options, mental health, pregnancy, and preventive care. These resources are accessible to millions of Americans living with migraine.
-
-
Nonprofit Retail and Merchandise Sales 1 activity
- Receiving proceeds from migraine-themed merchandise salesReceives all profits from the sale of a migraine-themed enamel pin by Neuro Blooms, which supports the organization’s research, advocacy, education, and patient support programs. The organization also offers 41 branded products featuring its logo.
-
-
Leadership Development Programs 1 activity
- Running the Emerging Advocates ProgramOffers a structured capacity-building program that trains and supports individuals living with migraine to become effective advocates, including skill development and storytelling opportunities. Applications are open for a Fall 2026 cohort.
-
-
Uncategorized 6 activities
- Conducting the Migraine and Mental Health Connection SurveyConducted the 2022 Migraine and Mental Health Connection Survey, which revealed high comorbidity rates of anxiety, depression, and PTSD among migraine patients, contributing to understanding the intersection of mental health and migraine.
- Facilitating researcher access to the migraine patient communityProvides a mechanism for external researchers to submit survey requests and engage the migraine patient community in research studies, supporting broader scientific inquiry and patient-centered research design.
- Funding Global Patient Advocacy Coalition initiatives through grantsAwards grants totaling $157,196 to support the Global Patient Advocacy Coalition’s migraine education and advocacy initiatives, enabling expanded outreach and programming.
- Funding two-year headache and migraine research awardsFinances multi-year research projects through the Dodick Lighthouse Research Award program, which supports innovative studies in headache and migraine to improve diagnosis, treatment, and patient outcomes.
- Providing migraine education and support through the Global Patient Advocacy Coalition (GPAC)Delivers global migraine education and support via the Global Patient Advocacy Coalition (GPAC), including programs such as Migraine Fitness at Work. The organization spent $243,110 on this program in the reporting period.
- Providing symptom tracking guidance and toolsOffers educational resources on using headache journals and symptom tracking to identify migraine patterns, support diagnosis, and inform treatment decisions for individuals living with migraine.
-
financials · form 990 · fy2025
revenue
Total revenue$1.37M
Contributions & grants$1.37M100%
Program service revenue$00%
Investment income$10%
Other revenue$520
expenses
Total expenses$929K
Program expenses66%
Admin / overhead19%
Fundraising14%
Salaries & benefits$241K
Grants paid out$159K
Largest expense lineCompensation
balance sheet
Total assets$1.16M
Cash$1.15M
Investments$0
Liabilities$39K
Net assets$1.12M
Liquid reserves14.9 mo
5 years on record · 2020–2025 · YoY revenue +363.6%
leadership · form 990 part vii · fy2025
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| CARRIE HOWELL | CEO | 40 | $178K |
board members · 13
- AMYNAH PRADAM — DIRECTOR AT LARGE
- ANDREA HARRIOTT — DIRECTOR AT LARGE
- BYRON PITTS — DIRECTOR AT LARGE
- CHRISTINE LAY — CHAIR
- CLAIRE SANDOE — DIRECTOR AT LARGE
- LARRY NEWMAN — DIRECTOR AT LARGE
- NIM SINGH — VICE CHAIR
- RACHEL KOH — TREASURER
- RICHARD LIPTON — DIRECTOR AT LARGE
- ROMY JAMES — DIRECTOR AT LARGE
- ROYCE WARRICK — SECRETARY
- TESHAMAE MONTEITH — DIRECTOR AT LARGE
- TIA WILLIAMS — DIRECTOR AT LARGE
relationships · 14
Who they work with
- CHAMP Partner — Provides a Headache and Migraine Disease Language and Image Guide used in advocacy efforts.
- Facebook Partner — Hosts the Move Against Migraine support group on Facebook to connect patients and caregivers.
- Global Patient Advocacy Coalition Partner — GPAC is structured as a committee of the American Migraine Foundation and collaborates on global migraine education and advocacy efforts.
- HMPF Partner — Provides resources for filing insurance complaints related to migraine care.
- Headache on the Hill Partner — Collaborates on political advocacy opportunities for migraine patients.
- Move Against Migraine Network — Hosts a Facebook-based support group for people living with migraine.
- Move Against Migraine Network — Operates the Move Against Migraine Facebook group as a peer support network for people living with migraine.
- Move Against Migraine Network — Patient support community hosted on Facebook to connect individuals living with migraine.
- Move Against Migraine Partner — Hosts a Facebook support group for individuals living with migraine to connect and share experiences.
- Move Against Migraine Partner — Hosts a Facebook support group for people living with migraine to connect, share stories, and find community support.
- Move Against Migraine Partner — Hosts a Facebook-based support group for people living with migraine.
- Move Against Migraine Partner — Operates a Facebook support group in partnership with the Move Against Migraine community for people living with migraine.
- Neuro Blooms Partner — Partner organization that created and sells a migraine enamel pin, with all profits supporting the American Migraine Foundation's initiatives.
- Spreadshirt Partner — Partner for on-demand printing and shipping of merchandise.
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Complementary and Integrative Treatment Frameworkmethodology: complementary_and_integrative_therapiesBy combining complementary and integrative therapies with traditional treatments, the organization reduces migraine frequency and symptom impact, because multimodal approaches address diverse triggers and improve patient adherence and well-being.
- Education and Awareness to Reduce Stigmamethodology: awareness-and-supportBy increasing public and patient education about migraine as a neurological disease, the organization reduces stigma and improves care-seeking and disease management, because awareness fosters recognition, empathy, and self-advocacy.
- Integrated Health Education Modelmethodology: integrated_health_approachBy addressing migraine within a broader health context—particularly through integrating mental health and self-care into education—the organization improves quality of life and self-management, because migraine outcomes are influenced by interconnected biopsychosocial factors.
- Patient-Centered Research Integrationmethodology: patient_insight_driven_researchBy integrating patient perspectives and reported insights into research design and clinical trial development, the organization improves the relevance and impact of migraine treatments, because lived experience prioritizes outcomes that matter most to patients.
- Peer and Community Support as Empowermentmethodology: peer_support_networksBy fostering peer support networks and community-led engagement, the organization reduces isolation and builds collective resilience, because shared experience increases empowerment, empathy, and sustained advocacy.