irs program accomplishments · form 990 part iii · fy2022
What they reported doing
- #1 primary $12KPROVIDE INPATIENTS WITH AMENITIES DURING THEIR HOSPITAL STAY. IT INCLUDES PARKING, TV, CAFETERIA, GAS CARDS, AND ETC. PROVIDE OUTPATIENTS WITH GIFT CERTIFICATES. THIS INCLUDES AN APPROXIMATED 170 PATIENTS
- #2 $0CONTRIBUTE TO THE LOCAL CF FOUNDATION IN MEMORY OF THOSE WHO LOST THEIR BATTLE WITH CF.
named programs · 4 · from sources
What they call their work
Financial Assistance
Provides direct financial support to families with CF for groceries, insurance, rent, and other essential expenses
Gift Bag Program
Each CF patient admitted to Albany Medical Center receives a canvas tote with comfort items to make hospital stays more bearable
Hospital Room Expenses
Covers miscellaneous costs for patients during extended hospital stays, which can last weeks and occur multiple times per year
Special Projects
Includes seasonal gifts like holiday cookies and graduation checks for high school seniors with CF
activities · 8 groups
What they do
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Medical Travel and Housing Support 1 activity
- Covering hospital-related expenses for cystic fibrosis patients and familiesPays for non-medical hospital room expenses for cystic fibrosis patients, including TV and phone access, visitor parking vouchers, cafeteria gift cards, and hotel accommodations for family members near Albany Medical Center and other cities as needed.
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Hospital and Medical Center Support 1 activity
- Funding large-scale facility improvements for cystic fibrosis careFinances and supports major renovation projects at Albany Medical Center to enhance the inpatient experience, including the creation of The Living Room and Dawn’s Room, designed to improve comfort and support for cystic fibrosis patients and their families during extended stays.
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Cystic Fibrosis Research and Support Funding 1 activity
- Funding memorial contributions to cystic fibrosis organizationsMakes grant contributions to the local Cystic Fibrosis Foundation in memory of individuals who died from cystic fibrosis.
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Charity Golf Tournament Fundraiser 1 activity
- Organizing fundraising events to support cystic fibrosis patientsHosts annual fundraising events including the Lemon Classic golf tournament and the Emerald Eve gala, which have raised over $1 million cumulatively to support local cystic fibrosis patients through financial aid and improved hospital experiences.
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Therapeutic Comfort Kits and Room Makeovers 1 activity
- Providing comfort items and gift bags to cystic fibrosis patientsDistributes canvas tote bags filled with comfort items to cystic fibrosis patients admitted to Albany Medical Center, along with themed gift bags during holidays and special occasions. These include seasonal items such as tins of cookies in December and life-event gifts like graduation checks for high school seniors.
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Direct Financial Assistance to Individuals 1 activity
- Providing financial assistance to cystic fibrosis patients and familiesOffers direct financial aid to local cystic fibrosis patients and families facing economic hardship, supporting needs such as medical co-pays, mortgage payments, and other essential costs during health crises; allocates $100,000 annually for this purpose.
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Holiday and Seasonal Essentials Distribution 1 activity
- Providing holiday meals and food support to cystic fibrosis familiesOrganizes and delivers catered Thanksgiving meals (including gluten-free options) to cystic fibrosis families in the Capital Region, with free delivery or gift cards provided for those outside the area; coordinated through Mazzone Hospitality.
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Uncategorized 1 activity
- Hosting patient-centered events and celebrations at Albany Medical CenterOrganizes holiday and special occasion events including decorating the E-5 patient lounge, distributing seasonal surprises such as gift cards and cash during clinic visits, and launching mailed “Summer Surprise” packages with retail and fuel gift cards.
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financials · form 990EZ · fy2025
revenue
Total revenue$53K
Contributions & grants$53K100%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$90K
Program expenses100%
Admin / overhead0%
Fundraising0%
Salaries & benefits—
Grants paid out$85K
Largest expense lineOther
balance sheet
Total assets$220K
Cash$317K
Investments$0
Liabilities$0
Net assets$220K
Liquid reserves42.3 mo
5 years on record · 2020–2025 · YoY revenue -26.3%
relationships · 11
Who they work with
- Albany Medical Center Partner — Collaborates on patient support activities including lounge decoration and in-clinic surprises.
- Albany Medical Center Partner — Intended beneficiary institution where improvements to patient hospital stays are aimed.
- Albany Medical Center Partner — Partner hospital where CF patients receive gift bags and other support services
- Albany Medical Center Partner — Partner hospital where the Foundation provides gift bags, covers room expenses, funds renovations, and supports patients during admissions.
- Albany Medical Center Partner — Partnered to launch the Bead of Courage program.
- Angela Moore Partner — Partnered with nationally acclaimed jewelry designer Angela Moore to create a special theme bracelet commemorating the foundation's 13th anniversary.
- Hilton Garden Inn Partner — Hotel where the Foundation provides accommodations for family members of cystic fibrosis patients receiving treatment nearby.
- Kerianne Crandall Partner — Daughter of Donna M. Crandall; her athletic and musical events were a central inspiration for Donna's community involvement.
- Local CF Foundation Partner — Recipient of memorial contributions made by Donna M Crandall Foundation Inc in memory of individuals who died from cystic fibrosis.
- Mazzone Hospitality Partner — Partnered to cater and host pickup of Thanksgiving meals for CF families.
- National Heart, Lung, and Blood Institute Partner — Source of additional information on cystic fibrosis, linked as a reference
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Direct Financial Relief to Reduce Patient Burdenmethodology: financial_assistance_for_medical_hardshipBy providing direct financial assistance for medical and essential living expenses, the foundation reduces the financial stress on cystic fibrosis patients and families, enabling them to prioritize health and well-being over economic hardship.
- Holistic Support to Improve Quality of Lifemethodology: holistic_supportBy addressing both financial and practical burdens—such as through home renovations, holiday meals, and comfort items—the foundation enables cystic fibrosis patients and families to focus on well-being, dignity, and meaningful time together, beyond just medical treatment.
- Volunteer-Driven, Low-Cost Operational Modelmethodology: family-run-volunteer-modelBy operating as a family-run, volunteer-led organization with zero overhead costs, the foundation maximizes the impact of donor contributions, ensuring that resources go directly to patient and family support.