irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $87KSDMC SURROGATE DECISION MAKING PROGRAM - IS AN ALTERNATIVE TO THE COURT SYSTEM FOR INDIVIDUALS WHO LACK CAPACITY TO PROVIDE INFORMED CONSENT, DO NOT HAVE A LEGALLY AUTHORIZED DECISION MAKER TO ACT ON THEIR BEHALF AND ARE IN NEED OF A NON-EMERGENCY MAJOR MEDICAL PROCEDURES. SDMC ALSO HANDLES END-OF-LIFE DECISION MAKING FOR QUALIFYING INDIVIDUALS.
- #2 $64KOTHER
named programs · 14 · from sources
What they call their work
Benefit Advisement
Individualized guidance on public benefits including SSI/SSDI, Medicaid, Medicare, SNAP; helps consumers understand work incentives and financial planning.
Employment Services
Supports job seekers with disabilities in resume building, job search, interview skills, soft skills development, and workplace conduct.
Food Pantry / Essential Shelf
Provides shelf-stable food, fresh produce, and hygiene products to individuals and families experiencing food insecurity in the Capital Region.
Housing Services
Assists individuals with disabilities in finding and maintaining housing, including accessibility modifications, eviction prevention, and mediation.
Independent Living Skills Training
Consumer-directed training in daily living, financial literacy, communication, assistive technology, transportation, health management, and goal setting to promote autonomy.
Information and Referral
Core CIL service connecting individuals to community resources and support agencies across the Greater Capital Region.
Living Well in the Community
10-week peer-led workshop for people with disabilities and older adults focusing on health, goal setting, communication, self-advocacy, and community connection.
Olmstead Housing Subsidy (OHS)
Statewide rental subsidy and transitional housing support for high-need Medicaid beneficiaries transitioning from or at risk of nursing home placement.
Open Doors (MFP) Rebalancing Demonstration
Partnership program helping individuals transition from nursing homes and ICFs to community-based living.
Peer Counseling
One-on-one and group support led by trained Peer Navigators with lived disability experience to build confidence, self-determination, and systems navigation skills.
Pre-Employment Transition Services (Pre-ETS)
Federally funded program for students with disabilities ages 14-21, offering job exploration, work-based learning, post-secondary counseling, workplace readiness, and self-advocacy training.
Reentry Program
Supports justice-involved youth and adults with disabilities in transitioning back to the community, addressing housing, employment, and independent living needs.
Social Care Navigation Program
Connects Medicaid-enrolled individuals to housing, food, and transportation supports through the 1115 Waiver program.
Surrogate Decision-Making Committee (SDMC)
Authorized alternative to court-appointed guardianship; provides consent for non-emergency major medical treatment and end-of-life decisions for individuals with disabilities who lack capacity and have no legal decision-maker.
activities · 10 groups
What they do
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Emergency Rental Assistance and Eviction Prevention 2 activities
- Housing Support Services for People with DisabilitiesProvides comprehensive housing support including assistance with applications for private, HUD, and subsidized housing; tenant rights education; eviction prevention; mediation; accessibility assessments; home modifications; and access to rent and utility assistance resources.
- Rental Subsidy and Community Transition ProgramProvides rental subsidies requiring participants to pay 30% of their monthly income toward rent, and funds community transition services such as security deposits, moving expenses, utility payments, and household establishment purchases to support individuals with disabilities moving into independent living.
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Self-Directed Disability Support Services 2 activities
- Independent Living Services for People with DisabilitiesProvides comprehensive services to promote independent living for individuals with disabilities, including peer counseling, information and referral, independent living skills training, benefits advisement, and education on disability rights and responsibilities. Services are consumer-driven and based on self-identified goals.
- Open Doors (MFP) Rebalancing Demonstration Grant AdministrationAdministers the Open Doors Money Follows the Person (MFP) Rebalancing Demonstration Grant to provide direct support to individuals with disabilities transitioning from institutional settings such as nursing homes and intermediate care facilities to community-based living in the Capital District.
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Workforce Readiness Training 1 activity
- Employment and Pre-Employment Transition ServicesOffers employment support services including resume development, job search assistance, interview preparation, and soft skills training, as well as Pre-Employment Transition Services for students aged 14–21 with disabilities, delivering 15–20 hours of curriculum annually to prepare them for post-secondary education and the workforce.
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Food Distribution and Hunger Relief 1 activity
- Food Pantry and Nutrition Support ProgramOperates a food pantry Monday through Friday, 10:00am to 3:00pm, providing shelf-stable food, limited fresh produce and meats, and household hygiene products to individuals and families experiencing food insecurity in the Capital Region, in partnership with community groups such as Girl Scout Troop 1474.
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Disability Rights Advocacy & Self-Advocacy Empowerment 1 activity
- Individual and Systemic Advocacy for Disability RightsConducts individual and systemic advocacy to advance equal access, community inclusion, and civil rights for people with disabilities, including dispute resolution, self-advocacy coaching, and accompaniment during meetings.
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Self-Sufficiency Empowerment Workshops 1 activity
- Peer-Led Workshop for Self-Advocacy and Independent LivingOffers a 10-week peer-led workshop focused on goal setting, building support systems, communication skills, healthy eating, and self-advocacy for people with disabilities and older adults.
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Reentry Support Services 1 activity
- Reentry Support for Justice-Involved Individuals with DisabilitiesProvides reentry services to formerly incarcerated youth and adults with disabilities, offering assistance with housing, employment, independent living skills, vocational rehabilitation, and social support to promote successful community integration.
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Comprehensive Care Management Services 1 activity
- Social Care Navigation ProgramDelivers wraparound support services including rental and utility assistance, housing search support, home modifications, nutritious meal delivery, nutrition planning, grocery shopping support, cooking supplies, and transportation assistance to non-medical appointments for individuals with disabilities.
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Guardianship and Representative Payee Services 1 activity
- Surrogate Decision-Making Committee (SDMC) ProgramOperates a Surrogate Decision-Making Committee that provides legally authorized consent for non-emergency major medical treatment and end-of-life care for individuals lacking capacity and without legal decision makers, serving as an alternative to court-appointed guardianship.
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Uncategorized 1 activity
- Technology Investment for Remote Service DeliveryUsed CIL CARES Act funding to purchase laptops, printers, scanners, cellphones, and software to support remote service delivery and staff participation in trainings and inter-organizational meetings.
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financials · form 990 · fy2024
revenue
Total revenue$1.46M
Contributions & grants$1.10M76%
Program service revenue$318K22%
Investment income$37K3%
Other revenue$0
expenses
Total expenses$1.20M
Program expenses85%
Admin / overhead15%
Fundraising0%
Salaries & benefits$901K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$3.03M
Cash$1.07M
Investments$614K
Liabilities$1.03M
Net assets$2.01M
Liquid reserves16.8 mo
5 years on record · 2020–2024 · YoY revenue -2.8%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| LAUREL KELLEY | EXECUTIVE DI | 40 | $123K |
board members · 7
- DOUG HARRINGTON — VICE PRESIDE
- GINNY BARR — BOARD MEMBER
- LAUREN HARRINGTON — PRESIDENT
- MARK CARNEVALE — BOARD MEMBER
- MICHAEL PRINGLE — BOARD MEMBER
- MILLIE EPHRON — SECRETARY
- SHARON DAVIS — TREASURER
relationships · 9
Who they work with
- Capital Region Food Pantries Network — Member organization participating in a regional network of food pantries.
- Girl Scout Troop 1474 Partner — Collaborated with CDCI to develop the Food Pantry / Essential Shelf.
- Justice Center Government — Partner organization providing additional information about Surrogate Decision-Making Committee Services.
- Medicaid Government — Provides services through the Medicaid 1115 Waiver program, leveraging state and federal healthcare funding to deliver social support services.
- Ms. Ava Johnson Partner — Partnered with CDCI to develop the food pantry; member of Girl Scout Troop 1474.
- NYAIL (New York Association on Independent Living) Partner — Administers the Olmstead Housing Subsidy program in partnership with the Capital District Center for Independence Inc.
- New York Association of Independent Living Partner — Collaborates with CDCI to operate the Open Doors Transition Center and assist individuals transitioning to community-based living.
- Vocational Rehabilitation Government — Students in the Pre-ETS program must be potentially eligible for Vocational Rehabilitation services, indicating a functional linkage with state vocational rehabilitation programs.
- community partner agencies Partner — Collaborates with community partner agencies to refer individuals to appropriate services and resources.
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Consumer-Directed, Strength-Based Empowerment Modelmethodology: consumer_directedBy placing individuals with disabilities at the center of decision-making and building on personal strengths, we produce greater autonomy and long-term independence because self-direction increases engagement, dignity, and skill-building.
- Healthcare-Integrated Social Care via Medicaid Waivermethodology: healthcare_integrated_social_careBy embedding non-medical social services (housing, food, transportation) within healthcare delivery through Medicaid’s 1115 Waiver, we improve health outcomes and community integration because social determinants are treated as clinically relevant and addressable factors.
- Peer-Led Mutual Support Modelmethodology: peer_ledBy using peers with lived experience to lead workshops and mentoring, we produce deeper engagement and personal growth because shared experience fosters trust, relatability, and empowerment more effectively than professional-led models.
- Surrogate Decision-Making as an Alternative to Guardianshipmethodology: surrogate_decision_makingBy providing surrogate decision-making services, we enable timely medical and end-of-life decisions for individuals without legal decision-makers because it preserves autonomy and avoids the delays and loss of control associated with court-appointed guardianship.
- Systemic Rebalancing Toward Community-Based Caremethodology: rebalancingBy shifting long-term care funding and services from institutional settings to home and community-based alternatives, we increase independence and quality of life because community living supports autonomy and reduces unnecessary segregation.