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MASSENA INDEPENDENT LIVING CENTER INC

MASSENA, NY · EIN 161328750 · Form 990 · FY2023 · NTEE P80Z · Human Services · Medium ($1M-$10M) · milcinc.org
revenue
$2.5M
expenses
$2.4M
net assets
$1.8M
employees
44
program ratio
93%
mission · from form 990

ASSISTANCE FOR INDEPENDENT LIVING

profile · synthesized from sources

Massena Independent Living Center Inc (MILC) provides services that support people with disabilities in achieving independent living. The organization offers skills training, peer mentoring, benefits and health insurance enrollment assistance, housing support, and transition services for individuals leaving institutions. MILC operates primarily in northern New York counties, including St. Lawrence, Franklin, Jefferson, and Lewis, and emphasizes consumer control by employing people with disabilities in key roles.

named programs · 14 · from sources

What they call their work

Architectural Barrier Consults
Provides consultations for home and business modifications to improve accessibility, offered free or fee-for-service.
Assistive Technology
Helps individuals obtain, use, repair, and maintain assistive devices for greater independence at home.
Benefits Advisement
Assists with applying for and maintaining public benefits including SSI/SSDI, Food Stamps, TANF, and Veteran’s benefits.
Facilitated Enrollment Health Insurance Assistance
Provides enrollment support for public health insurance programs, especially for older adults and people with disabilities across four counties.
Home Health Care (Taking Control – CDPAS)
Provides consumer-directed personal attendant services in St. Lawrence and Franklin Counties through New York’s CDPAP program.
Housing Assistance
Supports individuals in finding accessible, affordable housing and accessing subsidies like Section 8; includes financial aid for at-risk individuals.
Independent Living Skills Training
Teaches daily living skills such as budgeting, meal prep, transportation, and self-advocacy, often led by peers with disabilities.
Individual and Systems Advocacy
Advocates for equal access and inclusion of people with disabilities in social, economic, educational, and legal systems.
Information and Referral
Connects individuals with community, local, state, and federal resources to support independent living decisions.
Institutional Transition Assistance (Open Doors)
Supports individuals transitioning from nursing homes, hospitals, or psychiatric centers to community-based living through discharge planning and resource coordination.
Loan Closet
Offers short-term loans of mobility and accessibility equipment such as wheelchairs, walkers, and shower benches.
Navigator Health Insurance Assistance
Offers certified one-on-one help enrolling in NYS of Health plans, including Medicaid, Essential Plan, and Qualified Health Plans.
Nutrition Outreach & Education Program (NOEP)
Helps low-income individuals and families in St. Lawrence and Franklin Counties apply for SNAP and access school meal programs.
Peer Mentoring
Facilitates peer-to-peer support among individuals with disabilities to share experiences and build self-determination.
activities · 13 groups

What they do

  • Public Benefits Navigation and Enrollment 2 activities
    • Benefits advisement and application support
      Offers advisement and direct assistance to help individuals apply for or maintain public benefits including SSI/SSDI, Food Stamps (SNAP), Medicaid, TANF, and Veteran’s benefits.
    • SNAP and nutrition program outreach and education
      Operates a SNAP outreach program that assists individuals and families with eligibility screening, application completion, and submission for food stamp benefits, while also promoting participation in the School Breakfast Program and Summer Food Service Program for children; includes a free confidential nutrition education program offering hands-on lessons, healthy meals, and physical activity education.
  • Facility Accessibility Improvements 1 activity
    • Architectural accessibility consultations
      Provides free or fee-for-service architectural barrier consultations to advise on accessibility modifications for homes and businesses to support independent living for people with disabilities.
  • Adaptive Equipment Provision 1 activity
    • Assistive technology support
      Provides support to individuals in securing, learning to use, repairing, and maintaining assistive technology devices that enhance independence and daily functioning.
  • Consumer-Directed Personal Care Administration 1 activity
    • Consumer Directed Personal Assistance Program (CDPAP) facilitation
      Acts as an approved facilitator for the Consumer Directed Personal Assistance Program (CDPAP) in partnership with Public Partnerships LLC (PPL), enabling individuals to hire, train, and manage their own personal attendants for home care services in St. Lawrence and Franklin Counties.
  • Comprehensive Care Management Services 1 activity
    • De-institutionalization and transition support
      Operates de-institutionalization programs including the Open Doors initiative to assist individuals transitioning from nursing homes, hospitals, psychiatric centers, and other institutional settings into community-based living in St. Lawrence, Jefferson, and Franklin Counties, with post-discharge support and participation in discharge planning meetings.
  • Workplace DEI Research and Training 1 activity
    • Disability awareness and workforce training
      Provides workshops and training for individuals and organizations on disability awareness, disability rights laws, independent living philosophy, and pre-employment/job readiness skills to build capacity across communities.
  • Disability Rights Advocacy & Self-Advocacy Empowerment 1 activity
    • Disability rights advocacy
      Conducts individual and systems-level advocacy to promote the inclusion of people with disabilities and improve enforcement of disability rights laws at federal, state, and local levels.
  • Health Insurance Enrollment Assistance 1 activity
    • Health insurance enrollment assistance
      Provides free, certified navigator and facilitated enrollment services to help individuals enroll in and renew public health insurance programs including Medicaid, Child Health Plus, Medicare Savings Programs, and Qualified Health Plans through the New York State of Health marketplace, with support available in-person, over the phone, at community sites, or via home visits.
  • Emergency Rental Assistance and Eviction Prevention 1 activity
    • Homelessness prevention and housing assistance
      Provides emergency financial assistance including rental arrears, security deposits, and rental support to individuals at or below 30% of Area Median Income facing eviction or unstable housing; supports access to accessible and affordable housing through applications for subsidized housing, low-income housing, and Section 8 vouchers.
  • Community Resource Navigation and Support Services 1 activity
    • Independent living services delivery
      Provides comprehensive independent living services to residents of St. Lawrence and Franklin Counties, NY through staffed offices in Massena and Malone, supporting individuals with disabilities in achieving self-determination and community integration.
  • Self-Sufficiency Empowerment Workshops 1 activity
    • Independent living skills training and peer mentoring
      Offers training in daily living skills such as budgeting, meal preparation, transportation planning, job seeking, and self-advocacy, often led by individuals with disabilities; facilitates peer mentoring to promote self-determination through shared lived experiences.
  • Intake and Referral Coordination 1 activity
    • Information and referral services
      Provides information and referral services to connect individuals with disabilities to local, state, and federal resources related to housing, education, employment, and other supports essential to independent living.
  • Durable Medical Equipment Loan Programs 1 activity
    • Loan closet for adaptive and durable medical equipment
      Operates a loan closet program providing free short-term loans of durable medical and adaptive equipment—including wheelchairs, walkers, shower benches, and canes—for up to 30 days to residents of St. Lawrence and Franklin Counties; also offers accessible recreational equipment for up to 10 consecutive days.
financials · form 990 · fy2023
revenue
Total revenue$2.48M
Contributions & grants$2K0%
Program service revenue$2.46M99%
Investment income$13K1%
Other revenue$2K
expenses
Total expenses$2.40M
Program expenses93%
Admin / overhead7%
Fundraising0%
Salaries & benefits$1.51M
Grants paid out$509K
Largest expense lineCompensation
balance sheet
Total assets$1.92M
Cash$1.09M
Investments$0
Liabilities$103K
Net assets$1.82M
Liquid reserves5.4 mo
5 years on record · 2019–2023 · YoY revenue -0.8%
leadership · form 990 part vii · fy2023

Who runs it

paid leadership · 1
NameTitleHours/wkCompensation
JEFF REIFENSNYDER EXEC DIR 40 $98K
board members · 7
  • BENJAMIN SCHWARTZ — SECRETARY
  • BENJAMIN YUGARTIS — TRUSTEE
  • CYNTHIA BROCKWAY — TRUSTEE
  • GAIL SANTIMAW — PRESIDENT
  • JUDITH ALDRICH — TREASURER
  • MARK CAMERON — TRUSTEE
  • ROBERT SHEPHERD — VICE PRESIDE
relationships · 12

Who they work with

  • Amazon Smile Partner — Partners with Amazon Smile to receive donor-referred contributions based on eligible purchases made through the platform.
  • Independent Living Centers Network — MILC identifies as a true Independent Living Center and follows network mandates regarding board composition and consumer representation.
  • Medicaid Government — Assists individuals with enrollment in Medicaid and related programs.
  • Medicare Savings Programs Government — Helps individuals apply for Medicare Savings Programs.
  • NYS Department of Health Government — Certifies MILC navigators to provide health insurance enrollment assistance through the NYS of Health marketplace.
  • New York Association on Independent Living Partner — Subcontracting partner through which MILC provides Open Doors Transition Services
  • New York State of Health Partner — Collaborates with the New York State of Health marketplace to provide enrollment assistance.
  • New York State of Health (NYSOH) Government — MILC employs NYSOH Navigators to assist with health insurance enrollment and renewal
  • Public Partnerships LLC (PPL) Partner — Collaborates with PPL as the statewide fiscal intermediary for the Consumer Directed Personal Assistance Program (CDPAP).
  • St. Lawrence Health Initiative, Inc. Funder — Provided grant funding to purchase accessible recreational equipment for loan.
  • USDA Government — Implements SNAP and SNAP-Ed programs funded by the USDA.
  • Western NY Independent Living (WNYIL) Partner — Co-facilitates CDPAP services with WNYIL across multiple counties in New York.
strategies · 4

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Client-Centered Access Model for Health and Nutrition Services
    methodology: client-centered outreach
    By delivering health insurance enrollment and nutrition education through client-centered, community-based, and experiential methods—including home visits, flexible hours, and food demonstrations—the organization improves access and outcomes because reducing logistical and informational barriers increases engagement and sustainable behavior change.
  • Consumer-Controlled Model of Independent Living
    methodology: consumer_controlled
    By centering decision-making authority with individuals with disabilities in all services and operations, the organization increases autonomy, self-sufficiency, and community integration because lived experience drives more relevant, effective, and dignified support.
  • Housing and Institutional Stability Intervention
    methodology: de-institutionalization through coordinated transition planning
    By preventing homelessness through rental assistance and supporting de-institutionalization via coordinated transition planning, the organization promotes community integration because stable housing and timely access to home-based care reduce systemic dependency and enable independent living.
  • Peer-Led Empowerment Model
    methodology: peer_mentoring_model
    By using peer-led instruction and mentoring, where individuals with disabilities teach and support one another, the organization fosters self-determination and skill acquisition because shared lived experience enhances trust, engagement, and relatability in learning.