named programs · 2 · from sources
What they call their work
Lap4Life Run at Chadwick Lake
Annual fundraising race event featuring a 4-mile run/walk, kids' fun run, and various team challenges to raise awareness and funds for desmoid tumors and organ donation.
Patient Story Sharing
Platform for patients and families affected by desmoid tumors and organ failure to share personal experiences, fostering community and awareness.
activities · 2 groups
What they do
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Cancer Research Funding 1 activity
- Funding desmoid tumor research and organ donationDirects all proceeds to the Desmoid Tumor Research Foundation and LiveOn NY to support research and organ donation efforts.
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Cancer Awareness and Education Initiatives 1 activity
- Increasing awareness of desmoid tumorsConducts programs to increase awareness of desmoid tumors.
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financials · form 990EZ · fy2018
revenue
Total revenue$89K
Contributions & grants$72K81%
Program service revenue$17K19%
Investment income——
Other revenue—
expenses
Total expenses$87K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$21K
Cash—
Investments—
Liabilities—
Net assets$21K
1 years on record · 2018–2018
leadership · form 990 part vii · fy2018
Who runs it
board members · 3
- BRIAN READE — VICE PRESIDENT/BOARD MEMBER
- MADDALENA CASABIANCA READE — PRESIDENT/DIRECTOR OF THE BOARD
- PAUL FRITZ — VICE PRESIDENT/BOARD MEMBER
relationships · 2
Who they work with
- Desmoid Tumor Research Foundation Partner — Receives funding from Lap4Life to support research and patient support initiatives for desmoid tumors.
- LiveOn NY Partner — Receives funding from Lap4Life to support organ and tissue donation awareness and recovery efforts.
strategies · 1
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Awareness-Driven Advocacy and Fundraisingmethodology: awareness_and_fundraisingBy combining fundraising with awareness campaigns, we advance research and support for desmoid tumors and organ transplantation because public understanding drives both donor engagement and patient support. Increasing awareness is a primary method to address the condition, as it leads to earlier diagnosis, improved care pathways, and sustained funding.