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Long Island Alzheimers and Dementia Center Inc

Westbury, NY · EIN 112926958 · Form 990 · FY2024 · NTEE G83Z · Voluntary Health Associations · Medium ($1M-$10M) · lidementia.org
revenue
$2.0M
expenses
$2.1M
net assets
$1.5M
employees
48
volunteers
97
program ratio
82%
mission · from form 990

TO HELP IMPROVE THE QUALITY OF LIFE FOR THOSE LIVING WITH ALZHEIMER'S DISEASE and other forms of dementia AND THEIR CARegIVERS.

profile · synthesized from sources

The Long Island Alzheimer's and Dementia Center improves quality of life for individuals living with Alzheimer's disease and other forms of dementia, as well as their caregivers. Based in Westbury, NY, the organization provides community-based programs including social day services, caregiver support groups, transportation, and in-home respite care. It has operated for over 30 years and focuses on maintaining dignity, independence, and safety while helping to delay nursing home placement.

named programs · 5 · from sources

What they call their work

Caregiver Support Groups
Facilitated weekly support groups for caregivers, including specialized groups for spouses and family members, offering emotional support, education, and coping strategies
In-Home Respite Solutions
Services that provide temporary relief for caregivers through in-home support, though specific models are not detailed on the website
LIAD Center Chorus ("Sharp Notes")
Music therapy program where participants with cognitive conditions engage in singing and perform in holiday concerts, promoting engagement and emotional well-being
LIAD Transportation
Bus service that transports participants to and from the center’s programs, enabling caregiver respite and ensuring access to social and therapeutic services
Social Day Program
Provides structured daytime activities including music, brain games, and social interaction for individuals with Alzheimer's and related dementias; includes lunch and transportation
activities · 6 groups

What they do

  • Caregiver Support for Dementia and Aging 3 activities
    • Operating information and resource referral services
      Runs an information line and produces a comprehensive resource directory listing local care facilities and professionals to assist individuals and families affected by dementia in accessing needed services and support.
    • Operating social adult day programs for individuals with Alzheimer's and dementia
      Provides a Social Model Day program available six days per week, offering structured activities and supportive care for individuals at all stages of Alzheimer's, including pre-diagnosis and end-of-life care. The program includes door-to-door transportation and a lunch program on Tuesdays and Thursdays to support participants' nutritional and social needs.
    • Providing in-home respite and caregiver support services
      Offers In-Home Respite Care, caregiver support groups, individual counseling (including virtual sessions), resource and referral assistance, and caregiver training to support families managing the challenges of dementia care. These services provide emotional support and practical strategies for daily caregiving.
  • Animal-Assisted Support Services 1 activity
    • Delivering therapeutic and enrichment programming using technology and animals
      Uses AI companion ElliQ and animatronic pets for pet therapy to reduce loneliness among seniors with dementia. Also offers volunteer-led entertainment and enrichment activities such as music, art, book clubs, and fitness classes to enhance participant engagement and well-being.
  • Volunteer Engagement and Capacity Support 1 activity
    • Engaging volunteers in program delivery and operations
      Utilizes volunteers in administrative roles (e.g., reception, phone answering), event support (e.g., registration), and direct participant engagement through company volunteer days and leading enrichment activities such as art and fitness. Also involves former family members of participants as ongoing program volunteers.
  • Live Music Performances for Seniors and Isolated Populations 1 activity
    • Hosting performance and cultural events for individuals with dementia
      Organizes a center chorus known as "Sharp Notes" that hosts holiday performances and concerts for individuals with cognitive conditions, fostering creative expression and social connection.
  • Charity Event Organization 1 activity
    • Organizing community fundraising and awareness events
      Hosts annual events such as the Alzheimer's All-Star Basketball Classic, Cocktails & Casino Night, and the "Run for Caregivers" to raise funds and awareness. Also facilitates community-initiated fundraisers, such as a 100-mile run and quarantine crocheting campaigns, and issues press releases about new programs and awards.
  • Alzheimer's Research and Support Services 1 activity
    • Replicating and sharing program models with other organizations
      Shares its successful programs and operational models with organizations across the United States, enabling replication of its services to expand support for individuals impacted by Alzheimer’s disease beyond Long Island.
financials · form 990 · fy2024
revenue
Total revenue$2.03M
Contributions & grants$1.36M67%
Program service revenue$544K27%
Investment income$114K6%
Other revenue$8K
expenses
Total expenses$2.10M
Program expenses82%
Admin / overhead5%
Fundraising13%
Salaries & benefits$1.41M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$2.27M
Cash$361K
Investments$977K
Liabilities$744K
Net assets$1.53M
Liquid reserves7.7 mo
5 years on record · 2020–2024 · YoY revenue +10.2%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 2
NameTitleHours/wkCompensation
Victoria Cohen Executive Dir. 40 $156K
Ellen Contarino Dir. of Finance 40 $126K
board members · 9
  • Brenda Jean Farrell — Trustee
  • Carmine Asparro — Treasurer
  • Gordon Thomas — Trustee
  • Jennifer Cona — Secretary
  • Jessica Moller — Chair
  • Matthew Glazer — Trustee
  • Meghan Schachtel — Trustee
  • Scott Berfas — Trustee
  • Todd Hesekiel — Vice Chair
relationships · 11

Who they work with

  • Alzheimer's Association Partner — Refers caregivers to the Long Island Alzheimer's and Dementia Center through its helpline.
  • Alzheimer’s Association Partner — Collaborates indirectly through referral pathways, as caregivers are directed to the Center via the Alzheimer’s Association helpline.
  • FSC Partner — Partner organization that supports the Run for Caregivers event.
  • Facebook Partner — Platform used to facilitate peer-to-peer fundraising campaigns such as Facebook Birthday Fundraisers
  • Long Island Alzheimer's & Dementia Center Network — Self-referential membership in its own network of services for individuals with dementia and their caregivers.
  • Long Island Press Partner — Senior leadership quoted in Long Island Press, indicating media engagement or partnership.
  • News12 Partner — Featured a fundraiser event organized for the LIAD Center, highlighting community support efforts.
  • Newsday Partner — Collaborated with the Associated Press on a published article about dementia prevalence cited by the organization.
  • Newsday Partner — Featured coverage of the LIAD Center's events and initiatives, including choral performances and awareness campaigns.
  • Newsday Partner — Featured in Newsday, indicating media partnership or public awareness collaboration.
  • Wells Fargo Partner — Partner financial institution for processing stock donations
strategies · 3

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Dignity-Centered Care to Support Independence and Delay Institutionalization
    methodology: dignity-centered care
    By designing hands-on programs that foster independence, dignity, and safety, the organization improves well-being for individuals with dementia, because maintaining autonomy enhances cognitive and emotional functioning and reduces the perceived need for nursing home placement.
  • Holistic Family Support with Integrated Caregiver Interventions
    methodology: holistic-family-support
    By providing concurrent support to individuals with dementia and their caregivers—including social work, peer groups, and mental health interventions—the organization improves family well-being, because reducing caregiver burden and isolation leads to more sustainable home-based care and better outcomes for both parties.
  • Structured Cognitive and Social Engagement to Improve Well-Being
    methodology: structured_day_programs
    By delivering structured day programs and music-based activities that promote cognitive stimulation and emotional connection, the organization enhances mood and mental clarity in individuals with dementia, because consistent, meaningful engagement slows cognitive decline and reduces behavioral symptoms.