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ALZHEIMER'S DISEASE AND RELATED DISORDERS NEW YORK CITY INC
NEW YORK, NY · EIN 133277408 · Form 990 · FY2024 · NTEE G83 · Voluntary Health Associations · Medium ($1M-$10M)
revenue
$5.8M
expenses
$6.3M
net assets
$7.3M
employees
44
volunteers
250
program ratio
72%
mission · from form 990

THE MISSION OF CARINGKIND IS TO CREATE, DELIVER, AND PROMOTE COMPREHENSIVE AND COMPASSIONATE CARE AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES AFFECTED BY ALZHEIMER'S DISEASE AND RELATED DEMENTIAS, AND TO ELIMINATE ALZHEIMER'S DISEASE THROUGH THE ADVANCEMENT OF RESEARCH. WE ACHIEVE OUR MISSION BY PROVIDING PROGRAMS AND SERVICES FOR INDIVIDUALS WITH DEMENTIA, THEIR FAMILY AND PROFESSIONAL CAREGIVERS; INCREASING PUBLIC AWARENESS; COLLABORATING WITH RESEARCH CENTERS; AND INFORMING PUBLIC POLICY THROUGH ADVOCACY.

profile · synthesized from sources

CaringKind provides care and support services for individuals and families affected by Alzheimer's disease and related dementias in New York City. The organization offers early-stage engagement programs, public education campaigns, culturally sensitive community outreach, and advocacy for improved care and research. It also promotes dementia awareness and supports research initiatives through partnerships with scientific and medical institutions.

irs program accomplishments · form 990 part iii · fy2024

What they reported doing

  1. #1 primary $1.06M
    EARLY-STAGE & ENGAGEMENT SERVICES: FOR INDIVIDUALS IN THE EARLY STAGES OF ALZHEIMER'S AND RELATED DEMENTIAS, CARINGKIND OFFERS PROGRAMS DESIGNED TO ENGAGE AND SUPPORT THEM THROUGH SMALL GROUP PROGRAMS. THESE SERVICES AIM TO HELP INDIVIDUALS MAINTAIN STIMULATION, FOSTER SOCIAL CONNECTIONS, AND ENHANCE OVERALL WELL-BEING.
  2. #2 $681K
    PUBLIC AWARENESS: VISIBILITY AND AWARENESS OF ALZHEIMER'S AND DEMENTIA CARE ARE ENHANCED THROUGH STRATEGIC MARKETING AND OUTREACH EFFORTS. CAREGIVERS AND FAMILIES ARE INFORMED ABOUT AVAILABLE RESOURCES AND SUPPORT TO HELP NAVIGATE THE COMPLEXITIES OF CARE. COMMUNITY ENGAGEMENT IS FOSTERED THROUGH MEDIA CAMPAIGNS, PUBLIC EVENTS LIKE THE ANNUAL WALK AND GALA, AND PARTNERSHIPS, ENSURING THE MESSAGE REACHES THOSE IN NEED. THESE EFFORTS HAVE EXPANDED THE IMPACT, RAISING AWARENESS AND DRIVING PARTICIPATION IN ESSENTIAL SERVICES.
named programs · 5 · from sources

What they call their work

Community Building & Special Populations
Provides culturally sensitive services and builds dementia-friendly communities to ensure equitable access for diverse populations regardless of background or identity.
Early-Stage & Engagement Services
Offers small group programs for individuals in the early stages of Alzheimer's and related dementias to maintain cognitive stimulation, foster social connections, and enhance well-being.
Public Awareness and Education
Runs education campaigns to increase public understanding of Alzheimer's disease, promote early detection, and inform families about available resources and support.
Public Policy Advocacy
Advocates for policies that improve dementia care, expand research funding, and ensure access to high-quality, cost-effective health and long-term care services.
Research Collaboration
Partners with research centers and scientists to advance Alzheimer's research, recruit study participants, and educate the public about clinical trial participation.
activities · 9 groups

What they do

  • Community Recovery Awareness Events 1 activity
    • Alzheimer's Walk and Brain Health Day
      Hosts the annual CaringKind New York City Alzheimer's Walk as a Brain Health Day event promoting movement, connection, education, and remembrance, aimed at raising awareness and supporting individuals and families impacted by dementia.
  • Charity Event Organization 1 activity
    • Athletes to End Alzheimer's Program
      Runs the Athletes to End Alzheimer's initiative, which organizes and supports participation in marathons, half-marathons, cycling events, and other athletic activities to raise awareness and funds for families affected by dementia.
  • Caregiver Support for Dementia and Aging 1 activity
    • Caregiver Support Workshops
      Offers structured small group programs including Partnering Together, a weekly workshop for new caregivers of people with mild cognitive impairment or early-stage dementia, and Passages, a 10-week support circle for caregivers managing advancing dementia, focused on emotional support and role adjustment.
  • Culturally Specific Support Services 1 activity
    • Culturally Sensitive Dementia Services
      Provides accessible, equitable, and culturally sensitive services to diverse populations affected by dementia, with programming designed to increase inclusivity across cultural, linguistic, socioeconomic, and demographic backgrounds.
  • Patient and Family Support Services 1 activity
    • Helpline and Care Navigation Services
      Operates a helpline staffed by trained navigators and specialists that provides up-to-date information, education, and emotional support on dementia care to individuals and families affected by Alzheimer's and related dementias.
  • Palliative and End-of-Life Care Education 1 activity
    • Palliative Care Training for Nursing Homes
      Implements a training and implementation program to adapt palliative care practices in nursing homes to improve quality of life and care for individuals with advanced dementia and their families.
  • Healthcare Policy Advocacy 1 activity
    • Policy Advocacy for Alzheimer's Care and Research
      Advocates for public policies that expand research funding, improve dementia care, ensure health and long-term coverage, and increase access to resources, including collaboration with organizations to influence systemic change and care standards.
  • Public Awareness and Educational Outreach 1 activity
    • Public Education and Awareness Campaigns
      Conducts education initiatives to increase public understanding of Alzheimer’s disease, emphasizing early detection, available resources, and societal impact, reaching millions through community and workplace outreach, media campaigns, and public events.
  • Alzheimer's Research and Support Services 1 activity
    • Research Collaboration and Participant Recruitment
      Supports Alzheimer's research by collaborating with local, national, and international research centers; recruiting participants; educating communities about research opportunities; and channeling restricted donations to research partners.
financials · form 990 · fy2024
revenue
Total revenue$5.80M
Contributions & grants$5.38M93%
Program service revenue$82K1%
Investment income$262K5%
Other revenue$75K
expenses
Total expenses$6.25M
Program expenses72%
Admin / overhead11%
Fundraising17%
Salaries & benefits$3.72M
Grants paid out$286K
Largest expense lineCompensation
balance sheet
Total assets$9.46M
Cash$1.09M
Investments$5.28M
Liabilities$2.21M
Net assets$7.25M
Liquid reserves12.2 mo
6 years on record · 2019–2024 · YoY revenue -39.3%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 6
NameTitleHours/wkCompensation
ELEONORA CARMEN TORNATORE PRESIDENT & CEO 44 $302K
ALEX WONG CHIEF FINANCIAL OFFICER 41 $169K
STEPHANI L SHIVERS CIO & VP PROGRAM DEVELOPMENT 32 $166K
PEGGY CHU SR. VP, CHIEF OPERATIONS OFFICER 45 $159K
EDWARD CISEK CHIEF GRANTS & EVALUATION OFFICER 40 $156K
ANDREA TALLENT SPIVAK CHIEF DEVELOPMENT OFFICER 40 $153K
board members · 19
  • ALISA KAUFFMAN DMD PC — DIRECTOR
  • BAL AGRAWAL STARTED 625 — DIRECTOR
  • BETSY BILLARD ENDED 924 — DIRECTOR
  • BETTY J BRENNAN — SECRETARY
  • ELAINE THOMAS ENDED 625 — DIRECTOR
  • GAYATRI DEVI MD MS FAAN — DIRECTOR
  • JANE DYSTEL STARTED 1124 — DIRECTOR
  • JEFFREY N JONES — CO-CHAIR
  • JOANNA PENA-BICKLEY — DIRECTOR
  • JOE FISHER — DIRECTOR
  • JOHN A MOORE — DIRECTOR
  • JONATHAN S HENES — DIRECTOR
  • LINDA LAGORGA — CO-CHAIR
  • MARK ZURACK — DIRECTOR
  • MEGHANN GILL — DIRECTOR
  • MICHAEL FERIK STARTED 625 — DIRECTOR
  • NIMESH UDESHI — DIRECTOR
  • PATRICK J DOLAN — DIRECTOR
  • PAULINE YEUNG-HA — DIRECTOR
relationships · 5

Who they work with

  • CaringKind Partner — Co-hosts the Alzheimer's Walk and Brain Health Day in partnership with ALZHEIMER'S DISEASE AND RELATED DISORDERS NEW YORK CITY INC.
  • CaringKind Partner — Initiator and organizer of the Athletes to End Alzheimer's program
  • Google Partner — Uses Google AdSense Advertising and Google Analytics to compile data on user interactions and serve targeted ads.
  • MedicAlert® Partner — Collaborates on the MedicAlert® NYC Wanderer’s Safety program to help prevent people with Alzheimer's from becoming lost and improve caregiver peace of mind.
  • Research Centers and Scientists Partner — Collaborates with research centers and scientists in New York City, nationally, and internationally to advance Alzheimer's research and recruit study participants.
strategies · 4

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Continuum of Care Approach
    methodology: continuum-of-care
    By providing continuous support throughout all stages of the caregiving journey, the organization sustains engagement and adapts to evolving needs over time, because longitudinal alignment with caregiver development improves coping, preparedness, and service utilization.
  • Culturally Responsive Care Framework
    methodology: culturally_sensitive_care
    By delivering dementia care in culturally sensitive and accessible ways, the organization improves engagement and equity in outcomes across diverse populations, because cultural relevance increases trust, comprehension, and appropriateness of care interventions.
  • Individualized Caregiver Coaching
    methodology: individual_caregiver_coaching
    By offering personalized dementia coaching, the organization helps caregivers manage emotional stress and behavioral challenges more effectively, because tailored skill-building increases confidence, reduces burnout, and improves care quality.
  • Peer Support Model
    methodology: peer_support_model
    By facilitating peer support groups where caregivers share experiences and emotions, the organization reduces caregiver isolation and fosters emotional resilience, because shared lived experience builds trust and mutual understanding that professional-led interventions alone may not achieve.