irs program accomplishments · form 990 part iii · fy2025
What they reported doing
- #1 primary $2.04MPATIENT SERVICES AND EDUCATIONAL PROGRAMS - APDA AIMS TO SUPPORT EVERY PERSON AND EVERY FAMILY IMPACTED BY PARKINSON'S. THROUGH ITS NATIONWIDE SYSTEM OF CHAPTERS, INFORMATION & REFERRAL (I&R) CENTERS, AND COMMUNITY PARTNERS. APDA UNIQUELY DELIVERS INFORMATION, EDUCATION, AND SUPPORT SERVICES TO ANYONE WITH PARKINSON'S DISEASE AND THEIR FAMILIES EACH DAY. 17 INFORMATION AND REFERRAL CENTERS ARE GRANT FUNDED ALONG WITH COMMUNITY GRANTS ACROSS THE US TO EXPAND THE REACH IN UNDERSERVED COMMUNITIES. APDA CONDUCTED OVER 35 PATIENT EDUCATION WEBINARS VIRTUALLY AND IN PERSON REGARDING EDUCATION ON TOPICS THAT ADDRESS THE SYMPTOMS, TREATMENTS, AND CHALLENGES OF LIVING WITH PARKINSON'S DISEASE. APDA OFFERED MORE THAN 30 NATIONAL SPECIALIZED PROGRAMS "PRESS", PARKINSON'S ROADMAP FOR EDUCATION AND SUPPORT, PRESS ON, AND CARE PARTNER CONNECTION IN 15 STATES.
- #2 $1.11MRESEARCH - APDA PROUDLY INVESTS IN EIGHT CENTERS FOR ADVANCED RESEARCH AND SUPPORTS GRANTS TO FUND THE MOST PROMISING SCIENCE FOCUSED ON DISCOVERING THE CAUSE(S) AND FINDING THE CURE FOR PARKINSON'S DISEASE. SINCE ITS FOUNDING IN 1961, APDA HAS BEEN A FUNDING PARTNER IN MANY OF THE MAJOR PD SCIENTIFIC BREAKTHROUGHS.
named programs · 5 · from sources
What they call their work
Care Partner Connection
Specialized program supporting caregivers of individuals with Parkinson's disease
Centers for Advanced Research
Network of eight research centers funded by APDA to advance scientific understanding and discovery of causes and cures for Parkinson's disease
Information & Referral (I&R) Centers
Grant-funded centers offering information, education, and support services to individuals affected by Parkinson's disease across the U.S.
PRESS - Parkinson's Roadmap for Education and Support Services
National support group program providing education and support to people with Parkinson's disease and their families in multiple states
Patient Education Webinars
Virtual and in-person educational sessions covering symptoms, treatments, and challenges of living with Parkinson's disease
activities · 2 groups
What they do
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Parkinson's Disease Research and Support 2 activities
- National patient education programsConducted over 25 national webinars and virtual education sessions annually on Parkinson's disease, reaching over 100,000 individuals collectively; topics include symptoms, treatments, and daily challenges of living with Parkinson's.
- Specialized national support programsOffers more than 30 national specialized programs such as PRESS, Parkinson’s Roadmap for Education and Support, PRESS ON, and Care Partner Connection across 15 states, including a national support group program available in 26 markets.
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Genetic and Neurological Disease Research Funding 1 activity
- Funding Parkinson's disease researchFunds eight Centers for Advanced Research and awards grants to support scientific research aimed at discovering the causes of and finding a cure for Parkinson's disease.
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financials · form 990 · fy2025
revenue
Total revenue$12.09M
Contributions & grants$12.05M100%
Program service revenue$00%
Investment income$115K1%
Other revenue$-73K
expenses
Total expenses$8.24M
Program expenses76%
Admin / overhead8%
Fundraising16%
Salaries & benefits$3.00M
Grants paid out$1.67M
Largest expense lineCompensation
balance sheet
Total assets$35.25M
Cash$15.39M
Investments$11.03M
Liabilities$3.70M
Net assets$31.55M
Liquid reserves38.5 mo
5 years on record · 2019–2025 · YoY revenue -6.5%
leadership · form 990 part vii · fy2025
Who runs it
paid leadership · 10
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| LESLIE A CHAMBERS | PRESIDENT/CEO | 40 | $409K |
| MICHELLE MCDONALD | CHIEF OPERATIONS OFFICER | 40 | $283K |
| REBECCA GILBERT | CHIEF MISSION OFFICER | 32 | $250K |
| HEATHER ANN HAYS | VP, DEVELOPMENT | 40 | $245K |
| ELOISE CAGGIANO | VP, DEVELOPMENT/MKTG & COMM | 40 | $209K |
| JEAN ALLENBACH | REGIONAL DIRECTOR | 40 | $194K |
| WILLIAM PATJANE | REGIONAL DIRECTOR | 40 | $194K |
| CATHERINE KRANE | REGIONAL DIRECTOR | 40 | $189K |
| ROSA PENA | VP PROGRAM AND SERVICES | 40 | $175K |
| ANNE HUBBARD | CHIEF PUBLIC POLICY OFFICE | 40 | $128K |
board members · 11
- ADALYNN E HARRIS PHD — DIRECTOR
- BERNARD BATTISTA — CHAIRMAN
- DAVID G STANDAERT MD PHD — DIRECTOR
- DONNA JC FANELLI DNP — VICE CHAIR
- ELENA MAESTRONE IMPERATO — SECRETARY
- J ZOE BECKERMAN — EXECUTIVE COMMITTEE MEMBER
- LISA ESPOSITO DVM — DIRECTOR
- MARIO J ESPOSITO JR — DIRECTOR
- PATRICK MCDERMOTT — TREASURER
- SALLY ANN ESPOSITO BROWNE — DIRECTOR
- THOMAS K PENETT ESQ — EXECUTIVE COMMITTEE MEMBER
relationships · 5
Who they work with
- APDA Network — Local chapters operate under the APDA national network.
- Centers for Advanced Research Partner — Funds eight Centers for Advanced Research focused on Parkinson's disease.
- Grady Health System Partner — Integrated food prescriptions into primary care
- Strategic Mission Priorities Partner — Local chapters organized around strategic mission priorities.
- support.apdaparkinson.org Partner — Online donation platform used to process contributions to local chapters.
strategies · 2
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Chapter-Based Support Networkmethodology: network_based_service_deliveryBy leveraging a decentralized network of local chapters and community partners, the organization delivers tailored information, education, and support services to people with Parkinson’s and their families, because localized delivery increases accessibility, relevance, and engagement in diverse communities.
- Support-While-Awaiting-Cure Modelmethodology: immediate_support_while_awaiting_cureBy funding research and providing immediate resources and support, the organization enables individuals with Parkinson’s to live fully despite the absence of a cure, because addressing both medical advancement and quality of life concurrently produces better holistic outcomes for patients and families.