named programs · 2 · from sources
What they call their work
Care Coordination Organization/Health Homes (CCO/HH)
Provides comprehensive, conflict-free care management for individuals with I/DD across New York State, coordinating medical, behavioral, housing, employment, and community services through person-centered Life Plans.
Health Information Technology Infrastructure
Deploys secure, integrated data systems connecting to Regional Health Information Organizations (RHIOs) to enable real-time response to hospitalizations and support timely transitions of care.
activities · 5 groups
What they do
-
Disability Rights Advocacy & Self-Advocacy Empowerment 2 activities
- Advocacy for workforce stability and care continuityAdvocates for inclusion in Targeted Inflationary Increase funding and promotes legislation to strengthen workforce capacity, ensuring continuity of care and stability for agencies providing services to individuals with intellectual and developmental disabilities.
- Public policy and legislative advocacyAdvocates for public awareness and understanding of the needs of individuals with I/DD for community-based services, promotes the interests of service providers, and collaborates with other organizations to advance the cause of individuals with intellectual and developmental disabilities.
-
-
Supported Employment for Developmental Disabilities 1 activity
- Capacity-building for care coordination organizationsActs as an association that supports agencies and organizations engaged in care coordination, care management, and managed care for individuals with intellectual and developmental disabilities, fostering collaboration and shared standards.
-
-
Data & Technology Capacity Building 1 activity
- Data analytics for population health improvementUses technology and analytical tools to aggregate data from multiple sources to identify opportunities for population health improvement, implement quality improvements, and address gaps in services for individuals with intellectual and developmental disabilities.
-
-
Health Information Exchange Support 1 activity
- Health Information Technology infrastructure for care coordinationDeveloped and maintains a Health Information Technology infrastructure that supports care coordination, including integration with Regional Health Information Organizations (RHIOs) to enable real-time response to emergency room visits and hospitalizations, ensuring safe transitions of care.
-
-
Residential Support for Developmental Disabilities 1 activity
- Statewide care coordination for individuals with I/DDProvides the only statewide care coordination function in New York for individuals with intellectual and developmental disabilities (I/DD), enabling access to the Medicaid waiver. Coordinates services for over 135,000 individuals with I/DD, including preventive care to avoid hospitalization, homelessness, and other crises.
-
financials · form 990 · fy2024
revenue
Total revenue$192K
Contributions & grants$192K100%
Program service revenue$00%
Investment income$00%
Other revenue$0
expenses
Total expenses$148K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits$0
Grants paid out$0
Largest expense lineProfessional Fees
balance sheet
Total assets$111K
Cash$74K
Investments$0
Liabilities$1K
Net assets$110K
Liquid reserves6.0 mo
2 years on record · 2023–2024 · YoY revenue +15.8%
leadership · form 990 part vii · fy2024
Who runs it
board members · 8
- ALICIA FELLOWS — BOARD MEMBER
- CATHERINE VARANO — BOARD MEMBER
- DEAN JOHNSTON — TREASURER
- JAIME MADDEN — BOARD MEMBER
- KATE WAGNER — SECRETARY
- NICK CAPPOLETTI — PRESIDENT
- PATRICIA KENNEDY — VICE PRESIDENT
- YOEL BERNATH — BOARD MEMBER
relationships · 15
Who they work with
- AGENCIES AND ORGANIZATIONS ENGAGED IN CARE COORDINATION, CARE MANAGEMENT AND MANAGED CARE Network — Network of member agencies and organizations providing care coordination and management services for individuals with intellectual and developmental disabilities.
- Advance Care Alliance Network — Member of the Care Management Alliance of New York, Inc.
- Aileen Gunther Government — Assemblywoman Aileen Gunther, Chair of the Assembly Committee on Mental Health, is referenced in connection with state-level policy engagement.
- Care Coordination Organization/Health Homes (CCO/HHs) Network — Network of organizations across New York State through which the alliance operates to support individuals with I/DD.
- Care Design NY Network — Member of the Care Management Alliance of New York, Inc.
- Centers for Medicare and Medicaid Services Government — Approved New York State’s expansion of the Health Home Care Management program to serve individuals with I/DD.
- John W. Mannion Government — Senator John W. Mannion, Chair of the Senate's Developmental Disabilities Committee, is referenced in connection with state-level policy engagement.
- LIFEPlan CCO Network — Member of the Care Management Alliance of New York, Inc.
- New York State Department of Health Government — Co-designed and approved the Care Coordination Organization/Health Homes model for individuals with I/DD.
- New York State Office for People With Developmental Disabilities Government — Co-designed and approved the Care Coordination Organization/Health Homes model for individuals with I/DD.
- Person Centered Services Network — Member of the Care Management Alliance of New York, Inc.
- Prime Care Coordination Network — Member of the Care Management Alliance of New York, Inc.
- Southern Tier Connect Network — Member of the Care Management Alliance of New York, Inc.
- Thomas J. Abinanti Government — Assemblyman Thomas J. Abinanti, Chair of the Assembly Committee on Disabilities, is referenced in connection with state-level policy engagement.
- Tri-County Care Network — Member of the Care Management Alliance of New York, Inc.
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Advocacy Through Civic Engagementmethodology: civic-engagementBy facilitating direct communication between individuals with I/DD and elected representatives, the organization increases civic participation and policy responsiveness because lived-experience testimony shifts decision-maker perspectives and strengthens self-advocacy capacity.
- Association Model for Systemic Coordinationmethodology: association_modelBy operating as an association model, the organization strengthens the collective capacity of care management agencies across New York because shared infrastructure, standards, and advocacy amplify systemic effectiveness beyond what individual providers could achieve alone.
- Conflict-Free Care Management to Prioritize Individual Needsmethodology: conflict_free_case_managementBy separating case management from service provision, care plans are designed to reflect the individual’s goals rather than provider incentives, because removing institutional conflicts of interest enables truly person-centered decision-making.
- Integrated Care Coordination for Complex Needsmethodology: integrated_care_coordinationBy replacing fragmented service models with a comprehensive, integrated care coordination approach, the organization improves outcomes for individuals with intellectual and developmental disabilities because holistic planning across medical, behavioral, housing, and community supports addresses the full spectrum of social and clinical determinants in a unified way.
- Person-Centered Life Planningmethodology: person_centered_planningBy using person-centered planning processes, care coordination is tailored to individual goals and values across health, behavioral, and community domains, because engaging individuals and families as active decision-makers leads to more relevant, sustainable, and dignified support plans.