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NEW YORK CITY HEMOPHILIA CHAPTER INC
NEW YORK, NY · EIN 261915425 · Form 990 · FY2024 · NTEE G194 · Voluntary Health Associations · Small ($100K-$1M)
revenue
$528K
expenses
$481K
net assets
$276K
employees
0
program ratio
86%
mission · from form 990

THE NEW YORK CITY HEMOPHILIA CHAPTER (NYCHC) IS A NOT FOR PROFIT 501(C)(3) ORGANIZATION INCORPORATED IN 2009 TO ADDRESS THE NEEDS OF THE BLEEDING DISORDER COMMUNITY IN THE GREATER NEW YORK CITY AREA. NYCHC'S MISSION IS TO FOSTER A SENSE OF COMMUNITY AMONGST PEOPLE AFFECTED BY BLEEDING DISORDERS, AND TO ASSIST THEM AND THEIR FAMILIES THROUGH INFORMATION, EDUCATION, ADVOCACY, SHARED EXPERIENCES AND COMMUNITY SUPPORT.

profile · synthesized from sources

New York City Hemophilia Chapter (NYCHC) is a nonprofit organization established in 2009 to support individuals and families affected by bleeding disorders in the greater New York City area. The organization promotes community, education, advocacy, and mutual support among those impacted by hemophilia and related conditions. It serves as a resource hub and support network for the local bleeding disorders community.

irs program accomplishments · form 990 part iii · fy2024

What they reported doing

  1. #1 primary $0
    N/A
  2. #2 $0
    N/A
named programs · 2 · from sources

What they call their work

Advocacy
Engages in advocacy efforts to promote the needs and rights of the bleeding disorder community at local and state levels
Community Support and Education
Provides information, educational resources, and peer support networks for individuals and families living with bleeding disorders
activities · 1 group

What they do

  • Bleeding and Blood Disorder Support Services 1 activity
    • Provides information, education, and community support for bleeding disorder patients
      Offers information, education, advocacy, and community support services to individuals and families affected by bleeding disorders in the greater New York City area.
financials · form 990 · fy2024
revenue
Total revenue$528K
Contributions & grants$00%
Program service revenue$528K100%
Investment income$2840%
Other revenue$0
expenses
Total expenses$481K
Program expenses86%
Admin / overhead10%
Fundraising4%
Salaries & benefits$181K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$298K
Cash$192K
Investments$0
Liabilities$22K
Net assets$276K
Liquid reserves4.8 mo
2 years on record · 2020–2024 · YoY revenue -10.5%
leadership · form 990 part vii · fy2024

Who runs it

board members · 5
  • DR REGINA LEGERE-BUCCELLATO — BOARD MEMBER
  • JEFF LOUISOT — BOARD MEMBER
  • JULIA GOLIER — BOARD MEMBER
  • KURT WIESENMAIER — BOARD MEMBER
  • MIKE GULBIN — TREASURER
strategies · 2

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Education as Empowerment
    methodology: education_and_information_outreach
    By providing targeted education and information to individuals and families affected by bleeding disorders, we increase their capacity to manage health effectively, because knowledge reduces fear, improves treatment adherence, and enables informed decision-making.
  • Peer-Powered Community Support
    methodology: peer_powered_support
    By facilitating peer engagement and shared experiences among individuals affected by bleeding disorders, we foster community and emotional resilience, because lived-experience connections increase trust, reduce isolation, and improve long-term coping outcomes.