irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $30KCOMPREHENSIVE CARE FOR HEMOPHILIA PREVENTION OF COMPLICATIONS & MORBIDITY OF HEMOPHILIA, SERVICES TO WOMEN WITH CONGENITAL BLEEDING DISORDERS.
- #2 $124KPUBLIC EDUCATION INCLUDES COMMUNITY, PROFESSIONAL, SCHOOL, PATIENT AND PATIENT FAMILY EDUCATION.
named programs · 5 · from sources
What they call their work
Comprehensive Care Program
Delivers integrated, multidisciplinary care for individuals with bleeding disorders, including medical providers, nurses, physical therapists, dentists, geneticists, dietitians, social workers, and pharmacists under one clinical roof to streamline treatment and improve outcomes.
Discovery and Innovation Award
Annual grant program supporting basic, translational, and clinical research on hemophilia and related disorders, with a focus on health equity, training, and collaboration with Hemophilia Treatment Centers.
Health Mentors Program
Interprofessional education initiative pairing healthcare students with patients who have bleeding disorders to foster empathy, improve clinical understanding, and enhance patient-centered care.
Home Therapy Program
Enables patients to self-administer clotting factor treatments at home with clinical support, training, and monitoring to promote independence and timely care.
Public and Professional Education
Offers community outreach, patient and family education, school-based programs, and professional training to increase awareness and knowledge about bleeding disorders and their management.
activities · 10 groups
What they do
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Bleeding and Blood Disorder Support Services 6 activities
- Conduct public and professional education initiativesDelivers public education programs targeting communities, healthcare professionals, schools, patients, and families about bleeding and clotting disorders to improve awareness and care.
- Fund and support patient participation in research studiesOffers patients opportunities to participate in research studies integrated with clinical care to advance understanding of bleeding disorders and improve health outcomes.
- Operate a Hemophilia Treatment Center providing comprehensive clinical careProvides integrated, multidisciplinary diagnostic and treatment services for individuals with hemophilia and other congenital bleeding disorders across Western New York, serving both pediatric and adult patients at a single clinical location in Buffalo. Care includes medical providers, nurses, physical therapists, dentists, geneticists, dietitians, social workers, and pharmacists.
- Operate an in-house pharmacy for hematology medication managementManages an in-house pharmacy staffed by a clinical pharmacist specialist in hematology/oncology that participates in comprehensive care visits and supports medication management for patients with bleeding disorders.
- Provide financial and educational assistance to patients and familiesOffers financial and educational support to individuals and families affected by bleeding and clotting disorders, including assistance with advanced education and training to improve quality of life and access to health insurance.
- Provide lifelong patient and family education and supportOffers ongoing education to patients and families about diagnosis, medical management, treatment, and life stage transitions related to bleeding disorders, including expert-led educational programs on medical topics, insurance, stress management, and wellness.
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Genetic and Neurological Disease Research Funding 2 activities
- Fund patient attendance at national educational meetingsProvides funding for patients to attend the National Hemophilia Foundation Annual Meeting to support peer connection, education, and community engagement.
- Fund research to improve outcomes in hemophilia and related disordersFunds basic, translational, and clinical research projects aimed at improving health outcomes and preventing complications of hemophilia and other hemostatic or thrombotic disorders, including requiring progress reporting and hosting an annual symposium for funded researchers.
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Healthcare Education Scholarships and Fellowships 1 activity
- Administer academic scholarship programsAnnually awards academic scholarships to patients affiliated with the Hemophilia Treatment Center and to individuals pursuing degrees in healthcare fields who will interact with patients who have bleeding and clotting disorders.
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Healthcare Policy Advocacy 1 activity
- Advocate for policy changes affecting the bleeding disorders communityOrganizes advocacy efforts including annual trips to Albany and participation in federal advocacy events in Washington DC, where patients and staff meet with legislators to discuss policy issues; supported passage of the Accumulator Bill (S.5299-A) in New York State.
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Telehealth and Urgent Care Access 1 activity
- Deliver home therapy and telemedicine services for bleeding disorder patientsOperates a home therapy program enabling patients to self-administer clotting factor infusions at home, and provides telemedicine consultations with medical providers, nurses, nutritionists, geneticists, and social workers via secure audio and video platforms.
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Inclusive Social & Recreational Events 1 activity
- Facilitate community connection and recreational opportunitiesHosts social events for members of the bleeding disorders community and collaborates with specialized medical summer camps to provide safe recreational opportunities for children with bleeding disorders.
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Comprehensive Women's Health Services 1 activity
- Host a monthly Heavy Period ClinicOperates a monthly clinic that brings together hematology and gynecology specialists to diagnose and treat individuals with heavy menstrual bleeding, including evaluation for underlying bleeding disorders.
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Medical Research Funding 1 activity
- Host and support hemostasis and thrombosis researchHosts the Hemostasis Thrombosis Research Symposium and supports research through the Discovery & Innovation Research Awards program, which plans to award up to two grants annually.
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Diagnostic Testing and Imaging Services 1 activity
- Operate an on-site, CLIA-certified hemostasis laboratoryRuns a specialized thrombosis lab that provides rapid, on-site diagnostic testing for bleeding and clotting disorders, including rare clotting factor deficiencies, with turnaround times up to two hours.
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Healthcare Professional Recognition Programs 1 activity
- Recognize collaborative community impactRecognized for collaboration with the University at Buffalo that contributed to improved community outcomes in bleeding and clotting disorder care.
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financials · form 990 · fy2024
revenue
Total revenue$42.71M
Contributions & grants$16K0%
Program service revenue$41.22M97%
Investment income$1.43M3%
Other revenue$37K
expenses
Total expenses$45.91M
Program expenses66%
Admin / overhead34%
Fundraising0%
Salaries & benefits$2.98M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$27.41M
Cash$2.56M
Investments$13.35M
Liabilities$3.41M
Net assets$24.01M
Liquid reserves4.2 mo
5 years on record · 2020–2024 · YoY revenue +14.2%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 9
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| THOMAS GREICO | CEO | 38 | $237K |
| RYAN HARE | PHARMACIST | 38 | $192K |
| GERALD IRONS | MEDICAL DIRECTOR | 38 | $134K |
| EMILY SKINNER | NURSE PRACTIONER | 38 | $120K |
| MICHELLE L DUNN | CFO | 30 | $117K |
| ANGELA CIRAOLO | NURSE | 38 | $111K |
| JULIA THIEL | NURSE | 40 | $110K |
| ADAM KOTOWSKI | MEDICAL DIRECTOR | 8 | $105K |
| JOANNE RISO | NURSE | 40 | $102K |
board members · 11
- ASHLEY LONG — SECRETARY
- CLARE HUNTER — BOARD MEMBER
- DR MARCIA GELLIN ED D — VICE PRESIDENT
- ELIZABETH MCNAMARA — BOARD MEMBER
- GEORGE ANDERSON — BOARD MEMBER
- KATIE HOLMBERG — BOARD MEMBER
- LALARUKH KHAN AFTAB — BOARD MEMBER
- MARY COMERFORD — BOARD MEMBER
- MARY HAGGERTY — ASSISTANT VICE PRESIDENT
- RALPH M JESWALD — TREASURER
- THOMAS LONG — PRESIDENT
relationships · 15
Who they work with
- CLIA Government — CLIA-certified laboratory providing specialized diagnostic testing for bleeding and clotting disorders.
- CMS (Centers for Medicare & Medicaid Services) Government — Provider of federal consumer resources and complaint support regarding surprise medical bills under the No Surprises Act.
- Change Healthcare Partner — Partner organization affected by a cyberattack, prompting a data breach notice shared through Western New York BloodCare.
- Children’s Hospital of Buffalo Partner — Hosted a pediatric satellite location for hemophilia care starting in 1984.
- D’Youville University Partner — Collaborates with WNY BloodCare on pharmacy administration and clinical education programs.
- Health Resources & Services Administration Government — Aligns research funding priorities with HRSA-designated diagnoses and serves HRSA Region II.
- NYS Consumer Assistance Program Government — State-level program offering further assistance to consumers on medical billing issues.
- National Hemophilia Foundation Network — Member of the National Hemophilia Foundation network, participating in community and research initiatives.
- National Hemophilia Foundation Network — WNYBC Foundation is a Chapter of the National Hemophilia Foundation
- National Hemophilia Foundation Network — Western New York BloodCare Foundation operates as a Chapter of the National Hemophilia Foundation.
- National Hemophilia Foundation Partner — Receives grants from the WNYBC Foundation for patient attendance at its Annual Meeting and hosts joint federal advocacy events.
- New York State Attorney General Government — Source of consumer information on the No Surprises Act, linked for patient awareness.
- New York State Bleeding Disorders Coalition Coalition — Member organization collaborating with other NYS HTC’s and bleeding disorder chapters to strengthen advocacy efforts.
- Thrombosis Lab Partner — On-site laboratory providing specialized testing and reporting for rare clotting factor deficiencies.
- University at Buffalo Partner — Collaborates with WNY BloodCare on research, education, and clinical initiatives.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Integrated Clinical Researchmethodology: integrated_clinical_researchBy embedding research into routine clinical care, we produce advances in treatment and improved patient outcomes because patients gain earlier access to innovations and clinicians can rapidly translate findings into practice.
- Integrated Comprehensive Care Modelmethodology: comprehensive_care_modelBy co-locating clinical services, pharmacy, advocacy, education, and psychosocial support within a single interdisciplinary team, we produce improved health outcomes and quality of life for patients with bleeding disorders because holistic, coordinated care reduces fragmentation and increases patient engagement and adherence.
- Patient Empowerment Through Educationmethodology: patient_education_for_empowermentBy providing targeted education about bleeding disorders and care navigation, we produce greater patient self-management and engagement because informed patients are more likely to adhere to treatment plans and advocate for their needs.