irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $694KBIANYS operates the family Helpline, a toll-free information and resource clearing house. Whether you are seeking information on traumatic brain injury, looking for resources on stroke rehabilitation. Or just trying to find your way, BIANYS is here to help! (Continued on Schedule O)We have resources for individuals with brain injury, family members, professionals, schools, or any other interested parties including: finding a local support group, locating brain injury rehabilitation services in your area, getting help with benefit programs and social services, resources for legal advocacy, the Medicaid TBI and NHTD waiver program, caregiver supports, training requests, services for children, including the FACTS program, and locating regional support group meetings. BIANYS advocates for brain injury survivors so that everyone has access to the services they need. These are issues we are currently working on: Continuum of Care for People with a Traumatic Brain Injury, BIANYS proposes a plan that details four recommendations to address the needs of the brain injury survivor to get the help they need from the time of their injury to the time they integrate back into their community. Amend the 2011 New York State Concussion Management Awareness Act to address the current disparate nature of brain injury services and strengthen advisory and coordination channels. BIANYS also advocates for many issues that confront the brain injury community daily through webinars, action alerts, legislative meeting and education. The BIANYS launched the Concussion Initiative Advisory Committee in 2017 as an interdisciplinary approach to issues related to concussion. Members include 40+ health care, education and advocacy professionals from across the state, all of whom share the goal of improving concussion education and care for all New Yorkers. The goal of the Concussion Initiative are to identify and implement protocols that achieve a successful Return-to-Life for all New Yorkers who sustain concussions, advocate for public policy addressing concussion, and to implement educational standards that address concussion. The Concussion Initiative developed sub-committees that specialize in four significant areas. They are: Legislation and policy which reviews current New York State legislation and policies, issues recommendations, and works with elected leaders and other stakeholders to increase awareness, diagnosis and management of concussion; Public awareness and funding which focuses on developing greater public awareness and pursuing sustainable financial support for the work of the Concussion Initiative; Centers for Excellence which analyzes health care systems and issues recommendations for innovative ideas that expand access to interdisciplinary concussion evaluation and treatment centers, including the integration of updated evidence based guidelines; Return to Life which reviews guidelines and protocols related to concussion management and generates specific recommendations for integration of "Return to Life and Activity" protocols within medical, educational, vocational settings.The BIANYS Family Fund provides emergency support to individuals with brain injury and their families. Applications are reviewed on a case-by-case basis, following Fund guidelines.
named programs · 6 · from sources
What they call their work
Annual Conference Scholarship Fund
Provides financial assistance for individuals with brain injury and caregivers to attend educational conferences.
Concussion Initiative Advisory Committee
Interdisciplinary committee of over 40 healthcare, education, and advocacy professionals working to improve concussion education and care protocols across New York State.
Continuum of Care for Neuro-Resource Facilitation (COC)
Advocacy and coordination initiative proposing a plan to address the needs of brain injury survivors from time of injury through community reintegration.
FACTS Program
Services for children with brain injury and their families, including educational and support resources.
Family Helpline
Toll-free information and resource clearinghouse for individuals with brain injury, families, professionals, and schools seeking support services, rehabilitation resources, and benefit assistance.
Support Groups
Statewide network of in-person and virtual support groups for brain injury survivors, caregivers, parents, and veterans, offering peer connection and emotional support.
activities · 5 groups
What they do
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Brain Injury Support & Rehabilitation 7 activities
- Administer Neuro-Resource Facilitation Program (Continuum of Care)Operates the Continuum of Care for Neuro-Resource Facilitation Program to help brain injury survivors in New York State develop individualized plans, access community support services, create safety plans, enroll in public assistance and waiver programs, and resolve emergent issues; 35 individuals across 22 counties were enrolled as of the reporting period.
- Advocate for improved brain injury policy and care standardsAdvocates for improved access to brain injury services through legislative education, webinars, and action alerts. Key efforts include proposing a Continuum of Care plan and advocating for amendments to the 2011 New York State Concussion Management Awareness Act. Also launched the Concussion Initiative Advisory Committee in 2017, an interdisciplinary group of over 40 professionals focused on improving concussion education, care, and Return-to-Life protocols.
- Develop evidence-based resources for concussion care and return-to-life protocolsDevelops and disseminates evidence-based resources such as the Return to Learn handbook for college students recovering from concussions, created with input from higher education institutions across New York State, to support recovery and reintegration into academic and daily life.
- Facilitate brain injury support groupsConnects individuals with brain injury and their caregivers to virtual and in-person support groups across New York State, including general caregiver groups, parent-specific groups, and groups tailored for veterans. Also provides tools and guidance to help communities establish new support groups.
- Maintain brain injury resource databases and libraryMaintains comprehensive information and resource databases, as well as a library of materials, to support individuals with brain injury, caregivers, and advocates in locating services and navigating recovery across all life stages, including concussion.
- Operate Family, Advocacy, Counseling and Training Services (FACTS) ProgramProvides advocacy, counseling, and training support through the FACTS Program for families in New York State affected by pediatric or young adult brain injury, including those with injuries sustained before age 22. The program supports individuals and families navigating school, work, and daily life after brain injury.
- Operate toll-free Family Helpline for brain injury supportProvides information, referrals, and resource connections for individuals with brain injury, caregivers, families, educators, healthcare professionals, and veterans across New York State through a toll-free helpline (1-800-444-6443). Services include support for traumatic brain injury, stroke rehabilitation, pediatric brain injury, support groups, rehabilitation services, benefit programs, legal advocacy, and caregiver supports.
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Disease-Specific Clinical & Patient Education 1 activity
- Deliver free concussion education and training programsProvides free, evidence-based concussion education through on-demand online modules, virtual and in-person sessions, and educational presentations for healthcare professionals, educators, coaches, families, and student athletes. In fall 2025, delivered 14 in-person COPE presentations reaching approximately 600 people and released two online modules (Management of Concussions and Assessment of Concussions) that reached 885 individuals.
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Fundraising and Financial Support for IDD Services 1 activity
- Provide one-time financial assistance to brain injury survivors and familiesFunds one-time grants of up to $5,000 through the Family Fund and the Samantha Goldsmith Fund to support brain injury survivors and their caregiving families in New York State with unforeseen expenses related to brain injury.
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Professional Certification and Continuing Education 1 activity
- Provide professional training and capacity building in brain injury careOffers Certified Brain Injury Specialist (CBIS) training and a Professional Learning Management System to build professional capacity among healthcare providers and others working in the brain injury field.
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Outpatient Substance Use Treatment 1 activity
- Provide specialized supports for brain injury in substance use treatmentOffers specialized supports and accommodations for individuals with brain injury who are in substance use treatment programs to improve recovery outcomes and reduce the risk of overdose.
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financials · form 990 · fy2024
revenue
Total revenue$1.96M
Contributions & grants$1.89M96%
Program service revenue$37K2%
Investment income$33K2%
Other revenue$0
expenses
Total expenses$1.81M
Program expenses81%
Admin / overhead15%
Fundraising4%
Salaries & benefits$1.25M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$723K
Cash$212K
Investments$228K
Liabilities$212K
Net assets$511K
Liquid reserves2.9 mo
4 years on record · 2020–2024 · YoY revenue +18.8%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 2
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| Eileen Reardon | Executive Director | 40 | $131K |
| Kristin Griffin | Director of Finance | 40 | $92K |
board members · 17
- Alexandra Verni — Member
- Andrew Siegel Esq — Member
- Barry Dain — Member
- Brian Im — Member
- Conan O'Rourke — Member
- Jamie Ullman — Member
- Joe Vollaro — Treasurer
- John Quinan — Member
- Judith Delasi — First Vice President
- Kaiti Pierce — Secretary
- Kristine O'Rourke — Second Vice President
- Londina Cruz — Member
- Maureen O'Brien — Member
- Michael Hayes — Member
- Paul Akers — Member
- Robert C Gundersen — President
- Wendell Miller — Member
relationships · 42
Who they work with
- BIAA Partner — Creator of the 'Making the Connections' resource referenced in collaboration with other organizations
- Brain Injury Association of America Network — Partner organization providing national-level resources and information on brain injury.
- Brain Injury Association of America Network — Provides resources developed by the national association for children with brain injuries, families, educators, and communities.
- BrainLine Partner — Provides authoritative information and support to individuals affected by brain injury, in alignment with the organization's resource offerings
- BrainLine for Military and Veterans Partner — Informational resource partner focused on brain injury in military and veteran populations
- Concussion Initiative Advisory Committee Partner — Interdisciplinary committee co-led by BIANYS with 40+ healthcare, education, and advocacy professionals focused on improving concussion care and education in New York State.
- Concussion Initiative Advisory Committee Partner — Works with the Concussion Initiative Advisory Committee’s Return to Life Working Group to develop post-concussion support resources.
- Elmhurst Hospital Center Partner — Hosts a monthly in-person brain injury support group in Queens.
- Elmhurst Hospital Center Partner — Hosts an in-person brain injury support group in Queens.
- Finger Lakes Independence Center Partner — Hosts a brain injury support group in Tompkins County.
- Finger Lakes Independence Center Partner — Hosts a monthly in-person brain injury support group in Tompkins County.
- Independent Living Center Partner — Collaborates with local Independent Living Centers as a resource for individuals with brain injury to access services and benefits counseling.
- Mid-America Addiction Technology Transfer Center Partner — Co-publisher of educational resource 'Traumatic Brain Injury and Substance Use Disorders: Making the Connections'
- Model Systems Knowledge Translation Center Partner — Collaborates with the organization to provide resources for individuals with traumatic brain injuries and their supporters
- Mountain Plains Addiction Technology Transfer Center Partner — Co-publisher of educational resource 'Traumatic Brain Injury and Substance Use Disorders: Making the Connections'
- NYS Athletic Trainers Association Partner — Partner in the Concussion Outreach Prevention Education (COPE) program to prevent concussions and improve recognition in K-12 schools.
- National Association of State Head Injury Administrators Partner — Co-publisher of educational resource 'Traumatic Brain Injury and Substance Use Disorders: Making the Connections'
- National Center for PTSD Partner — Resource partner offering support related to post-traumatic stress and brain injury
- New York Independent Living Council Partner — Collaborates by referring to the Council's list of Independent Living Centers to help families access disability services and benefits counseling.
- New York Independent Living Council Partner — Collaborates to connect families with Independent Living Centers for benefits counseling and service advocacy.
- New York Independent Living Council Partner — Relies on the New York Independent Living Council's list of Independent Living Centers to connect individuals with disability services.
- New York State Athletic Trainers’ Association Partner — Collaborates on the delivery of the Concussion Outreach Prevention Education (COPE) program.
- New York State Department of Health Government — Shares state health department resources on sports-related concussion prevention and response.
- New York State Department of Veterans’ Services Partner — Resource partner providing support for veterans with brain injury
- New York State Division of Military and Naval Affairs Partner — Resource partner supporting veterans with brain injury
- New York State Office of Addiction Services and Supports Government — State agency referenced as a resource for substance use treatment and support services
- NewYork-Presbyterian Brooklyn Methodist Hospital Partner — Gold Corporate Partner supporting BIANYS mission
- Paragon Management SNF, LLC Partner — Gold Corporate Partner supporting BIANYS mission
- Putnam ARC Partner — Co-facilitates a brain injury support group in Dutchess County.
- Quantum Rehabilitation & Nursing Partner — Co-facilitates a virtual brain injury support group in Suffolk County.
+ 12 more
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Continuum of Care Coordinationmethodology: continuum_of_careBy implementing a Continuum of Care model, the organization ensures coordinated support from injury through community reintegration, because seamless transitions across services improve long-term recovery outcomes and reduce system fragmentation.
- Developmental Trajectory-Informed Supportmethodology: developmental trajectory awarenessBy tailoring long-term support to the evolving needs of children and youth with brain injuries, the organization addresses delayed challenges in cognition and behavior, because ongoing brain development means injury effects manifest over time and require adaptive responses.
- Family- and Caregiver-Centered Support Planningmethodology: caregiver-centered care planningBy developing personalized care plans that address both the individual with brain injury and the caregiver’s needs, the organization enhances family capacity and reduces burnout, because sustainable recovery depends on supporting the entire support system.
- Integrated Screening in Behavioral Healthmethodology: integrated screening and accommodationBy integrating brain injury screening and accommodations into substance use treatment, the organization improves treatment effectiveness, because unrecognized brain injuries can impair cognitive and behavioral responses to standard interventions.
- Peer-Led Support for Emotional Resiliencemethodology: peer_support_groupsBy facilitating peer-led support groups, the organization fosters emotional resilience and sustained recovery among individuals with brain injury and their caregivers, because shared lived experience builds trust, reduces isolation, and promotes adaptive coping.