named programs · 2 · from sources
What they call their work
Lyme Stories
Personal narrative initiative sharing lived experiences of individuals affected by Lyme disease to promote awareness, resilience, and patient advocacy.
Tick-Borne Disease Prevention Education
Free educational workshops for adults and youth on tick prevention, proper tick removal, identification, symptoms, and resources, offered in Madison, Onondaga, and Oswego Counties.
activities · 4 groups
What they do
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Public Awareness and Educational Outreach 2 activities
- Providing public education on tick-borne disease preventionOffers evidence-based educational programming and community outreach on tick bite avoidance, tick identification, early symptom recognition, and prevention strategies for both humans and pets. Delivers workshops to adults and youth groups, including schools, summer camps, and parks, and has conducted hundreds of community presentations.
- Raising awareness through personal storytelling and advocacyShares personal stories of individuals affected by Lyme disease to raise public awareness and support advocacy efforts, including through participation in events like the Alliance's Lyme Summit.
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Disease-Specific Clinical & Patient Education 1 activity
- Strengthening regional resource capacity for tick-borne disease responseWorks to strengthen the organization’s role as a trusted regional resource through education, prevention, advocacy, and community engagement focused on Lyme and other tick-borne diseases.
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Healthcare Delivery Networks and Coalitions 1 activity
- Supporting research and building collaborative networks on tick-borne diseasesSupports research and promotes awareness of tick-borne diseases through a collaborative network of healthcare providers, scientists, and community members to strengthen regional capacity and response.
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Volunteer Engagement and Capacity Support 1 activity
- Volunteer engagement and role developmentRecruits volunteers and tailors volunteer roles to individual skills and interests to support organizational activities.
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financials · form 990 · fy2025
revenue
Total revenue$402K
Contributions & grants$376K93%
Program service revenue$00%
Investment income$8K2%
Other revenue$19K
expenses
Total expenses$411K
Program expenses84%
Admin / overhead10%
Fundraising6%
Salaries & benefits$295K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$324K
Cash$311K
Investments$0
Liabilities$7K
Net assets$317K
Liquid reserves9.1 mo
6 years on record · 2020–2025 · YoY revenue -17.4%
leadership · form 990 part vii · fy2025
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| ROYALE SCUDERI | EXECUTIVE DIRECTOR | 40 | $114K |
board members · 20
- ANNE MESSENGER — DIRECTOR
- BRIAN LEYDET MPH PHD — DIRECTOR
- DANIELLE CUMMINGS — CHAIR
- DOUG WOJCIK — DIRECTOR
- ELIZABETH RUSCITTO — DIRECTOR
- EMILIJIA POSTOLOVSKA — SECRETARY
- FATME ALLAM MD — DIRECTOR THROUGH 11/25
- GEORGINA PINCKNEY — DIRECTOR THROUGH 11/25
- JAY BRENNER MD — DIRECTOR
- JOSEPH HARDICK — TREASURER
- JULIE COLVIN MD — DIRECTOR
- KRISTOPHER PAOLINO MD MTMH FACP — CHIEF MEDICAL OFFICER
- LAUREN EADLINE — DIRECTOR
- MICHAEL JENNINGS — DIRECTOR
- MICHELLE SAYA — DIRECTOR
- PAUL HATTY — DIRECTOR THROUGH 11/25
- SARAVANAN THANGAMANI PHD — DIRECTOR
- SHANTINA HINES KYLES — DIRECTOR
- SIMONE SEWARD MPH — VICE CHAIR
- WESLEY D KUFEL PHARMD BCIDP — DIRECTOR
relationships · 6
Who they work with
- Le Moyne College Partner — Jonah Cummings is a graduate of Le Moyne College, where he earned a degree in Communications with a minor in Business Administration.
- Providers, scientists, and community members Partner — Collaborative partners in supporting research, education, and awareness on tick-borne diseases
- Rachel May Partner — Collaborated on providing tick-borne disease education at a senior resource fair.
- Roman Catholic Diocese of Syracuse Partner — Employer and organizational base for Danielle Cummings' communications leadership and change initiatives.
- SUNY Cortland Partner — Elizabeth Balfour earned her bachelor’s degree in Adolescence Education from SUNY Cortland.
- SUNY Empire State University Network — Alumni affiliation where Melissa Carr Rowe earned her EdD and conducted research on academic-community partnerships.
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Collaborative Network Model for Research and Public Healthmethodology: collaborative_network_modelBy uniting healthcare providers, scientists, and community members in a coordinated network, the organization advances research and public health outcomes, because cross-sector collaboration accelerates knowledge sharing and strengthens prevention and response efforts.
- Evidence-Based Community Education for Preventionmethodology: evidence-based_educationBy delivering science-backed, accessible education through community workshops and tailored curricula, the organization increases prevention and early detection of tick-borne diseases, because translating complex public health information improves individual risk-reduction behaviors.
- Skills-Based Volunteer Engagementmethodology: skills_based_volunteer_matchingBy matching volunteers to roles based on their skills and interests, the organization enhances volunteer effectiveness and sustained participation, because personalized engagement increases ownership and impact in mission delivery.
- Storytelling and Communication-Driven Awarenessmethodology: communication-driven changeBy using storytelling and strategic communication to convey personal experiences with Lyme disease, the organization increases public awareness and advocacy engagement, because narrative-based messaging fosters empathy and motivates behavioral and policy change.