COMMON MAPS
Map version new-york activity top-down
Main site Contact
Menu
↑ parent activity group ·
research dossier

THE HEPATITIS C MENTOR AND SUPPORT GROUP INC

NEW YORK, NY · EIN 274155461 · Form 990EZ · FY2025 · NTEE G40 · Voluntary Health Associations · Small ($100K-$1M) · hepatitiscmsg.org
revenue
$182K
expenses
$155K
net assets
$464K
employees
program ratio
86%
mission · from form 990

The Hepatitis C Mentor and Support Group (HCMSG) was founded to address the lack of education awareness, support, and services for people living with Hepatitis C, including patients Co-infected with other conditions such as HCV/HIV, and patients in need of or living with liver transplants. To address these needs, we provide resources and services to foster the development and operation of successful support groups for Hepatitis C and Co-infected patients. These services are provided to prospective and current support group facilitators free of charge. We also provide one-on-one mentoring services to Hepatitis C and liver transplant patients. Right now, a revolution in the treatment of Hepatitis C is underway. New generation (DAA's) direct-acting antivirals have recently become available, and an even more promising new class of drugs are in development and testing. These drugs offer the promise of a cure for individual patients, and the ability to stem an emerging healthcare crisis for

profile · synthesized from sources

The Hepatitis C Mentor and Support Group (HCMSG) provides education, support, and services for people living with Hepatitis C, including those co-infected with HIV and liver transplant patients. The organization fosters the development of support groups and offers one-on-one mentoring. It operates nationally, focusing on increasing awareness and access to curative treatments.

named programs · 2 · from sources

What they call their work

One-on-One Mentoring
Offers personalized mentoring services to Hepatitis C patients and liver transplant recipients to support treatment and recovery.
Support Group Development
Provides resources and services to help establish and operate support groups for Hepatitis C and co-infected patients, offered free of charge to facilitators.
activities · 4 groups

What they do

  • Disease-Specific Clinical & Patient Education 3 activities
    • Delivering online and in-person training programs on Hepatitis C
      Offers structured training programs such as 'The Basics Of Hep C' and other educational modules covering transmission, prevention, care, treatment, and stigma, delivered through online platforms and presentations to equip patients and providers with actionable knowledge.
    • Distributing educational materials on Hepatitis C and co-infections
      Produces and distributes free print and digital educational resources about Hepatitis C and co-infection with HIV for patients, medical providers, clinics, and community-based organizations to improve health literacy and support patient-centered care.
    • Hosting webinars on Hepatitis C for patients and providers
      Produces and hosts prerecorded and interactive webinars featuring medical experts and patient stories to discuss Hepatitis C screening, treatment, stigma, and care, with a focus on underserved populations and inclusive practices.
  • HIV/AIDS Prevention and Support Services 3 activities
    • Operating peer support groups for individuals with Hepatitis C
      Organizes and facilitates in-person and online support group meetings in community settings such as hospitals and clinics, typically lasting 60 to 90 minutes on a weekly or monthly basis, to reduce isolation and address stigma for individuals affected by Hepatitis C, including those co-infected with HIV and HCV.
    • Providing one-on-one mentoring and peer support services
      Offers individualized mentoring to people living with Hepatitis C and those undergoing or living with liver transplants, providing emotional and informational support to help navigate treatment and care.
    • Supporting treatment adherence and treatment outcomes
      Provides supportive services that have contributed to over 100 clients achieving sustained virologic response (SVR) after Hepatitis C treatment, leveraging direct-acting antivirals that cure over 95% of patients.
  • Nonprofit Capacity Building Services 1 activity
    • Capacity building for partner organizations using the Circle Model
      Provides training, tools, and ongoing support to partner organizations implementing the Circle Model; conducts evaluations, co-develops implementation strategies, and tracks program effectiveness through data analysis and follow-up.
  • Transgender and Gender Non-Conforming Support Services 1 activity
    • Providing education on gender-affirming hormone therapy and transgender health
      Offers educational content and presentations on gender-affirming hormone therapy (GAHT) and inclusive care for transgender and non-conforming individuals, authored and presented by experts in the field.
financials · form 990EZ · fy2025
revenue
Total revenue$182K
Contributions & grants$182K100%
Program service revenue
Investment income$200%
Other revenue
expenses
Total expenses$155K
Program expenses86%
Admin / overhead9%
Fundraising5%
Salaries & benefits$11K
Grants paid out
Largest expense lineProfessional Fees
balance sheet
Total assets$467K
Cash$371K
Investments$0
Liabilities$8K
Net assets$464K
Liquid reserves28.6 mo
6 years on record · 2020–2025 · YoY revenue +9.4%
leadership · form 990 part vii · fy2025

Who runs it

paid leadership · 1
NameTitleHours/wkCompensation
RHONA MARKS Executive Dir. 11 $11K
board members · 1
  • MEDESA GARRETT — Director
relationships · 40

Who they work with

  • AbbVie Funder — Provides grants and sponsorships to support HCMSG's programs.
  • Albert Einstein College of Medicine Partner — Collaborates with medical advisors affiliated with Albert Einstein College of Medicine
  • American Association for the Study of Liver Diseases Network — Medical advisor serves in leadership role in AASLD
  • American Liver Foundation Network — Board member previously served as president of the Greater New York Chapter, indicating organizational alignment with national liver disease advocacy networks.
  • American Liver Foundation Network — Medical advisor has served in leadership positions with the American Liver Foundation
  • Baylor College of Medicine Partner — Collaborates with a medical advisor affiliated with Baylor College of Medicine
  • CBOs Partner — Community-based organizations that adopt the Circle Model to enhance Hepatitis C support services.
  • CDC Government — Cites CDC study on hepatitis C treatment cost savings and references CDC resources for further information.
  • Candid Network — Displays Candid's Gold Seal of Transparency on its website.
  • Charity Navigator Network — Listed on Charity Navigator, indicating adherence to standards measured by the platform.
  • Erie County Medical Center Partner — Collaborates with a medical advisor who serves as medical director of hepatology at Erie County Medical Center
  • Gilead Funder — Provides grants to support HCMSG's programs.
  • Guidestar Network — Profiled on Guidestar, indicating participation in its nonprofit transparency platform.
  • HCMSG Network — Medical providers from HCMSG participate in webinars discussing Hepatitis C challenges and care.
  • Harm Reduction Coalition Partner — Collaborates on the development of the "Gender Affirming Harm Reduction" toolkit for syringe service providers.
  • Lighthouse Learning Collective Partner — Collaborates on the development of the "Gender Affirming Harm Reduction" toolkit for syringe service providers.
  • Montefiore Medical Center Partner — Collaborates with medical advisors affiliated with Montefiore Medical Center
  • Mount Sinai Health System Partner — Collaborates with medical advisors from the Recanati/Miller Transplantation Institute at Mount Sinai
  • NYS Department of Health Government — Works with medical advisors affiliated with the New York State Department of Health
  • NYU Langone Health Partner — Collaborates with a medical advisor from Hassenfeld Children’s Hospital at NYU Langone
  • NYU Langone Health Partner — Hosted a long-running Hepatitis C support group organized and facilitated by the organization's founder.
  • New York City Council Viral Hepatitis Initiative Government — Provides grants to support HCMSG's programs.
  • North American Society of Pediatric Gastroenterology, Hepatology, and Nutrition Network — Medical advisor has served in leadership positions with NASPGHAN
  • OPC's Partner — Partners with opioid treatment programs to provide services.
  • OPCs Partner — Organizational peer communities or outpatient care providers using the Circle Model to support patients.
  • SSPs Partner — Partners with syringe services programs to address Hepatitis C.
  • SSPs Partner — Syringe services programs that implement the Circle Model to strengthen existing harm reduction and support services.
  • Sun River Health Partner — Current employer of a board member serving as Hepatitis C Program Coordinator, where collaborative client support and treatment success are implemented.
  • Trans Equity Consulting Partner — Collaborates on the development of the "Gender Affirming Harm Reduction" toolkit for syringe service providers.
  • Washington University in St. Louis Partner — Collaborates with a medical advisor from the Division of Infectious Diseases at Washington University in St. Louis
+ 10 more
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Culturally Grounded Care Improvement
    methodology: culturally_informed_care
    By equipping healthcare providers with culturally informed educational resources, we improve the quality and accessibility of Hepatitis C care in underserved communities because culturally responsive communication increases trust, reduces disparities, and strengthens patient-provider relationships.
  • Education as Empowerment for Care Engagement
    methodology: patient_education_and_empowerment
    By delivering accessible, culturally informed, and multi-format education about Hepatitis C, we enable patients to make informed health decisions and navigate care systems because knowledge reduces fear, corrects misinformation, and increases self-efficacy in treatment adherence.
  • Harm Reduction with Gender Affirmation
    methodology: gender-affirming harm reduction
    By integrating gender-affirming practices into harm reduction services for TGNCNB individuals, we improve engagement in Hepatitis C screening and care because respectful, identity-affirming environments reduce trauma and increase service utilization among high-risk populations.
  • Non-Clinical Peer Support Integration
    methodology: non-clinical peer support model
    By embedding non-clinical peer support circles within existing health service delivery systems, we enhance treatment adherence and psychosocial well-being because structured fellowship complements clinical care without replacing it, maintaining neutrality while fostering community accountability.
  • Peer Mentorship and Support Networks
    methodology: peer_support_networks
    By connecting individuals affected by Hepatitis C with trained peers who have lived experience, we improve engagement in care and treatment because shared experience fosters trust, reduces stigma, and increases confidence in navigating health systems.