named programs · 3 · from sources
What they call their work
Autism Navigator
Online platform offering multicultural, video-based tools for identifying early signs of autism and guiding early intervention
Baby Navigator
Video-based, interactive resource providing early signs of autism and home-based intervention strategies for infants and toddlers
Learn the Signs, Act Early
Partnership with the CDC to promote early detection of autism through developmental milestone tracking and public education
activities · 4 groups
What they do
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Autism and Neurodiversity Family Support Services 2 activities
- Public education and science communication on autismProvides evidence-based information to the public about autism, including early signs, causes, diagnosis, and emerging treatments. Produces a weekly podcast and other science communication content to translate research for families and professionals, covering topics such as genetic testing, neuromodulation, and folate.
- Support for families navigating autism diagnosis and servicesOffers guidance and resources to families from the time of autism diagnosis through adulthood, including support for insurance coverage of screening and diagnostics, home-based interventions, and developmental milestone tracking through partnerships with Baby Navigator, Autism Navigator, and the CDC’s “Learn the Signs, Act Early” initiative.
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Autism Awareness and Acceptance Initiatives 1 activity
- Advocacy through position statementsIssues position statements on key issues in the autism community to guide families and stakeholders.
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Biomedical Research and Innovation 1 activity
- Conducting and disseminating autism research findingsConducts, publishes, and disseminates scientific research on autism, including studies on vaccine safety, sibling and intergenerational recurrence rates by sex, and genetic and familial risk factors. Synthesizes findings from consortia and population studies to inform the scientific and autism communities.
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Genetic and Neurological Disease Research Funding 1 activity
- Funding autism researchFunds scientific research to understand the causes of autism, develop better treatments, and support scientists and organizations conducting, facilitating, publicizing, and disseminating autism research. This includes support for cutting-edge studies and evidence generation on interventions.
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financials · form 990 · fy2024
revenue
Total revenue$2.58M
Contributions & grants$2.92M113%
Program service revenue$00%
Investment income$13K1%
Other revenue$-354K
expenses
Total expenses$1.46M
Program expenses73%
Admin / overhead15%
Fundraising13%
Salaries & benefits$509K
Grants paid out$455K
Largest expense lineCompensation
balance sheet
Total assets$2.06M
Cash$1.01M
Investments$677K
Liabilities$212K
Net assets$1.85M
Liquid reserves13.9 mo
5 years on record · 2020–2024 · YoY revenue +109.5%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 2
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| ALYCIA HALLADAY ROSS | CHIEF SCIENCE OFFICER | 40 | $223K |
| CASEY GOLD-CASEY | SENIOR DIRECTOR OF OPERATIONS | 40 | $116K |
board members · 8
- ALISON SINGER — PRESIDENT
- BRYAN HARKINS — TREASURER
- JONAH ZIMILES — CHAIR OF BOARD (FROM JUNE)
- JOSEPH JOYCE — DIRECTOR
- LUCY HATCHELL — DIRECTOR
- MICHAEL LEWIS — DIRECTOR
- PAUL OFFIT — DIRECTOR
- SCOTT BADESCH — CHAIR OF BOARD (THRU MAY)
relationships · 11
Who they work with
- Alison Singer Partner — Co-Founder and President of the Autism Science Foundation, providing leadership and personal insight based on lived experience.
- Autism Navigator Partner — Collaborates to provide video-based, interactive resources for identifying early signs of autism and implementing home interventions.
- Autism Speaks Partner — Collaborates on diagnostic resources, including referral to the MCHAT screening tool and DSM-5 diagnostic criteria.
- Baby Navigator Partner — Collaborates to provide video-based, interactive resources for identifying early signs of autism and implementing home interventions.
- Baby Siblings Research Consortium Partner — Collaborates on research into recurrence rates of autism in infants with older siblings on the spectrum.
- Centers for Disease Control and Prevention Partner — Partner in the "Learn the Signs, Act Early" initiative to promote early developmental screening and family education.
- Children's Hospital of Philadelphia Partner — Collaborates on providing educational resources about vaccines and autism.
- Dr. Alycia Halladay Partner — Chief Science Officer who hosts the organization's weekly podcast on autism science.
- PubMed Partner — Directs users to access autism research through the PubMed database.
- Scientific Advisory Board Partner — Consults with the Scientific Advisory Board in developing position statements.
- Special Education PTA Partner — Recommends connecting with local Special Education PTAs (SEPTAs) for community support and resources.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Empower Families Through Science-Based Education and Peer Supportmethodology: two_generation_approachBy providing evidence-based education and facilitating peer support, the organization enables families to make informed decisions and navigate systems effectively, because empowered caregivers lead to earlier action, better treatment adherence, and improved child outcomes.
- Fund and Disseminate Evidence-Based Autism Researchmethodology: evidence-based_research_investmentBy funding high-impact, innovative research and disseminating findings through scientific and public channels, the organization advances understanding of autism and improves outcomes for individuals and families, because scientific discovery is the foundation for effective interventions and informed decision-making.
- Promote Lifespan, Evidence-Based Interventions and Diagnosticsmethodology: evidence_based_interventionsBy advocating for science-driven interventions and standardized diagnostic practices across the lifespan, the organization improves developmental and long-term outcomes, because early and accurate diagnosis combined with proven therapies like ABA and developmental models ensures timely, effective support.