named programs · 2 · from sources
What they call their work
Pietro VS. DMD Special Raffle
Periodic raffle event offering prizes in exchange for donations to support DMD research
Pietro’s Fight to the Finish Line 5K
Annual fundraising 5K event that raises awareness and funds for Duchenne Muscular Dystrophy research
activities · 6 groups
What they do
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Rare Genetic Disease Research and Advocacy 1 activity
- Advocacy to increase global awareness of Duchenne Muscular DystrophyEngages in advocacy efforts to raise worldwide awareness of Duchenne Muscular Dystrophy, including through professional medical organizations and public outreach.
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Biomedical Research and Innovation 1 activity
- Conducting clinical research on pediatric orthopedic conditionsConducts clinical research on pediatric orthopedic outcomes, particularly scoliosis treatment, and participates in multicenter studies through the National Chest Wall and Spine Deformity Study Group; has authored peer-reviewed manuscripts and textbook chapters in the field.
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Genetic and Neurological Disease Research Funding 1 activity
- Funding research for Duchenne Muscular Dystrophy treatments and curesFunds translational and clinical research aimed at advancing scientific discoveries into human trials for Duchenne Muscular Dystrophy, directing all raised funds to support researchers working on treatments or cures for the disease.
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Charity Event Organization 1 activity
- Hosting fundraising events including 5K runs and rafflesOrganizes recurring fundraising events such as the annual "Pietro's Fight to the Finish Line" 5K and raffle drawings, such as one held on January 31, 2021, to support organizational programs.
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Pediatric Surgical Interventions 1 activity
- Providing volunteer medical care internationally for children with orthopedic conditionsDelivers volunteer medical services abroad to children with orthopedic conditions, focusing on improving access to care in underserved regions.
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Uncategorized 1 activity
- Founding and leading the Center for Early Onset ScoliosisFounded and leads the Center for Early Onset Scoliosis at Children's Hospital of New York-Presbyterian to enhance treatment infrastructure and improve clinical outcomes for young children with scoliosis.
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financials · form 990 · fy2024
revenue
Total revenue$42K
Contributions & grants$61K146%
Program service revenue$00%
Investment income$00%
Other revenue$-19K
expenses
Total expenses$74K
Program expenses85%
Admin / overhead14%
Fundraising2%
Salaries & benefits$0
Grants paid out$63K
Largest expense lineFacilities
balance sheet
Total assets$38K
Cash$38K
Investments$0
Liabilities$0
Net assets$38K
Liquid reserves6.2 mo
4 years on record · 2020–2024 · YoY revenue -48.5%
leadership · form 990 part vii · fy2024
Who runs it
board members · 3
- DAYNA SCARSO — CO PRESIDENT
- EMANUELE SCARSO — TREASURER
- SAMANTHA ALTILIO — CO PRESIDENT
relationships · 15
Who they work with
- American Academy of Pediatrics, Orthopaedic Subgroup Partner — Dr. Vitale has served on the Board of Directors of this subgroup.
- Charleysfund.org Partner — Engaged with Charleysfund.org to gather information on treatments and management of DMD.
- Children’s Hospital of New York-Presbyterian Partner — Dr. Vitale serves as Chief of the Pediatric Spine and Scoliosis Service and Associate Chief of the Division of Pediatric Orthopaedic Surgery at this institution.
- Columbia University Medical Center Partner — Dr. Vitale is the Ana Lucia Associate Professor of Orthopaedic Surgery at this institution.
- CureDuchenne.org Partner — Collaborated with CureDuchenne.org to learn about treatments and care strategies for DMD.
- Gables New York Partner — Donated a prize for a fundraising raffle.
- Institute of Medicine Partner — Dr. Vitale has participated in child advocacy efforts through this organization.
- Leading scientists in the world Partner — Collaborates with top scientists to identify viable research projects and accelerate clinical trials for Duchenne Muscular Dystrophy.
- Michaelscause.org Partner — Reached out to Michaelscause.org to learn about supplements, physical activities, and care practices for DMD.
- Mrs. Maria Barone Partner — Donated a prize for a fundraising raffle.
- National Chest Wall and Spine Deformity Study Group Partner — Dr. Vitale serves on the Board and participates in multicenter studies to improve care for youth with scoliosis.
- Pediatric Orthopaedic Society of North America Partner — Dr. Vitale has served on the Board of Directors and participates in advocacy efforts through this organization.
- Ryansquest.org Partner — Consulted Ryansquest.org for insights on treatments and quality-of-life improvements for children with DMD.
- U.S. Food and Drug Administration Government — FDA approval of Exondys 51 for Duchenne Muscular Dystrophy treatment is highlighted as a key milestone supported by the organization's advocacy.
- thesfnews.com Partner — Media partner that published the full article about Pietro's Fight and the FDA approval of a muscular dystrophy drug
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Advocacy for Drug Development and Approvalmethodology: drug-approval-advocacyBy advocating for the development and FDA approval of targeted DMD treatments, the organization improves patient outcomes, because regulatory progress enables earlier access to life-changing therapies.
- Outcomes-Based Clinical Care Modelmethodology: outcomes-based pediatric orthopedicsBy using clinical research on pediatric orthopedic outcomes to guide treatment, the organization optimizes quality of life, because data-driven care improves long-term patient function and well-being.
- Research Acceleration and Funding for Curemethodology: research_accelerationBy identifying and funding high-impact DMD research and accelerating clinical trials, the organization advances the development of a cure, because targeted investment and scientific collaboration shorten the path to effective treatments.