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CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC
WEST SENECA, NY · EIN 201959386 · Form 990EZ · FY2025 · NTEE H96 · Medical Research · Micro (<$100K) · columnofhope.org
revenue
$37K
expenses
$69K
net assets
$274K
employees
—
mission · from form 990

SEARCHING FOR BETTER UNDERSTANDING, TREATMENTS AND CURES FOR CHIARI MALFORMATION (CM), SYRINGOMYELIA (SM), NEUROPATHIC PAIN AND RELATED DISORDERS

profile · synthesized from sources

Nonprofit medical research foundation focused on advancing understanding, treatments, and cures for Chiari malformation, syringomyelia, neuropathic pain, and related neurological conditions. Funds scientific research and surgical innovation through targeted grants, primarily supporting long-term collaborations with research teams. Operates under the public name "Column of Hope" to raise awareness and support.

named programs · 2 · from sources

What they call their work

Research Grant Program
Provides targeted funding to scientific and clinical research teams, such as Dr. Marcus Stoodley’s team at Macquarie University and Neuroscience Research Australia, to advance understanding and surgical outcomes for Chiari malformation and syringomyelia.
Working Toward a Day Without Pain Gala
Annual fundraising gala event that supports the foundation’s research mission, featuring photo documentation and community engagement to raise awareness and funds.
activities · 2 groups

What they do

  • Neurological Disorder Research & Rehabilitation 1 activity
    • Conducting medical research on Chiari malformation and related disorders
      Conducts medical research focused on Chiari malformation, syringomyelia, neuropathic pain, and related neurological conditions, with the aim of advancing understanding and treatment to reduce patient pain.
  • Uncategorized 1 activity
    • Funding research on surgical outcomes for Chiari malformation
      Funds Dr. Marcus Stoodley's research team at Macquarie University and Neuroscience Research Australia to define technical outcomes necessary for successful Chiari surgery, including through a formal research contract for Phase 1 of the project.
financials · form 990EZ · fy2025
revenue
Total revenue$37K
Contributions & grants$8K20%
Program service revenue——
Investment income$7K18%
Other revenue—
expenses
Total expenses$69K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out$68K
balance sheet
Total assets$274K
Cash—
Investments—
Liabilities—
Net assets$274K
5 years on record · 2020–2025 · YoY revenue +150.3%
leadership · form 990 part vii · fy2025

Who runs it

board members · 1
  • LAURA HOLENA — DIRECTOR
relationships · 3

Who they work with

  • Elizabeth Pellette Photography Partner — Provided photographic services for the organization's galas.
  • Macquarie University Partner — Collaborates with the research team on defining technical outcomes for Chiari surgery.
  • Neuroscience Research Australia Partner — Collaborates with the research team on defining technical outcomes for Chiari surgery.
strategies · 1

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Translational Research Pipeline
    methodology: translational_research_funding
    By funding basic science and supporting the application of laboratory findings to clinical surgical techniques, we accelerate the development of effective treatments for Chiari and syringomyelia, because bridging the gap between research and practice leads to faster patient impact.