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HEMOPHILIA ASSOCIATION OF THE SOUTHERN TIER INC
BINGHAMTON, NY · EIN 161490070 · Form 990EZ · FY2020 · NTEE G20 · Voluntary Health Associations · Micro (<$100K) · bdast.org
revenue
$9K
expenses
$20K
net assets
$34K
employees
—
mission · from form 990

TO RAISE AWARENESS OF HEMOPHILIA, VON WILLEBRANDS AND RELATED COAGULATION DEFICIENCIES TO HELP KIDS ATTEND CAMP AT NO COST TO THE FAMILY TO HELP FAMILIES RECEIVE EDUCATION ABOUT COAGULATION DEFICIENCIES

profile · synthesized from sources

Hemophilia Association of the Southern Tier is a nonprofit serving families in Central New York and the Southern Tier region affected by hemophilia, von Willebrand disease, and related coagulation disorders. The organization provides peer support, educational programming, and advocacy opportunities. It helps families access care and attend camp at no cost while raising awareness about bleeding disorders.

named programs · 3 · from sources

What they call their work

Advocacy Training and Support
Program that empowers families to advocate before government representatives in Albany and Washington D.C.
BDAST Family Christmas Party
Annual family gathering providing community connection and celebration for individuals and families affected by bleeding disorders
VWD Education Program and Dinner
Annual educational event focused on von Willebrand disease, featuring expert presentations and dinner, sponsored by Takeda
activities · 5 groups

What they do

  • Bleeding and Blood Disorder Support Services 1 activity
    • Distributing educational resources about bleeding disorders
      Provides families with information and educational materials on hemophilia, von Willebrand disease, and related coagulation deficiencies to improve understanding and management of these conditions.
  • Familial Support for Rare Genetic Conditions 1 activity
    • Facilitating peer support networks for families affected by bleeding disorders
      Creates and maintains a support network that enables families to connect, share experiences, and offer mutual support related to living with bleeding disorders.
  • Organized Member Social Events 1 activity
    • Hosting annual community events for the bleeding disorders community
      Organizes recurring social and educational gatherings such as an annual family Christmas party and disease-specific educational dinners to strengthen community ties and support.
  • Healthcare Policy Advocacy 1 activity
    • Organizing advocacy engagement for bleeding disorders community
      Coordinates opportunities for individuals and families affected by bleeding disorders to advocate directly with government representatives in Albany and Washington D.C.
  • Summer Camp Access Scholarships 1 activity
    • Providing financial assistance for children with bleeding disorders to attend camp
      Offers financial support to cover the costs of camp attendance for children affected by hemophilia and related coagulation deficiencies, ensuring no financial burden to their families.
financials · form 990EZ · fy2020
revenue
Total revenue$9K
Contributions & grants$8K88%
Program service revenue——
Investment income$130%
Other revenue—
expenses
Total expenses$20K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out$3K
balance sheet
Total assets$34K
Cash—
Investments—
Liabilities—
Net assets$34K
3 years on record · 2018–2020 · YoY revenue -66.6%
leadership · form 990 part vii · fy2020

Who runs it

board members · 3
  • BARBARA FERRESE — BOARD MEMBER
  • JON DAVIS — BOARD MEMBER
  • LESA KAERCHER — BOARD MEMBER
relationships · 1

Who they work with

  • Takeda Partner — Co-sponsors an educational event on Von Willebrand Disease and Vonvendi treatment.
strategies · 2

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Integrated Support Model
    methodology: integrated_support_model
    By combining financial assistance for camp attendance with family education, we address both practical barriers and knowledge gaps, because holistic support improves overall well-being and engagement in care for families affected by coagulation disorders.
  • Peer-Support Network
    methodology: peer-support network
    By facilitating peer-to-peer connections instead of solely providing medical information, we foster emotional resilience and practical coping strategies, because shared lived experience increases trust, engagement, and sustainable self-management among families managing bleeding disorders.