What they call their work
What they do
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Recreational and Emotional Support Programs for Children with Serious Illnesses 1 activity
- Delivering educational resources and public awareness programsConducts free educational seminars for families of children with serious illnesses and provides public education about the needs of children with diseases, disabilities, and disorders in Central New York.
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Diaper and Baby Supply Distribution 1 activity
- Distributing new infant clothing through the First Duds ProgramProvides new infant clothing to over 500 local families annually and distributes packages to clinics and hospitals across Onondaga, Madison, Oswego, and Cayuga counties in Central New York.
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Charity Golf Tournament Fundraiser 1 activity
- Organizing fundraising events to support children with medical needsHosts community events such as The Lakes Run to raise funds and awareness for children with medical conditions and their families in Central New York.
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Pediatric Medical Care and Research Support 1 activity
- Providing financial and medical support to children with diseases, disabilities, and disordersOffers direct financial assistance, medical insurance reimbursement, travel cost support, and loans of durable medical equipment to children in Central New York with diseases, disabilities, or disorders, along with advocacy, intervention, and referrals for affected families.
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Who runs it
- Albert Cutri — Director
- Benjamin Rayland — Director
- Bill Neely — Director
- Cathleen Desimone RNFA MSN — Director
- Colleen Fox — Director
- Kathleen Miller-Murphy — President
- Lynne McCawley — Director
- Matthew Bulger — Vice President
- Nina Albino — Executive Direc
- Scott Oliver — Treasurer
- Victoria Baratta — Secretary
Who they work with
- Central New York businesses Partner — Collaborates with local businesses to support children with diseases, disabilities, and disorders and their families.
- Central New York individuals Partner — Engages local individuals in charitable efforts to support children with diseases, disabilities, and disorders and their families.
- First Station Media Partner — Technology or service provider powering the organization's website.
- Paypal Government — Platform used for receiving donations
- Venmo Government — Platform used for receiving donations
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Child-Centered, Family-Inclusive Support Modelmethodology: child-centered_supportBy focusing on the child as the central unit of care and including the family in support services, we address holistic needs regardless of diagnosis, because this approach reduces systemic fragmentation and ensures comprehensive assistance that adapts to diverse medical and familial circumstances.