named programs · 4 · from sources
What they call their work
Advocacy Day in Albany
Annual event organized with sister organization CDANY to mobilize advocates and influence policy decisions related to consumer-directed home care
Annual Conference
Statewide gathering for CDPA providers, consumers, and allies to share best practices, receive training, and strengthen the CDPA network
CDPA Peer Mentoring Program
Provides peer support to CDPA consumers through experienced mentors who guide individuals in managing their personal assistants and navigating the program
Monthly Webinar Series
Educational webinars on topics such as the OMIG Work Plan and the New York Independent Assessor Program for stakeholders in the CDPA system
activities · 8 groups
What they do
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Professional Conference & Symposium Organization 1 activity
- Annual conference and event planning for CDPA stakeholdersOrganizes and oversees the annual conference and gala, along with regional provider and community organizing sessions, with the 21st annual conference held in September 2024 in Albany, providing networking and educational opportunities for participants in the CDPA program.
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Professional Membership and Association Benefits 1 activity
- Membership services and benefits for consumers and providersOffers individual memberships to Medicaid consumers and the public, providing access to event discounts, advocacy communications, recognition, and a public membership map listing provider contact information by county to support network development and service access.
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Mentorship and Professional Development Programs 1 activity
- Peer mentoring and peer support programsProvides peer mentoring based on over 30 years of experience to support individuals using the CDPA program in problem-solving and managing their care, including through the 'Balancing Incentives Program' project focused on increasing CDPA effectiveness.
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Healthcare Policy Advocacy 1 activity
- Policy advocacy and government relations for consumer-directed careConducts ongoing government relations work with state agencies and the legislature, develops annual policy priorities, and leads advocacy efforts to protect participant rights, ensure fiscal stability for intermediaries, and expand the Consumer Directed Personal Assistance Program in collaboration with the Department of Health and managed care organizations.
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Professional Conference Support 1 activity
- Scholarship program for conference attendanceOffers scholarship assistance to eligible consumers and designated representatives to attend the annual conference, increasing accessibility and participation in CDPA-related education and advocacy events.
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Consumer-Directed Personal Care Administration 1 activity
- Support for self-directed personal care under MedicaidEnables Medicaid recipients in New York State to recruit, hire, train, supervise, and terminate their own personal assistants through the Consumer Directed Personal Assistance Program, promoting autonomy and independent living for individuals with disabilities.
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Member-Exclusive Resource Access 1 activity
- Technical assistance and educational resources for affiliate membersProvides affiliate members with technical assistance, an online reference library, members-only webinars, a listserv for regulatory updates, and recognition as Allied Organizations on the CDPAANYS website to strengthen capacity and promote best practices in consumer-directed care.
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Uncategorized 4 activities
- Advocacy on data-sharing requirements for Fiscal IntermediariesChallenged the legality of data-sharing mandates imposed on Fiscal Intermediaries by sending formal letters to the New York State Department of Health, advocating for consumer and worker privacy rights.
- Legal advocacy to protect CDPA reimbursement methodologyEngaged in litigation and won a legal decision in the case CDPAANYS, et al. v McDonald, challenging changes to the reimbursement methodology for Consumer Directed Personal Assistance Programs, safeguarding fiscal stability for fiscal intermediaries and participants.
- Monthly webinar series on agency priorities and regulatory updatesHosts monthly webinars for stakeholders, including presentations from state officials such as the Acting Medicaid Inspector General, to provide updates on agency priorities, including the OMIG Work Plan for 2024 and key program integrity initiatives.
- Public education on CDPA rights and changesProduces and publishes informational materials such as Q&A documents to inform consumers and workers about recent changes to the CDPAP program and their rights, particularly in contexts of limited public information.
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financials · form 990 · fy2023
revenue
Total revenue$548K
Contributions & grants$4K1%
Program service revenue$414K76%
Investment income$16K3%
Other revenue$114K
expenses
Total expenses$694K
Program expenses95%
Admin / overhead5%
Fundraising0%
Salaries & benefits$475K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$533K
Cash$424K
Investments$0
Liabilities$57K
Net assets$476K
Liquid reserves7.3 mo
4 years on record · 2020–2023 · YoY revenue +1.7%
leadership · form 990 part vii · fy2023
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| BRYAN MARCOU-O'MALLEY | EXECUTIVE DIRECTOR | 38 | $110K |
board members · 17
- ALEXANDER LITMAN — BOARD MEMBER
- ANGELA HARMER — BOARD MEMBER
- ANTHONY CAPUTO — BOARD MEMBER
- BRIAN FRASIER — BOARD MEMBER
- CARLOS MARTINEZ — TREASURER
- CHRISTOPHER GRABER — BOARD MEMBER
- EVELINE DEROSIA — BOARD MEMBER
- JESSICA DE LA ROSA — BOARD MEMBER
- JULIAN HAGMANN — SECRETARY
- KENDRA SCALIA — PRESIDENT
- MARCUS JOHNSON — BOARD MEMBER
- MARIA DIBBLE — VICE PRESIDENT
- SHANNON ZAWISKI — BOARD MEMBER
- STEPHEN ENGEL — BOARD MEMBER
- TAMMY PAPPERMAN — BOARD MEMBER
- THERESE BRZEZINSKI — BOARD MEMBER
- VINCENT REITER — BOARD MEMBER
relationships · 35
Who they work with
- BRIDGES of Rockland County Network — Organization represented by board member Carlos Martinez.
- Borealis Philanthropy Funder — Provided Rapid Response grant funding through its Disability Inclusion Fund.
- CDPAANYS Partner — Co-hosts events with CDPAANYS and offers joint member discounts.
- Caring Professionals Network — Organization represented by board member Julian Hagmann.
- Center for Disability Rights Network — Organization represented by board member Tammy Papperman.
- Companion Care of Rochester Network — Organization represented by board member Angela Gioia.
- Concepts of Independence, Inc. Network — Organization represented by board member Anthony Caputo.
- Consumer Directed Action of New York Partner — Collaborates with Consumer Directed Action of New York on advocacy events, including Advocacy Day in Albany.
- Consumer Directed Action of New York Partner — Sister organization collaborating on Advocacy Day in Albany.
- Consumer Directed Choices Network — Organization represented by board member Christopher Graber.
- Department of Health Government — Collaborates with CDPAANYS to expand the Consumer Directed Personal Assistance program in New York State.
- Direct Care Innovations Partner — Partner organization providing EVV and custom management solutions in support of CDPAANYS mission.
- Governor’s office Government — Engaged in advocacy and government relations efforts with the Governor's office to support consumer-directed care.
- HHAeXchange Partner — Partner organization providing EVV and custom management solutions in collaboration with CDPAANYS.
- Hilton Albany Partner — Designated hotel with a group reservation block for conference attendees.
- Ideal Home Health Network — Organization represented by board member Alexander Litman.
- Independent Living Center of the Hudson Valley, Inc. Network — Organization represented by board member Vincent Reiter.
- Independent Living, Inc. Network — Organization represented by board member Shannon Zawiski.
- Long Island Center for Independent Living Network — Organization represented by board member Therese Brzezinski.
- Managed Long Term Care Plans Government — Managed long term care plans assess CDPA eligibility and authorize cases in counties where mandatory managed care is implemented.
- New York Legal Assistance Group Partner — Partner organization whose representative presented on the New York Independent Assessor Program in a CDPAANYS webinar.
- New York State Caregiving and Respite Coalition Coalition — Coalition partner focused on caregiving and respite support, collaborating with CDPAANYS.
- New York State Department of Health Government — Collaborates with CDAction to administer self-directed care programs under Medicaid waivers.
- New York State Department of Health Government — Engaged in advocacy and government relations efforts to promote consumer-directed care.
- New York State Department of Health Government — Provider members must be authorized by the New York State Department of Health to qualify for membership.
- New York State Department of Social Services Government — Local departments of social services assess eligibility for the CDPA program in applicable counties.
- New York State Developmental Disabilities Planning Council Funder — Provided two grants, including seed funding to formalize CDPAANYS as a nonprofit organization.
- New York State Legislature Government — Worked with legislators to achieve policy victories supporting consumer-directed personal assistance.
- PPL (Public Partnerships LLC) Government — State-chosen contractor for CDPAP, referenced in the context of program changes and information dissemination.
- Renaissance Albany Hotel Partner — Designated hotel with a group reservation block for conference attendees.
+ 5 more
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Consumer-Directed Care Modelmethodology: consumer-directed careBy placing individuals with disabilities or chronic illnesses in control of hiring, managing, and directing their personal assistants, we improve care quality and cultural congruence because autonomy increases engagement and ensures services align with personal needs and values.
- Cross-Sector Advocacy Coalition Buildingmethodology: cross-sector collaborationBy uniting aging and disability communities, fiscal intermediaries, and allied organizations, we strengthen advocacy for consumer-directed care because shared goals across sectors amplify influence and sustain systems change.
- Disability-Led Systems Changemethodology: disability-led leadershipBy centering leadership and advocacy within the disability community, we drive more authentic and effective policy change because lived experience ensures priorities reflect real needs and promote long-term power-building.
- Peer Mentorship Through Lived Experiencemethodology: peer_mentorship_modelBy connecting individuals navigating consumer-directed personal assistance with trained peers who have lived experience, we increase program engagement and self-efficacy because empathetic guidance reduces barriers and builds confidence.