What they call their work
What they do
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Disability Rights Advocacy & Self-Advocacy Empowerment 1 activity
- Board engagement with lived experienceEngages board members who have personal or family experience with brain or mental health conditions to inform and advance the organization's mission.
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Peer-Led Mental Health Support Groups 1 activity
- Community engagement and storytellingFeatures community-written Brain Stories to offer guidance and inspiration for individuals recently diagnosed with brain health conditions and their families, fostering peer support and shared understanding.
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Mental Health Research and Services Funding 1 activity
- Funding research in brain and mental healthProvides grant funding for specific research projects in neuroscience and mental health that show significant insight and potential, including studies on Depression, Parkinson’s Disease, Eating Disorders, PTSD, Alcohol Use Disorder, and Epilepsy conducted at academic institutions.
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Holiday and Seasonal Essentials Distribution 1 activity
- Head injury prevention outreachDistributed 120 youth bike and board helmets in Newburgh, NY, during a toy drive event on December 2, 2023, as part of head injury prevention education efforts.
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Mental Health Education and Awareness 1 activity
- Public education on brain and mental healthProvides free and accessible education on brain and mental health through an online database of resources, blogs, and stories; disseminates scientific research on preventing, treating, and curing brain diseases; and produces a weekly newsletter authored by a psychiatry resident physician. Offers educational content on over 450 neurological and psychological conditions via website and social media platforms, including ADHD, Alzheimer's, depression, PTSD, and epilepsy.
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Who runs it
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| JAY MATEY | VP & TREASUR | 40 | $84K |
- COLLIN KRZYANIAK — BOARD MEMBER
- JAKE GOODMAN — BOARD MEMBER
- JESSICA WILLIAMS — SECRETARY
- JOHN BOULTON — PRESIDENT/CH
- LACEY D ANGIOLETTI — BOARD MEMBER
Who they work with
- Charity Navigator Partner — Displays Charity Navigator logo, indicating partnership for nonprofit evaluation and transparency.
- Guidestar Network — Profile listed on Guidestar platform
- Guidestar Network — Profile listed on Guidestar, indicating transparency and participation in the nonprofit data network.
- Guidestar Partner — Displays Guidestar widget indicating transparency and accountability partnership.
- Johns Hopkins Partner — Partner institution where the organization has supported research on Depression, Parkinson’s Disease, and Eating Disorders.
- Moroney's Toy Drive Partner — Partnered to distribute youth helmets during a toy drive event.
- NYU Langone Partner — Partner institution where the organization has supported research on Alcohol Use Disorder.
- United Brain Association Funder — Receives a portion of each tumbler sale to support its mission.
- United Brain Association Partner — Sells branded polos with a portion of proceeds supporting the organization's mission.
- University of Arizona Partner — Partner institution where the organization has supported Epilepsy research.
- Yale Partner — Partner institution where the organization has supported PTSD research.
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Crowdfunding to Accelerate Researchmethodology: crowdfunding_for_research_accelerationBy mobilizing public financial support through organized crowdfunding, we accelerate research on brain diseases and disorders, because decentralized funding enables rapid deployment of resources to high-potential, innovative projects.
- Lived Experience Governancemethodology: lived-experience_governanceBy including individuals with personal or family experience of brain and mental health challenges in governance, we strengthen organizational commitment and alignment with the mission, because lived experience ensures authentic representation and deeper accountability to the communities served.
- Public Dissemination of Scientific Researchmethodology: public_science_disseminationBy distributing current scientific research to the public, we increase awareness and understanding of brain diseases and disorders, because access to credible science empowers individuals to seek prevention, treatment, and support.
- Stigma Reduction Through Education and Storytellingmethodology: stigma_reduction_through_educationBy providing free education and amplifying peer narratives, we reduce stigma and isolation around brain health conditions and encourage treatment-seeking behavior, because accessible information and relatable personal stories foster empathy, normalize experiences, and build community resilience.
- Strategic Research Prioritization via Expert Networksmethodology: research_prioritization_through_expert_networksBy maintaining close relationships with researchers, we identify and fund high-potential projects in brain and mental health, because expert networks enable early detection of breakthrough opportunities and efficient allocation of research funding.