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research dossier

UNITED BRAIN ASSOCIATION INC

VAILS GATE, NY · EIN 824935768 · Form 990 · FY2025 · NTEE G12 · Voluntary Health Associations · Small ($100K-$1M) · unitedbrainassociation.org
revenue
$566K
expenses
$554K
net assets
$47K
employees
1
program ratio
79%
mission · from form 990

EDUCATE THE PUBLIC AND RAISE AWARENESS BY MAKING AVAILABLE HE LATEST SCIENTIFIC RESEARCH ON HOW TO PREVENT, TREAT, AND CURE BRAIN DIEASES AND DISORDERS. ORGANIZE CROWDFUNDING TO SPEED UP RESEARCH ON BRAIN DISEASES AND DISORDERS.

profile · synthesized from sources

United Brain Association provides free, accessible education on brain and mental health conditions, aiming to reduce stigma and empower individuals to seek treatment. The organization funds research projects and maintains an online database of resources, stories, and blogs on over 450 neurological and psychological issues. It operates nationally with a focus on public awareness and research support.

named programs · 5 · from sources

What they call their work

Brain Resources
Online database providing information on over 450 neurological and psychological conditions, including symptoms, treatments, and research updates
Brain Stories
Community-written narratives offering personal insights and support for individuals dealing with brain and mental health diagnoses
Jake’s Corner
Weekly newsletter by board member Dr. Jake Goodman delivering mental health education and wellness tips
Research Funding Initiative
Supports targeted research projects on conditions including Depression, Parkinson’s, PTSD, Alcohol Use Disorder, and Epilepsy at institutions such as Johns Hopkins, Yale, and NYU Langone
Youth Bike Helmet Program
Distributes protective helmets to children in Newburgh, NY to promote awareness of traumatic brain injury prevention
activities · 5 groups

What they do

  • Disability Rights Advocacy & Self-Advocacy Empowerment 1 activity
    • Board engagement with lived experience
      Engages board members who have personal or family experience with brain or mental health conditions to inform and advance the organization's mission.
  • Peer-Led Mental Health Support Groups 1 activity
    • Community engagement and storytelling
      Features community-written Brain Stories to offer guidance and inspiration for individuals recently diagnosed with brain health conditions and their families, fostering peer support and shared understanding.
  • Mental Health Research and Services Funding 1 activity
    • Funding research in brain and mental health
      Provides grant funding for specific research projects in neuroscience and mental health that show significant insight and potential, including studies on Depression, Parkinson’s Disease, Eating Disorders, PTSD, Alcohol Use Disorder, and Epilepsy conducted at academic institutions.
  • Holiday and Seasonal Essentials Distribution 1 activity
    • Head injury prevention outreach
      Distributed 120 youth bike and board helmets in Newburgh, NY, during a toy drive event on December 2, 2023, as part of head injury prevention education efforts.
  • Mental Health Education and Awareness 1 activity
    • Public education on brain and mental health
      Provides free and accessible education on brain and mental health through an online database of resources, blogs, and stories; disseminates scientific research on preventing, treating, and curing brain diseases; and produces a weekly newsletter authored by a psychiatry resident physician. Offers educational content on over 450 neurological and psychological conditions via website and social media platforms, including ADHD, Alzheimer's, depression, PTSD, and epilepsy.
financials · form 990 · fy2025
revenue
Total revenue$566K
Contributions & grants$566K100%
Program service revenue$00%
Investment income$00%
Other revenue$0
expenses
Total expenses$554K
Program expenses79%
Admin / overhead11%
Fundraising9%
Salaries & benefits$91K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$51K
Cash$32K
Investments$0
Liabilities$4K
Net assets$47K
Liquid reserves0.7 mo
5 years on record · 2021–2025 · YoY revenue +11.3%
leadership · form 990 part vii · fy2025

Who runs it

paid leadership · 1
NameTitleHours/wkCompensation
JAY MATEY VP & TREASUR 40 $84K
board members · 5
  • COLLIN KRZYANIAK — BOARD MEMBER
  • JAKE GOODMAN — BOARD MEMBER
  • JESSICA WILLIAMS — SECRETARY
  • JOHN BOULTON — PRESIDENT/CH
  • LACEY D ANGIOLETTI — BOARD MEMBER
relationships · 11

Who they work with

  • Charity Navigator Partner — Displays Charity Navigator logo, indicating partnership for nonprofit evaluation and transparency.
  • Guidestar Network — Profile listed on Guidestar platform
  • Guidestar Network — Profile listed on Guidestar, indicating transparency and participation in the nonprofit data network.
  • Guidestar Partner — Displays Guidestar widget indicating transparency and accountability partnership.
  • Johns Hopkins Partner — Partner institution where the organization has supported research on Depression, Parkinson’s Disease, and Eating Disorders.
  • Moroney's Toy Drive Partner — Partnered to distribute youth helmets during a toy drive event.
  • NYU Langone Partner — Partner institution where the organization has supported research on Alcohol Use Disorder.
  • United Brain Association Funder — Receives a portion of each tumbler sale to support its mission.
  • United Brain Association Partner — Sells branded polos with a portion of proceeds supporting the organization's mission.
  • University of Arizona Partner — Partner institution where the organization has supported Epilepsy research.
  • Yale Partner — Partner institution where the organization has supported PTSD research.
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Crowdfunding to Accelerate Research
    methodology: crowdfunding_for_research_acceleration
    By mobilizing public financial support through organized crowdfunding, we accelerate research on brain diseases and disorders, because decentralized funding enables rapid deployment of resources to high-potential, innovative projects.
  • Lived Experience Governance
    methodology: lived-experience_governance
    By including individuals with personal or family experience of brain and mental health challenges in governance, we strengthen organizational commitment and alignment with the mission, because lived experience ensures authentic representation and deeper accountability to the communities served.
  • Public Dissemination of Scientific Research
    methodology: public_science_dissemination
    By distributing current scientific research to the public, we increase awareness and understanding of brain diseases and disorders, because access to credible science empowers individuals to seek prevention, treatment, and support.
  • Stigma Reduction Through Education and Storytelling
    methodology: stigma_reduction_through_education
    By providing free education and amplifying peer narratives, we reduce stigma and isolation around brain health conditions and encourage treatment-seeking behavior, because accessible information and relatable personal stories foster empathy, normalize experiences, and build community resilience.
  • Strategic Research Prioritization via Expert Networks
    methodology: research_prioritization_through_expert_networks
    By maintaining close relationships with researchers, we identify and fund high-potential projects in brain and mental health, because expert networks enable early detection of breakthrough opportunities and efficient allocation of research funding.