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THE CAREGIVER SPACE INC
NEW YORK, NY · EIN 462784507 · Form 990EZ · FY2022 · NTEE E99 · Health Care · Micro (<$100K) · thecaregiverspace.org
revenue
$46K
expenses
$58K
net assets
$-49K
employees
—
mission · from form 990

TO CONNECT THE CAREGIVER COMMUNITY TO FOSTER A HEALTHY SHARING SPACE, PROMOTE HONEST REFLECTION AND EXPRESSION THROUGH ONLINE CHANNELS, PRODUCE SUPPORTIVE AND EDUCATIONAL MATERIALS TO PROMOTE A POSITVE OUTLOOK, INCREASE SEL-CARE PRACTICESAND INVOKE A MORE INFORMAED, SKILLFUL AND SUSTAINABLE POPULATION OF HEALTHY CAREGIVDERS.

profile · synthesized from sources

The Caregiver Space is a nonprofit organization supporting individuals who provide long-term care for loved ones, focusing on emotional well-being, identity preservation, and community connection. It offers online resources, personal stories, and educational materials to help caregivers navigate burnout, grief, and isolation. The organization emphasizes self-care, boundary-setting, and sustainable caregiving practices for those supporting individuals with chronic illness, disability, or mental health conditions.

named programs · 3 · from sources

What they call their work

Care Work Library
Organized collection of articles and resources categorized by caregiving topics such as boundaries, grief, long-distance care, and medical support
Caregiver Stories
Platform for caregivers to share personal experiences and reflections on long-term care, identity, and emotional resilience
The Caregiver’s Toolbox
Resource hub offering practical guides and expert advice on caregiving challenges including burnout, medical management, and legal/financial issues
activities · 3 groups

What they do

  • Caregiver Support for Dementia and Aging 2 activities
    • Collect and organize caregiver stories and experiences
      Provides a platform for caregivers to share personal stories and real-life experiences related to supporting others through illness, disability, aging, or mental health challenges, and organizes these narratives by situation, relationship, identity, and type of support to enhance accessibility.
    • Produce educational resources and self-care tools for caregivers
      Develops practical, expert-informed resources for caregivers through The Caregiver’s Toolbox and promotes self-care practices via educational materials produced with input from experts and community members.
  • Peer-Led Mental Health Support Groups 2 activities
    • Facilitate private social media communities for caregiver connection and support
      Manages multiple private online communities via Facebook, WhatsApp, Discord, and Slack, including a 24/7 peer support Facebook group and topic-specific groups tailored to different caregiver identities, with access controlled to prevent spam and protect privacy.
    • Host and moderate online peer support forums for caregivers
      Operates public and private online discussion forums where caregivers can share experiences and receive peer support, including a public forum with at least 628 discussion topics and instant posting access for approved members.
  • Uncategorized 1 activity
    • Amplify caregiver voices in research and product development
      Operates the 'Voice of Care Work' private Facebook group to connect caregivers with researchers, product developers, and media professionals to influence systemic change and innovation in care work.
financials · form 990EZ · fy2022
revenue
Total revenue$46K
Contributions & grants$46K100%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$58K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits$52K
Grants paid out—
balance sheet
Total assets$12K
Cash—
Investments—
Liabilities—
Net assets$-49K
4 years on record · 2019–2022 · YoY revenue -16.7%
relationships · 8

Who they work with

  • Discord Partner — Uses Discord as a private communication platform for community engagement.
  • Facebook Partner — Hosts private Facebook groups as part of its community platform.
  • Hieu Do Quang Partner — Photographer whose image was used on the website, indicating a content collaboration or licensing arrangement.
  • Slack Partner — Uses Slack as a private communication channel for community members.
  • Teepa Snow Partner — Features expert insights from Teepa Snow on dementia care.
  • Typeform Partner — Uses Typeform to power the community access request form.
  • WhatsApp Partner — Uses WhatsApp as a private communication channel for community members.
  • local volunteer group at the library Partner — Participates in a volunteer group at the library as part of personal recovery and community reintegration.
strategies · 4

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Action-Based Participation Framework
    methodology: action_over_labels
    By framing caregiving as an action rather than a fixed identity, the organization lowers barriers to engagement because it validates informal, part-time, or situational care roles that might otherwise feel excluded by formal labels.
  • Integrated Peer and Expert Support
    methodology: peer-support_and_expert_resource_integration
    By combining peer-shared narratives with expert-contributed tools, the organization builds caregiver resilience because emotional validation from lived experience is reinforced by practical, actionable guidance.
  • Micro-Practices for Identity and Emotional Sustainability
    methodology: micro_dosing_selfhood
    By promoting small, intentional acts—such as micro-dosing selfhood and reducing perfectionism—the organization supports long-term caregiver well-being because incremental self-reconnection preserves emotional continuity without overwhelming care demands.
  • Peer-Driven Community Model
    methodology: peer_driven_community
    By using a decentralized, peer-led structure where caregivers collectively guide content and support, the organization fosters ownership, relevance, and sustained engagement because lived experience is central to trust and resonance in care communities.