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GAVINS GOT HEART INC
ISLIP, NY · EIN 461525370 · Form 990EZ · FY2023 · NTEE E60 · Health Care · Micro (<$100K) · gavinsgotheart.org
revenue
$5K
expenses
$10K
net assets
$89K
employees
—
mission · from form 990

FOR THE CHARITABLE PURPOSE OF PROVIDING FINANCIAL SUPPORT, EITHER DIRECTLY OR THROUGH OTHER QUALIFIED CHARITABLE ORGANIZATIONS, TO FAMILIES OF CHILDREN WHO SUFFER HEART MALADIES AT BIRTH OR IN EARLY CHILDHOOD. THE CORPORATION SEEKS TO PROVIDE FINACIAL RELIEF

profile · synthesized from sources

GAVINS GOT HEART INC supports families of children born with congenital heart defects (CHDs) by providing direct financial assistance and care packages. Based in New York, the organization was founded in 2012 by parents of a child with CHD and focuses on local families navigating medical treatments and hospitalizations. It also funds CPR/AED training programs and hospital comfort initiatives.

named programs · 5 · from sources

What they call their work

BEAT Program
Funds free heart health screenings and CPR/AED training for high school students in partnership with Southside Hospital / Northwell Health
Continued Care Program
Sends tokens of support to families during ongoing medical treatments and surgeries for children with CHDs
Family Sponsorships
Provides direct financial assistance to families of children with congenital heart defects to help with medical and non-medical expenses
Red Blanket Initiative
Donates red blankets to cardiac patients in neonatal and pediatric intensive care units at local hospitals
Smile Sacks
Distributes care packages to parents and caregivers of hospitalized cardiac infants to provide emotional support
activities · 6 groups

What they do

  • Healthcare Policy Advocacy 1 activity
    • Advocacy for congenital heart defect awareness and policy change
      Raises public awareness about congenital heart defects through education at Rotary and PTA meetings and advocates with partner organizations for policy changes, including the passage of CHD Awareness Week in New York State and legislation requiring pulse oximetry screenings for newborns.
  • Community Health Fairs and Screenings 1 activity
    • Community heart screenings and CPR/AED training
      Offers free heart health screenings and provides CPR/AED training to the community, including through funded screening events for high school students that include biometrics and physician consultations.
  • Charity Golf Tournament Fundraiser 1 activity
    • Fundraising event organization
      Organizes and hosts in-person fundraising events such as galas, "Cocktails for a Cause," "Breakfast with Santa," "Have a Heart, Make a Cookie," and "Freezin’ for a Reason" to support families and raise awareness. Events have been held annually since at least 2013, including a 2016 gala and a May 15, 2020 event in Babylon, NY.
  • Therapeutic Comfort Kits and Room Makeovers 1 activity
    • Hospital and family outreach programs
      Conducts outreach initiatives in hospitals by distributing red blankets to cardiac patients in neonatal and pediatric intensive care units, providing gift bags to parents of hospitalized newborns, and offering support during hospitalizations for congenital heart defects.
  • Digital Infrastructure Development 1 activity
    • Website redesign for improved outreach
      Completed a full redesign of the organization’s website to enhance communication, visibility, and outreach efforts.
  • Uncategorized 1 activity
    • Financial assistance for families of children with congenital heart conditions
      Provides direct financial support to families for medical expenses, travel and parking costs related to medical care, lost wages due to caregiving responsibilities, and other urgent needs associated with a child's heart condition. Supported 67 families with over $330,000 in donations, including specific cases such as twins with cardiac and genetic conditions and children undergoing open-heart surgery.
financials · form 990EZ · fy2023
revenue
Total revenue$5K
Contributions & grants$5K100%
Program service revenue$00%
Investment income$00%
Other revenue—
expenses
Total expenses$10K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out$6K
balance sheet
Total assets$89K
Cash—
Investments—
Liabilities—
Net assets$89K
5 years on record · 2019–2023 · YoY revenue -26.0%
relationships · 11

Who they work with

  • American Heart Association Partner — Collaborated with Gavin's Got Heart to advocate for CHD Awareness Week and newborn pulse oximetry screening legislation in New York State.
  • Cohen Children’s Medical Center Partner — Medical institution where a supported child received open-heart surgery.
  • Cohen's Children's Medical Center Partner — Provided medical care and surgical treatment for Gionni's congenital heart defects
  • Columbia Presbyterian Hospital Government — Hospital where Gavin was born and underwent initial open heart surgery
  • Columbia University Medical Center Partner — Partnered with Gavin's Got Heart to provide financial assistance to families of patients at the Single Ventricle Clinic.
  • Mended Little Hearts Partner — Collaborated with Gavin's Got Heart to advocate for CHD Awareness Week and newborn pulse oximetry screening legislation in New York State.
  • Morgan Stanley Children’s Hospital Government — Hospital where Gavin underwent a third open heart surgery to replace his pacemaker
  • New York Presbyterian’s Morgan Stanley Children’s Hospital Partner — Collaborates with Gavin's Got Heart to support families of cardiac infants, including financial and emotional support.
  • Northwell Health Partner — Partners with GGH to provide free heart screenings and CPR/AED training for the community.
  • Southside Hospital / Northwell Health Partner — Partner organization that developed the BEAT program, which Gavin's Got Heart supports through funding.
  • Winthrop University Hospital Government — Nicole Mogil was appointed to the Family Advisory Committee at Winthrop University Hospital.
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • CPR and AED Training in Schools
    methodology: cpr-aed-training-in-schools
    By training high school students in CPR and AED use, the organization increases community capacity to respond to sudden cardiac arrest, because early intervention significantly improves survival rates.
  • Family-Centered Care Model
    methodology: family-centered_care
    By centering the lived experiences and ongoing needs of families navigating congenital heart defects, the organization improves long-term recovery and engagement, because sustained, holistic support addresses both clinical and psychosocial determinants of health.
  • Financial Relief Through Direct and Intermediary Support
    methodology: financial_relief_through_direct_or_intermediary_support
    By providing direct financial assistance or funding qualified organizations, the organization reduces economic barriers for families of children with heart conditions, because financial stability enables better health outcomes and treatment adherence.
  • Pay-It-Forward Peer Support Model
    methodology: pay-it-forward_support_model
    By engaging families who have completed treatment to support those newly diagnosed, the organization fosters resilience and continuity of care, because lived experience builds trust and reduces isolation during critical health journeys.
  • Story-Based Advocacy and Engagement
    methodology: story-based_advocacy
    By sharing personal narratives of children’s heart defect journeys, the organization drives donor engagement and public awareness, because authentic stories create emotional resonance that motivates action and support.