named programs · 3 · from sources
What they call their work
Advocacy Program
Works to advance public policy and promote the rights of people with epilepsy at the state and local levels
Community Education Program
Provides training and resources to schools, first responders, and community groups about seizure recognition and epilepsy management
Support Services
Offers peer support groups, counseling, and care coordination for individuals living with epilepsy and their families
activities · 1 group
What they do
-
Neurological Disorder Research & Rehabilitation 1 activity
- Leading efforts to stop seizures and find a cure for epilepsyConducts and supports initiatives aimed at stopping seizures and advancing research toward a cure for epilepsy, while also addressing associated challenges faced by individuals living with the condition.
-
financials · form 990 · fy2024
revenue
Total revenue$1.12M
Contributions & grants$889K80%
Program service revenue$201K18%
Investment income$27K2%
Other revenue$0
expenses
Total expenses$1.15M
Program expenses77%
Admin / overhead11%
Fundraising13%
Salaries & benefits$873K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$2.36M
Cash$151K
Investments$1.86M
Liabilities$446K
Net assets$1.92M
Liquid reserves21.0 mo
5 years on record · 2020–2024 · YoY revenue +1.4%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| JEANNINE GARAB | EXECUTIVE DIRECTOR | 40 | $156K |
board members · 20
- BETTY DIMARIA — PRESIDENT
- CATHRYN SHEEHY — DIRECTOR
- CHRISTOPHER PRIORE — DIRECTOR
- DANIEL LEHANE — DIRECTOR
- DEBORAH STEVENS — DIRECTOR
- H MICHAEL OKBY — DIRECTOR
- HARRIET KANG — DIRECTOR
- JOHN HARWICK — DIRECTOR
- KAREN WACHS — DIRECTOR
- KEVIN VOLK — DIRECTOR
- LYNNE LONGTIN — DIRECTOR
- MARISSA BROADLEY — DIRECTOR
- MICHAEL BRUNELL — TREASURER
- NICHOLAS ZARELLI — VICE PRESIDENT
- RYAN SENECAL — SECRETARY
- SANDRA SPINELLI — DIRECTOR
- SHANNON RICHARDS — DIRECTOR
- TIM RONK — DIRECTOR
- VIODELDA HOSHING — DIRECTOR
- YVONNE LUTZ — DIRECTOR
strategies · 1
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Comprehensive Epilepsy Support Modelmethodology: comprehensive_epilepsy_supportBy integrating seizure management, research advancement, and social/medical support services, we improve outcomes for individuals with epilepsy because addressing both clinical and psychosocial factors produces better health and quality of life than medical treatment alone.