named programs · 1 · from sources
What they call their work
Federal Organ Donation Reform Advocacy
Lobbying and advocacy efforts aimed at reforming federal organ donation contracting and policies to better serve patient interests
activities · 1 group
What they do
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Kidney Disease Education and Advocacy 1 activity
- Lobbying and advocacy for federal organ donation policy reformEngages in lobbying and advocacy efforts aimed at reforming federal organ donation contracting and related policies on behalf of patients.
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financials · form 990 · fy2024
revenue
Total revenue$500K
Contributions & grants$00%
Program service revenue$500K100%
Investment income$00%
Other revenue$0
expenses
Total expenses$379K
Program expenses98%
Admin / overhead2%
Fundraising0%
Salaries & benefits$0
Grants paid out$0
Largest expense lineProfessional Fees
balance sheet
Total assets$678K
Cash$678K
Investments$0
Liabilities$59K
Net assets$619K
Liquid reserves21.5 mo
2 years on record · 2023–2024 · YoY revenue -50.0%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| GREGORY SEGAL | SECRETARY & C.E.O. | 20 | $461K |
board members · 2
- HOLLY HARRIS — PRESIDENT
- SAM MAR — TREASURER
relationships · 1
Who they work with
- Federal organ donation contractors Government — Stakeholders targeted for reform through advocacy and lobbying efforts.
strategies · 1
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Policy Advocacy for Systemic Changemethodology: policy_advocacyBy advocating for policy reforms in federal organ donation contracting, we influence systemic change to better represent patient interests, because engaging at the policy level enables large-scale, sustainable improvements in organ donation systems.