named programs · 2 · from sources
What they call their work
Embedded Multisite Research Network
Facilitates collaborative research across member health systems to study health services, epidemiology, and clinical outcomes using real-world data
Scientific Data Resources Forum (SDRF)
Monthly webinar series showcasing research in informatics, data analytics, and scientific collaboration across HCSRN member sites; includes archived presentations and recordings
activities · 7 groups
What they do
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Biomedical Research and Innovation 2 activities
- Conducts collaborative health services research across member organizationsConducts research to improve individual and population health by connecting resources and capabilities across learning health care systems. Implements cornerstone research projects and supports collaborative inquiries among member organizations in areas including aging, cancer, mental health, substance use disorders, diabetes care, and post-market drug safety surveillance.
- Supports patient and stakeholder engagement in researchSupports member organizations in building infrastructure for patient engagement in research and develops generalizable tools such as the Patient Engagement Workbook to guide early study development and stakeholder involvement.
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Health Information Exchange Support 1 activity
- Develops and maintains the Virtual Data Warehouse (VDW) for multi-site researchOperates and maintains the Virtual Data Warehouse (VDW), a common data model that standardizes clinical and claims data to support multi-site research in cancer, cardiovascular disease, mental health, drug safety, and health care delivery. Publishes standardized data specifications and conducts annual quality control reviews to ensure data integrity and cross-site comparability.
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Cancer Research Funding 1 activity
- Funds Board-endorsed research initiatives and strategic prioritiesProvides financial support for research initiatives and strategic priorities endorsed by the Board, enabling implementation and scaling of collaborative projects across the network.
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Scientific Conference & Symposium Management 1 activity
- Organizes collaborative forums and conferences for research disseminationOrganizes an annual conference and bi-monthly meetings to foster collaboration, share best practices, and disseminate research findings among stakeholders in health care systems research. Convenes workgroups of IRB, HRPP, and research compliance professionals to streamline multisite research oversight.
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Medical Research & Education Dissemination 1 activity
- Produces and shares methodological guides and policy analyses for research projectsDevelops and publishes practical guides for multi-center research, including chart abstraction, recruitment optimization, and patient engagement. Produces comparative analyses of publication, authorship, and proposal policies across consortium projects to inform new research development.
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Medical Professional Education & Training 1 activity
- Provides training and capacity-building resources for researchersOffers training opportunities, webinars, and manuals for researchers on topics including patient engagement, interviewer best practices, multicenter chart abstraction, and use of the Virtual Data Warehouse. Hosts the Scientific Data Resources Forum and maintains an archive of webinar recordings and presentation materials to support knowledge sharing.
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Uncategorized 1 activity
- Supports research infrastructure through standardized tools and processesDevelops and implements streamlined research oversight mechanisms, including a reciprocal IRB review process and Inter-Institutional Agreements, and adopts the SMART IRB Platform to manage multisite research in compliance with federal regulations. Creates and shares templates for grants, IRB protocols, and subcontracts to support research administration across member sites.
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financials · form 990 · fy2024
revenue
Total revenue$689K
Contributions & grants$468K68%
Program service revenue$201K29%
Investment income$19K3%
Other revenue$379
expenses
Total expenses$661K
Program expenses84%
Admin / overhead16%
Fundraising0%
Salaries & benefits$0
Grants paid out$0
Largest expense lineProfessional Fees
balance sheet
Total assets$909K
Cash$880K
Investments$0
Liabilities$312K
Net assets$597K
Liquid reserves16.0 mo
3 years on record · 2022–2024 · YoY revenue -30.2%
leadership · form 990 part vii · fy2024
Who runs it
board members · 19
- Amit Acharya — Director
- Christine Neslund-Dudas — Director
- Claudia Steiner — Director
- JB Jones — Director
- Julie Schmittdiel — Chair Elect
- Katherine Sanchez — Director
- Kristi Reynolds — Director
- Laura Garabedian — Director
- Leslie Hinyard — Treasurer
- Mara Epstein — Director
- Melissa Poulsen — Director
- Michael Horberg — Immediate Past Chair
- Rebecca Rossom — Chair
- Rita Mangione-Smith — Director
- Robert Greenlee — Director
- Stacey Honda — Director
- Stephen Fortmann — Director
- Stephen Waring — Director
- Teaniese Davis — Secretary
relationships · 82
Who they work with
- Advocate Aurora Health Partner — Member organization affiliated with Advocate Aurora Research Institute
- Advocate Aurora Research Institute Partner — Collaborates on research related to adolescent recruitment in primary care settings presented in HCSRN webinars
- Advocate Aurora Research Institute Partner — Hosts a director for academic research (Mercedes Robaina) involved in HCSRN governance.
- Agency for Healthcare Research and Quality Government — Funding agency for both the Scalable Partnering Network and the SUPREME DM project
- Baylor Scott & White Partner — Member organization affiliated with Baylor Scott & White Research Institute
- Baylor Scott & White Research Institute Partner — Hosts a director of patient and community engaged research (Katherine Sanchez) contributing to HCSRN governance and research leadership.
- Cancer Research Network Partner — Collaborates with the Cancer Research Network, which has contributed archived presentations on using the Virtual Data Warehouse.
- Centers for Disease Control and Prevention Government — Partner organization in the Vaccine Safety Datalink through its Immunization Safety Office
- Essentia Health Partner — Engages in HCSRN webinars as presenter on the Virtual Data Warehouse and support for early career investigators.
- Essentia Health Partner — Member organization affiliated with Essentia Institute of Rural Health
- Essentia Institute of Rural Health Partner — Hosts a principal scientist (Stephen C. Waring) contributing to HCSRN research and governance.
- FDA’s Sentinel Initiative Partner — VDW served as the blueprint for the common data model used by the FDA’s Sentinel Initiative.
- Geisinger College of Health Sciences Partner — Hosts an associate professor (Melissa Poulsen) participating in HCSRN governance and population health sciences research.
- Geisinger College of Health Services Partner — Collaborates on research presented in HCSRN webinars
- Geisinger Health Partner — Collaborates on research presented in HCSRN webinars
- Geisinger Health Partner — Member organization affiliated with Geisinger Research
- Genentech Partner — Co-presents HCSRN webinars on strategies for working with non-traditional funders.
- Harvard Pilgrim Health Care Institute Partner — Hosts an assistant professor (Laura Garabedian) engaged in HCSRN governance and health policy research.
- Harvard Pilgrim Health Care Institute Partner — Member organization affiliated with Department of Population Medicine, Harvard Medical School
- Harvard Pilgrim Healthcare Institute Partner — Co-leads the HCSRN IRB workgroup and collaborates on IRB oversight for multi-site research.
- HealthPartners Institute Partner — Collaborates on research presented in HCSRN webinars
- HealthPartners Institute Partner — Hosts a senior investigator (Rebecca C. Rossom) serving in HCSRN leadership as Board Chair.
- HealthPartners Institute Partner — Member organization affiliated with HealthPartners
- HealthPartners Institute Partner — Presents in HCSRN webinars on support for early career investigators.
- Henry Ford Health Partner — Collaborates on research presented in HCSRN webinars
- Henry Ford Health Partner — Hosts an associate research scientist (Christine Neslund-Dudas) contributing to HCSRN research and governance.
- Henry Ford Health Partner — Member organization affiliated with Henry Ford + Michigan State University Health Sciences Center
- Henry Ford Health Partner — Participates in HCSRN webinars on research funding strategies.
- IMO Partner — Collaborates on research related to clinical data input and translation presented in HCSRN webinars
- Institute for Health Research Partner — Collaborates on research presented in HCSRN webinars
+ 52 more
strategies · 7
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Collaborative Research Network with Federated Datamethodology: federated_data_modelBy connecting health care systems through a federated data model, the organization enables multi-site research without centralizing sensitive data, thereby improving health outcomes through scalable, privacy-preserving collaboration because member organizations retain control while contributing to shared scientific goals.
- Cross-Center Knowledge Sharing and Capacity Buildingmethodology: cross_center_knowledge_sharingBy systematically sharing methodologies, best practices, and expert consultation across member institutions, the organization strengthens network-wide research capacity because distributed learning amplifies innovation and reduces duplication of effort.
- Integration of AI and Data Science Across Disciplinesmethodology: cross_disciplinary_ai_collaborationBy integrating expertise in AI, data science, and implementation science, the organization transforms healthcare processes at scale because cross-disciplinary collaboration enables novel solutions that neither field could achieve independently.
- Patient and Stakeholder Engagement in Research Designmethodology: patient-centered_research_designBy using a structured approach to engage patients and stakeholders early in research design, the organization ensures studies are aligned with community needs and values, thereby increasing relevance and equity because inclusive design processes produce more meaningful and actionable results.
- Pragmatic, Real-World Research Embedded in Health Systemsmethodology: pragmatic_research_networkBy designing and implementing pragmatic trials within real-world clinical settings, the organization advances research that is scalable and directly translatable into routine practice because embedding studies in existing health systems increases feasibility, equity, and relevance to frontline care.
- Single IRB Model for Efficient Multi-Site Reviewmethodology: single_IRB_reviewBy using a single IRB of record for multi-institutional studies, the organization streamlines regulatory review and accelerates study launch because eliminating redundant approvals reduces administrative burden and delays across sites.
- Standardized Data Modeling for Cross-Site Researchmethodology: common_data_modelBy standardizing clinical and claims data into a common format using established and proprietary standards, the organization enables efficient, consistent multi-site research because data harmonization reduces technical barriers and enhances comparability across diverse health systems.